{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,21]],"date-time":"2026-03-21T04:27:36Z","timestamp":1774067256338,"version":"3.50.1"},"reference-count":30,"publisher":"European Respiratory Society (ERS)","issue":"2","funder":[{"DOI":"10.13039\/501100004257","name":"Helse Vest","doi-asserted-by":"publisher","award":["PhD-grant from the Sunniva Foundation, Bergen Deac"],"award-info":[{"award-number":["PhD-grant from the Sunniva Foundation, Bergen Deac"]}],"id":[{"id":"10.13039\/501100004257","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004257","name":"Helse Vest","doi-asserted-by":"publisher","award":["Quality developing project 2013"],"award-info":[{"award-number":["Quality developing project 2013"]}],"id":[{"id":"10.13039\/501100004257","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["publications.ersnet.org"],"crossmark-restriction":true},"short-container-title":["ERJ Open Res"],"accepted":{"date-parts":[[2018,3,24]]},"published-print":{"date-parts":[[2018,4]]},"abstract":"<jats:p>Advance care planning (ACP) is a communication process for mapping a patient's wishes and priorities for end-of-life care. In preparation for the introduction of ACP in Norway, we wanted to explore the views of Norwegian pulmonary patients on ACP.<\/jats:p><jats:p>We conducted four focus group interviews in a Norwegian teaching hospital, with a sample of 13 patients suffering from chronic obstructive pulmonary disease, lung cancer or lung fibrosis. Analysis was by systematic text condensation.<\/jats:p><jats:p>Participants' primary need facing end-of-life communication was \u201cthe comforting safety\u201d, implying support, information and transparency, with four underlying themes: 1) provide good team players; 2) offer conversations with basic information; 3) seize the turning point; and 4) balance transparency. Good team players were skilled communicators knowledgeable about treatment and the last phase of life. Patients preferred dialogues at the time of diagnosis and at different \u201cturning points\u201d in the disease trajectory and being asked carefully about their needs for communication and planning. Transparency was important, but difficult to balance.<\/jats:p><jats:p>ACP for patients with life-threatening pulmonary disease should rest upon an established patient\u2013doctor\/nurse relationship and awareness of turning points in the patient's disease progression. Individually requested and tailored information can support and empower patients and their relatives.<\/jats:p>","DOI":"10.1183\/23120541.00101-2017","type":"journal-article","created":{"date-parts":[[2018,5,18]],"date-time":"2018-05-18T08:05:11Z","timestamp":1526630711000},"page":"00101-2017","update-policy":"https:\/\/doi.org\/10.1183\/ers-crossmark-policy","source":"Crossref","is-referenced-by-count":16,"title":["Advance care planning in life-threatening pulmonary disease: a focus group study"],"prefix":"10.1183","volume":"4","author":[{"given":"Nina Elisabeth","family":"Hjorth","sequence":"first","affiliation":[]},{"given":"Dagny Faksv\u00e5g","family":"Haugen","sequence":"additional","affiliation":[]},{"given":"Margrethe\u00a0Aase","family":"Schaufel","sequence":"additional","affiliation":[]}],"member":"81","published-online":{"date-parts":[[2018,5,18]]},"reference":[{"key":"2024101707075027000_4.2.00101-2017.1","doi-asserted-by":"crossref","first-page":"e543","DOI":"10.1016\/S1470-2045(17)30582-X","article-title":"Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care","volume":"18","author":"Rietjens","year":"2017","journal-title":"Lancet Oncol"},{"key":"2024101707075027000_4.2.00101-2017.2","doi-asserted-by":"crossref","unstructured":"Thomas K , Lobo B . Advance Care Planning in End of Life Care . 1st Edn. Oxford, Oxford University Press, 2011.","DOI":"10.1093\/acprof:oso\/9780199561636.001.0001"},{"key":"2024101707075027000_4.2.00101-2017.3","first-page":"e101","article-title":"Discussing prognosis with patients and their families near the end of life: impact on satisfaction with end-of-life care","volume":"3","author":"Heyland","year":"2009","journal-title":"Open Med"},{"key":"2024101707075027000_4.2.00101-2017.4","unstructured":"Helsedirektoratet . Beslutningsprosesser for Begrensning av Livsforlengende Behandling. [Decision making Processes for Limitation of Life-Sustaining Treatment]. 2013. https:\/\/helsedirektoratet.no\/Lists\/Publikasjoner\/Attachments\/67\/IS-2091-Beslutningsprosesser-ved-begrensning-av-livsforlengende-behandling.pdf"},{"key":"2024101707075027000_4.2.00101-2017.5","unstructured":"Helsedirektoratet . Nasjonalt Handlingsprogram for Palliasjon i Kreftomsorgen. [Norwegian Action Programme for Palliative Care]. Oslo, Norwegian Directorate of Health, 2015."},{"key":"2024101707075027000_4.2.00101-2017.6","unstructured":"WebMD . What are the stages of COPD? www.webmd.com\/lung\/copd\/gold-criteria-for-copd#1 Date last accessed: March 23, 2018. Date last updated: December 12, 2016."},{"key":"2024101707075027000_4.2.00101-2017.7","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2011.01.007"},{"key":"2024101707075027000_4.2.00101-2017.8","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2012.18.7.331"},{"key":"2024101707075027000_4.2.00101-2017.9","doi-asserted-by":"publisher","DOI":"10.1378\/chest.12-2367"},{"key":"2024101707075027000_4.2.00101-2017.10","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-10-15"},{"key":"2024101707075027000_4.2.00101-2017.11","doi-asserted-by":"crossref","first-page":"15043","DOI":"10.1038\/npjpcrm.2015.43","article-title":"Patient perceptions of severe COPD and transitions towards death: a qualitative study identifying milestones and developing key opportunities","volume":"25","author":"Landers","year":"2015","journal-title":"NPJ Prim Care Respir Med"},{"key":"2024101707075027000_4.2.00101-2017.12","doi-asserted-by":"crossref","first-page":"1017","DOI":"10.1080\/08870446.2015.1014816","article-title":"Prediction of end-of-life fears in COPD \u2013 hoping for the best but preparing for the worst","volume":"30","author":"Stenzel","year":"2015","journal-title":"Psychol Health"},{"key":"2024101707075027000_4.2.00101-2017.13","unstructured":"Malterud K . Fokusgrupper som Forskningsmetode for Medisin og Helsefag. [Focus Groups as Research Method for Medical and Health Care Studies] . Oslo, Universitetsforlaget, 2012."},{"key":"2024101707075027000_4.2.00101-2017.14","unstructured":"Malterud K . Kvalitative Metoder i Medisinsk Forskning. En Innf\u00f8ring. [Qualitative Methods in Medical Research. An Introduction] . Oslo, Universitetsforlaget, 2011."},{"key":"2024101707075027000_4.2.00101-2017.15","doi-asserted-by":"crossref","unstructured":"Malterud K , Siersma VD , Guassora AD . Sample size in qualitative interview studies: guided by information power. Qual Health Res 2015; pii: 1049732315617444.","DOI":"10.1177\/1049732315617444"},{"key":"2024101707075027000_4.2.00101-2017.16","doi-asserted-by":"publisher","DOI":"10.1177\/1403494812465030"},{"key":"2024101707075027000_4.2.00101-2017.17","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2003.02934.x"},{"key":"2024101707075027000_4.2.00101-2017.18","doi-asserted-by":"publisher","DOI":"10.4045\/tidsskr.14.0175"},{"key":"2024101707075027000_4.2.00101-2017.19","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-016-0089-4"},{"key":"2024101707075027000_4.2.00101-2017.20","doi-asserted-by":"crossref","first-page":"264","DOI":"10.1186\/s12885-016-2298-x","article-title":"Advance care planning \u2013 a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study","volume":"16","author":"Rietjens","year":"2016","journal-title":"BMC Cancer"},{"key":"2024101707075027000_4.2.00101-2017.21","doi-asserted-by":"publisher","DOI":"10.1177\/0269216314531313"},{"key":"2024101707075027000_4.2.00101-2017.22","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2466-14-54"},{"key":"2024101707075027000_4.2.00101-2017.23","doi-asserted-by":"publisher","DOI":"10.1164\/ajrccm.154.4.8887592"},{"key":"2024101707075027000_4.2.00101-2017.24","doi-asserted-by":"publisher","DOI":"10.1080\/15412550902902620"},{"key":"2024101707075027000_4.2.00101-2017.25","doi-asserted-by":"crossref","first-page":"1543","DOI":"10.2147\/COPD.S74641","article-title":"Palliative care in COPD: an unmet area for quality improvement","volume":"10","author":"Vermylen","year":"2015","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"key":"2024101707075027000_4.2.00101-2017.26","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afi054"},{"key":"2024101707075027000_4.2.00101-2017.27","doi-asserted-by":"publisher","DOI":"10.1177\/0269216310375861"},{"key":"2024101707075027000_4.2.00101-2017.28","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2016-209806"},{"key":"2024101707075027000_4.2.00101-2017.29","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2007.05.016"},{"key":"2024101707075027000_4.2.00101-2017.30","unstructured":"Advance Care Planning Australia. A Routine Part of Health and Personal Care. http:\/\/advancecareplanning.org.au\/ Date last accessed: March 23, 2018. Date last updated: 2018."}],"container-title":["ERJ Open Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1183\/23120541.00101-2017","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,2,24]],"date-time":"2025-02-24T04:55:48Z","timestamp":1740372948000},"score":1,"resource":{"primary":{"URL":"https:\/\/publications.ersnet.org\/lookup\/doi\/10.1183\/23120541.00101-2017"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,4]]},"references-count":30,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2018,5,18]]},"published-print":{"date-parts":[[2018,4]]}},"alternative-id":["10.1183\/23120541.00101-2017"],"URL":"https:\/\/doi.org\/10.1183\/23120541.00101-2017","relation":{},"ISSN":["2312-0541"],"issn-type":[{"value":"2312-0541","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,4]]}}}