{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T23:58:43Z","timestamp":1792799923966,"version":"4.5.0"},"reference-count":35,"publisher":"American Medical Association (AMA)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JAMA Netw Open"],"abstract":"<jats:sec id=\"ab-zcs240004-1\">\n                    <jats:title>Importance<\/jats:title>\n                    <jats:p>The use of evidence-based standardized outcome measures is increasingly recognized as key to guiding clinical decision-making in mental health. Implementation of these measures into clinical practice has been hampered by lack of clarity on what to measure and how to do this in a reliable and standardized way.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"ab-zcs240004-2\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To develop a core set of outcome measures for specific neurodevelopmental disorders (NDDs), such as attention-deficit\/hyperactivity disorder (ADHD), communication disorders, specific learning disorders, and motor disorders, that may be used across a range of geographic and cultural settings.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"ab-zcs240004-3\">\n                    <jats:title>Evidence Review<\/jats:title>\n                    <jats:p>An international working group composed of clinical and research experts and service users (n\u2009=\u200927) was convened to develop a standard core set of accessible, valid, and reliable outcome measures for children and adolescents with NDDs. The working group participated in 9 video conference calls and 8 surveys between March 1, 2021, and June 30, 2022. A modified Delphi approach defined the scope, outcomes, included measures, case-mix variables, and measurement time points. After development, the NDD set was distributed to professionals and service users for open review, feedback, and external validation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"ab-zcs240004-4\">\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>The final set recommends measuring 12 outcomes across 3 key domains: (1) core symptoms related to the diagnosis; (2) impact, functioning, and quality of life; and (3) common coexisting problems. The following 14 measures should be administered at least every 6 months to monitor these outcomes: ADHD Rating Scale 5, Vanderbilt ADHD Diagnostic Rating Scale, or Swanson, Nolan, and Pelham Rating Scale IV; Affective Reactivity Index; Children\u2019s Communication Checklist 2; Colorado Learning Disabilities Questionnaire; Children\u2019s Sleep Habits Questionnaire; Developmental-Disability Children\u2019s Global Assessment Scale; Developmental Coordination Disorder Questionnaire; Family Strain Index; Intelligibility in Context Scale; Vineland Adaptive Behavior Scale or Repetitive Behavior Scale\u2013Revised and Social Responsiveness Scale; Revised Child Anxiety and Depression Scales; and Yale Global Tic Severity Scale. The external review survey was completed by 32 professionals and 40 service users. The NDD set items were endorsed by more than 70% of professionals and service users in the open review survey.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"ab-zcs240004-5\">\n                    <jats:title>Conclusions and Relevance<\/jats:title>\n                    <jats:p>The NDD set covers outcomes of most concern to patients and caregivers. Use of the NDD set has the potential to improve clinical practice and research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1001\/jamanetworkopen.2024.16760","type":"journal-article","created":{"date-parts":[[2024,6,13]],"date-time":"2024-06-13T11:10:15Z","timestamp":1718277015000},"page":"e2416760","source":"Crossref","is-referenced-by-count":20,"title":["International Consensus on Standard Outcome Measures for Neurodevelopmental Disorders"],"prefix":"10.1001","volume":"7","author":[{"given":"Melissa","family":"Mulraney","sequence":"first","affiliation":[{"name":"Department of Paediatrics, University of Melbourne, Parkville, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Umanga","family":"de Silva","sequence":"additional","affiliation":[{"name":"International Consortium of Health Outcome Measures, Boston, 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