{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T15:13:18Z","timestamp":1789398798884,"version":"build-2803163510"},"reference-count":45,"publisher":"American Medical Association (AMA)","issue":"9","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JAMA Netw Open"],"abstract":"\n Importance<\/jats:title>\n Attrition in longitudinal cancer cohorts compromises data completeness, introduces bias, and limits generalizability.<\/jats:p>\n <\/jats:sec>\n \n Objective<\/jats:title>\n To quantify nonresponsiveness over time in a contemporary cohort of cancer survivors, identify individual- and center-level factors associated with nonresponsiveness, and elicit participant-informed strategies to strengthen long-term engagement and retention.<\/jats:p>\n <\/jats:sec>\n \n Design, Setting, and Participants<\/jats:title>\n This cohort study used a mixed-methods design integrating cohort analyses among patients enrolled in a longitudinal study from 2012 to 2018 and a national cross-sectional survey and qualitative thematic analyses among participants enrolled in 2023. Cohort analyses were conducted among patients recruited from the Cancer Toxicity (CANTO) study, a multicenter, prospective, longitudinal cohort of survivors of stage I to III breast cancer, with assessments at diagnosis and years 1, 2, 4, and 6. The national survey was distributed online through the Seintinelles collaborative research network to cancer survivors and individuals without cancer. Remote interviews and focus groups participants were recruited from CANTO. The final analyses were performed in June 2026.<\/jats:p>\n <\/jats:sec>\n \n Exposure<\/jats:title>\n Baseline sociodemographic, behavioral, treatment-related, and center-level characteristics; survey-reported preferences, barriers, and facilitators; and qualitative accounts of participation experiences.<\/jats:p>\n <\/jats:sec>\n \n Main Outcomes and Measures<\/jats:title>\n The outcome of interest was nonresponsiveness at each follow-up, defined as completion of none of the protocol-specified clinical, socioeconomic, or patient-reported outcome assessments. Multivariable logistic regression estimated factors associated with nonresponsiveness. Survey responses and qualitative themes characterized participant-informed retention strategies.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Among 11\u202f413 CANTO participants, mean (SD) age was 56.4 (11.3) years and 4019 (42.4%) reported a monthly household income of \u20ac3000 or higher. Nonresponsiveness increased from 149 participants (1.3%) at year 1 to 1016 participants (9.1%) at year 2, 1738 participants (16.1%) at year 4, and 2512 participants (25.8%) at year 6. Factors associated with higher nonresponsiveness at the 4-year follow-up included lower socioeconomic status (income &amp;lt;\u20ac1500 vs \u2265\u20ac3000: adjusted odds ratio [aOR], 1.51 [95% CI, 1.18-1.93]), unhealthy behaviors (current\/former smokers vs never smokers: aOR, 1.37 [95% CI, 1.19-1.58]), and enrollment at smaller centers (vs larger: aOR, 1.88 [95% CI, 1.43-2.48]), with consistent findings at year 6. Among 2383 survey respondents (1295 respondents [55.8%] aged 40-65 years; 2203 [96.5%] female), 1982 (94.8%) preferred remote questionnaire completion, 1994 (95.4%) preferred digital completion, 1606 (67.4%) valued flexible scheduling, and 1494 (71.4%) reported that regular study updates or result-sharing events would encourage participation. Qualitative findings among 30 participants further highlighted reduced burden, decentralized participation, navigation support, clearer communication, and feedback on study progress and findings as key facilitators.<\/jats:p>\n <\/jats:sec>\n \n Conclusions and Relevance<\/jats:title>\n In this mixed methods cohort study of survivors enrolled in a large longitudinal breast cancer cohort, nonresponsiveness increased over time and was socially, clinically, and organizationally patterned. Survey and qualitative findings suggested that participant-centered retention strategies should combine procedural flexibility, remote follow-up, navigation support, targeted communication, and regular feedback and informed the design of a digitally enabled, multimodal retention intervention.<\/jats:p>\n <\/jats:sec>","DOI":"10.1001\/jamanetworkopen.2026.33498","type":"journal-article","created":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T15:00:41Z","timestamp":1789398041000},"page":"e2633498","source":"Crossref","is-referenced-by-count":0,"title":["Research Study Attrition and Participant-Informed Retention Strategies Among Cancer Survivors"],"prefix":"10.1001","volume":"9","author":[{"given":"Antonio","family":"Di Meglio","sequence":"first","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Camila Kelly","family":"Chiodi","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Havas","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elise","family":"Martin","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Petya","family":"Zyumbileva","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pietro","family":"Lapidari","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martina","family":"Pagliuca","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"},{"name":"Clinical and Translational Oncology, Scuola Superiore Meridionale, Naples, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mariam","family":"Chichua","sequence":"additional","affiliation":[{"name":"University of Milan, Milan, Italy"},{"name":"Department of Oncology and Hemato-Oncology, European Institute of Oncology IRCCS, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Gillanders","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Guillemette","family":"Jacob","sequence":"additional","affiliation":[{"name":"Seintinelles, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Romaine","family":"Desjardin","sequence":"additional","affiliation":[{"name":"Seintinelles, Paris, France"},{"name":"Universit\u00e9 Lumi\u00e8re Lyon 2, Lyon, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aude","family":"Barbier","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aurelie","family":"Bertaut","sequence":"additional","affiliation":[{"name":"Methodology and biostatistics unit, Centre Georges-Fran\u00e7ois Leclerc, Dijon, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diane","family":"Boinon","sequence":"additional","affiliation":[{"name":"Interdisciplinary Department of Patient Pathways, Gustave Roussy, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Barbara","family":"Pistilli","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Gustave Roussy, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne-Laure","family":"Martin","sequence":"additional","affiliation":[{"name":"Data and Partnerships department, Unicancer, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sibille","family":"Everhard","sequence":"additional","affiliation":[{"name":"Data and Partnerships department, Unicancer, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christelle","family":"Jouannaud","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Institut Godinot, Reims, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Coureche","family":"Kaderbhai","sequence":"additional","affiliation":[{"name":"Methodology and biostatistics unit, Centre Georges-Fran\u00e7ois Leclerc, Dijon, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne","family":"Kieffer","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Institut de Canc\u00e9rologie de Loraine \u2013 Alexis Vautrin, Vand\u0153uvre-l\u00e8s-Nancy, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olivier","family":"Tr\u00e9dan","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Centre L\u00e9on B\u00e9rad, Lyon, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christelle","family":"Levy","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Centre Fran\u00e7ois Baclesse, Caen, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olivier","family":"Rigal","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Centre Henri Becquerel, Rouen, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matteo","family":"Lambertini","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine and Medical Specialties, School of Medicine, University of Genova, Genoa, Italy"},{"name":"Department of Medical Oncology, UOC Clinica di Oncologia Medica, IRCCS Ospedale Policlinico San Martino, Genoa, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Michiels","sequence":"additional","affiliation":[{"name":"Oncostat, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Inserm U1018, University Paris-Saclay, Ligue Contre le Cancer, Gustave Roussy, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fabrice","family":"Andr\u00e9","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gwenn","family":"Menvielle","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria Alice","family":"Franzoi","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ines","family":"Vaz-Luis","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris-Saclay, Universit\u00e9 de Versailles Saint-Quentin-en-Yvelines, Gustave Roussy, Inserm, Centre de recherche en Epid\u00e9miologie et Sant\u00e9 des Populations, Villejuif, France"},{"name":"Interdisciplinary Department of Patient Pathways, Gustave Roussy, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"10","published-online":{"date-parts":[[2026,9,14]]},"reference":[{"issue":"11","key":"zoi260914r1","doi-asserted-by":"publisher","first-page":"1120","DOI":"10.1093\/jnci\/djz089","article-title":"Developing a quality of cancer survivorship care framework: implications for clinical care, research, and policy.","volume":"111","author":"Nekhlyudov","year":"2019","journal-title":"J Natl Cancer Inst"},{"issue":"1","key":"zoi260914r2","doi-asserted-by":"publisher","first-page":"918","DOI":"10.1186\/1471-2458-12-918","article-title":"Attrition and generalizability in longitudinal studies: findings from a 15-year population-based study and a Monte Carlo simulation study.","volume":"12","author":"Gustavson","year":"2012","journal-title":"BMC Public Health"},{"issue":"1","key":"zoi260914r3","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1136\/ebmed-2017-110883","article-title":"Catalogue of bias: attrition bias.","volume":"23","author":"Nunan","year":"2018","journal-title":"BMJ Evid Based Med"},{"issue":"1","key":"zoi260914r4","doi-asserted-by":"publisher","first-page":"151","DOI":"10.1186\/s12874-018-0586-7","article-title":"Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis.","volume":"18","author":"Teague","year":"2018","journal-title":"BMC Med Res Methodol"},{"issue":"12","key":"zoi260914r5","doi-asserted-by":"publisher","first-page":"1481","DOI":"10.1016\/j.jclinepi.2015.04.013","article-title":"Updated systematic review identifies substantial number of retention strategies: using more strategies retains more study participants.","volume":"68","author":"Robinson","year":"2015","journal-title":"J Clin Epidemiol"},{"issue":"5","key":"zoi260914r6","doi-asserted-by":"publisher","DOI":"10.1016\/j.esmoop.2023.101633","article-title":"Unlocking digitally enabled research in oncology: the time is now.","volume":"8","author":"Franzoi","year":"2023","journal-title":"ESMO Open"},{"issue":"5","key":"zoi260914r7","doi-asserted-by":"publisher","DOI":"10.1136\/esmoopen-2019-000562","article-title":"UNICANCER: French prospective cohort study of treatment-related chronic toxicity in women with localised breast cancer (CANTO).","volume":"4","author":"Vaz-Luis","year":"2019","journal-title":"ESMO Open"},{"key":"zoi260914r10","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2021.114523","article-title":"Sample sizes for saturation in qualitative research: a systematic review of empirical tests.","volume":"292","author":"Hennink","year":"2022","journal-title":"Soc Sci Med"},{"key":"zoi260914r12","doi-asserted-by":"publisher","first-page":"37","DOI":"10.1186\/1748-5908-7-37","article-title":"Validation of the theoretical domains framework for use in behaviour change and implementation research.","volume":"7","author":"Cane","year":"2012","journal-title":"Implement Sci"},{"issue":"1","key":"zoi260914r13","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1186\/s13012-017-0605-9","article-title":"A guide to using the Theoretical Domains Framework of behaviour change to investigate implementation problems.","volume":"12","author":"Atkins","year":"2017","journal-title":"Implement Sci"},{"issue":"4","key":"zoi260914r14","doi-asserted-by":"publisher","first-page":"719","DOI":"10.1093\/biostatistics\/kxu023","article-title":"Improving upon the efficiency of complete case analysis when covariates are MNAR.","volume":"15","author":"Bartlett","year":"2014","journal-title":"Biostatistics"},{"issue":"7713","key":"zoi260914r15","doi-asserted-by":"publisher","first-page":"b2393","DOI":"10.1136\/bmj.b2393","article-title":"Multiple imputation for missing data in epidemiological and clinical research: potential and pitfalls.","volume":"338","author":"Sterne","year":"2009","journal-title":"BMJ"},{"issue":"4","key":"zoi260914r16","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.1733","article-title":"Impact of length or relevance of questionnaires on attrition in online trials: randomized controlled trial.","volume":"13","author":"McCambridge","year":"2011","journal-title":"J Med Internet Res"},{"issue":"8","key":"zoi260914r17","doi-asserted-by":"publisher","first-page":"1041","DOI":"10.1001\/jamaoncol.2023.1648","article-title":"Rates of and factors associated with patient withdrawal of consent in cancer clinical trials.","volume":"9","author":"Hillman","year":"2023","journal-title":"JAMA Oncol"},{"issue":"2","key":"zoi260914r18","doi-asserted-by":"publisher","first-page":"271","DOI":"10.1111\/imj.16015","article-title":"When research becomes practice: the concept of the therapeutic misconception and challenges to consent in clinical trials.","volume":"53","author":"Heynemann","year":"2023","journal-title":"Intern Med J"},{"issue":"1","key":"zoi260914r19","doi-asserted-by":"publisher","first-page":"285","DOI":"10.1186\/s12890-023-02582-6","article-title":"\u201cIt\u2019s a cause I believe in\u201d: factors motivating participation and engagement in longitudinal, respiratory-focused research studies.","volume":"23","author":"Synn","year":"2023","journal-title":"BMC Pulm Med"},{"issue":"10","key":"zoi260914r20","doi-asserted-by":"publisher","first-page":"1998","DOI":"10.1177\/02692163211040970","article-title":"Performance status and trial site-level factors are associated with missing data in palliative care trials: An individual participant-level data analysis of 10 phase 3 trials.","volume":"35","author":"Hussain","year":"2021","journal-title":"Palliat Med"},{"issue":"1","key":"zoi260914r21","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1097\/EDE.0b013e31827623b1","article-title":"Loss to follow-up in cohort studies: bias in estimates of socioeconomic inequalities.","volume":"24","author":"Howe","year":"2013","journal-title":"Epidemiology"},{"issue":"11","key":"zoi260914r22","doi-asserted-by":"publisher","first-page":"1119","DOI":"10.1016\/j.annonc.2022.07.1941","article-title":"ESMO expert consensus statements on cancer survivorship: promoting high-quality survivorship care and research in Europe.","volume":"33","author":"Vaz-Luis","year":"2022","journal-title":"Ann Oncol"},{"issue":"10","key":"zoi260914r23","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0204886","article-title":"Reducing attrition within clinical trials: the communication of retention and withdrawal within patient information leaflets.","volume":"13","author":"Kearney","year":"2018","journal-title":"PLoS One"},{"issue":"1","key":"zoi260914r24","doi-asserted-by":"publisher","first-page":"202","DOI":"10.1186\/s12874-020-01074-z","article-title":"Informing retention in longitudinal cohort studies through a social marketing lens: Raine Study Generation 2 participants\u2019 perspectives on benefits and barriers to participation.","volume":"20","author":"Costello","year":"2020","journal-title":"BMC Med Res Methodol"},{"issue":"5","key":"zoi260914r25","doi-asserted-by":"publisher","first-page":"755","DOI":"10.1037\/0021-9010.79.5.755","article-title":"The impact of perceived group success-failure on motivational beliefs and attitudes: a causal model.","volume":"79","author":"Riggs","year":"1994","journal-title":"J Appl Psychol"},{"issue":"3","key":"zoi260914r26","doi-asserted-by":"publisher","first-page":"231","DOI":"10.1080\/00981389.2015.1114064","article-title":"Understanding motivations to participate in an observational research study: why do patients enroll?","volume":"55","author":"Soule","year":"2016","journal-title":"Soc Work Health Care"},{"issue":"1","key":"zoi260914r27","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1186\/s12874-024-02419-8","article-title":"Participant engagement and involvement in longitudinal cohort studies: qualitative insights from a selection of pregnancy and birth, twin, and family-based population cohort studies.","volume":"24","author":"Budin-Lj\u00f8sne","year":"2024","journal-title":"BMC Med Res Methodol"},{"key":"zoi260914r28","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1186\/1471-2458-11-249","article-title":"A systematic review of the effect of retention methods in population-based cohort studies.","volume":"11","author":"Booker","year":"2011","journal-title":"BMC Public Health"},{"key":"zoi260914r29","doi-asserted-by":"publisher","DOI":"10.2196\/51877","article-title":"Challenges and approaches to recruitment for and retention in a dyad-focused eHealth intervention during COVID-19: randomized controlled trial.","volume":"26","author":"Ma","year":"2024","journal-title":"J Med Internet Res"},{"issue":"1","key":"zoi260914r30","doi-asserted-by":"publisher","first-page":"205","DOI":"10.1186\/s13063-018-2578-7","article-title":"Patient-centered recruitment and retention for a randomized controlled study.","volume":"19","author":"Chhatre","year":"2018","journal-title":"Trials"},{"issue":"5","key":"zoi260914r31","doi-asserted-by":"publisher","first-page":"1151","DOI":"10.1200\/CCI.21.00111","article-title":"Digital health navigation: an enabling infrastructure for optimizing and integrating virtual care into oncology practice.","volume":"5","author":"Offodile","year":"2021","journal-title":"JCO Clin Cancer Inform"},{"issue":"3","key":"zoi260914r32","doi-asserted-by":"publisher","first-page":"182","DOI":"10.3322\/caac.21608","article-title":"Innovations in research and clinical care using patient-generated health data.","volume":"70","author":"Jim","year":"2020","journal-title":"CA Cancer J Clin"},{"issue":"1","key":"zoi260914r33","doi-asserted-by":"publisher","first-page":"6026","DOI":"10.1038\/s41467-022-33826-4","article-title":"Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection.","volume":"13","author":"Aiyegbusi","year":"2022","journal-title":"Nat Commun"},{"issue":"11","key":"zoi260914r35","doi-asserted-by":"publisher","first-page":"2301","DOI":"10.1038\/s41591-022-02012-w","article-title":"Association of step counts over time with the risk of chronic disease in the All of Us Research Program.","volume":"28","author":"Master","year":"2022","journal-title":"Nat Med"},{"issue":"1","key":"zoi260914r36","doi-asserted-by":"publisher","DOI":"10.2196\/mhealth.8815","article-title":"Smartphone app-based assessment of gait during normal and dual-task walking: demonstration of validity and reliability.","volume":"6","author":"Manor","year":"2018","journal-title":"JMIR Mhealth Uhealth"},{"issue":"4","key":"zoi260914r37","doi-asserted-by":"publisher","first-page":"745","DOI":"10.1016\/j.ijrobp.2019.07.055","article-title":"Daily step counts: a new prognostic factor in locally advanced non-small cell lung cancer?","volume":"105","author":"Ohri","year":"2019","journal-title":"Int J Radiat Oncol Biol Phys"},{"issue":"5","key":"zoi260914r38","doi-asserted-by":"publisher","first-page":"642","DOI":"10.1001\/jamaoncol.2024.0014","article-title":"Machine learning-based prediction of hospitalization during chemoradiotherapy with daily step counts.","volume":"10","author":"Friesner","year":"2024","journal-title":"JAMA Oncol"},{"issue":"1","key":"zoi260914r39","doi-asserted-by":"publisher","DOI":"10.2196\/43014","article-title":"Extracting medical information from free-text and unstructured patient-generated health data using natural language processing methods: feasibility study with real-world data.","volume":"7","author":"Sezgin","year":"2023","journal-title":"JMIR Form Res"},{"issue":"8","key":"zoi260914r40","doi-asserted-by":"publisher","DOI":"10.1200\/CCI.23.00235","article-title":"Natural language processing accurately differentiates cancer symptom information in electronic health record narratives.","volume":"8","author":"Albashayreh","year":"2024","journal-title":"JCO Clin Cancer Inform"},{"issue":"6","key":"zoi260914r41","doi-asserted-by":"publisher","first-page":"1105","DOI":"10.1038\/s41591-021-01339-0","article-title":"Wearable sensors enable personalized predictions of clinical laboratory measurements.","volume":"27","author":"Dunn","year":"2021","journal-title":"Nat Med"},{"issue":"10","key":"zoi260914r42","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pdig.0000104","article-title":"Challenges and recommendations for wearable devices in digital health: Data quality, interoperability, health equity, fairness.","volume":"1","author":"Canali","year":"2022","journal-title":"PLOS Digit Health"},{"issue":"1","key":"zoi260914r43","doi-asserted-by":"publisher","first-page":"117","DOI":"10.1186\/s12874-023-01941-5","article-title":"The Trial Within Cohorts (TwiCs) study design in oncology: experience and methodological reflections.","volume":"23","author":"Kessels","year":"2023","journal-title":"BMC Med Res Methodol"},{"issue":"1","key":"zoi260914r45","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1007\/s10549-026-07904-w","article-title":"ATTITUDE\u2014addressing attrition in longitudinal cancer cohorts: an in-depth qualitative analysis of experiences and perspectives on participation in longitudinal studies among breast cancer survivors.","volume":"216","author":"Martin","year":"2026","journal-title":"Breast Cancer Res Treat"},{"key":"zoi260914r9","doi-asserted-by":"crossref","DOI":"10.1007\/978-981-10-5251-4","volume-title":"Handbook of Research Methods in Health Social Sciences","author":"Liamputtong","year":"2019"},{"key":"zoi260914r11","volume-title":"Encyclopedia of Quality of Life and Well-Being Research","author":"Braun","year":"2022"},{"key":"zoi260914r8","unstructured":"Association de Recherche contre le Cancer. Seintinelles. Accessed February 11, 2025. https:\/\/www.seintinelles.com\/"},{"key":"zoi260914r34","unstructured":"HealthIT.gov. Patient-generated health data. Accessed November 30, 2025. https:\/\/www.healthit.gov\/topic\/scientific-initiatives\/pcor\/patient-generated-health-data-pghd"},{"key":"zoi260914r44","unstructured":"WeShare. Unicancer. Accessed March 12, 2025. https:\/\/weshare.unicancer.com\/"}],"container-title":["JAMA Network Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/jamanetwork.com\/journals\/jamanetworkopen\/articlepdf\/2854032\/di_meglio_2026_oi_260914_1788542473.17122.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T15:00:44Z","timestamp":1789398044000},"score":1,"resource":{"primary":{"URL":"https:\/\/jamanetwork.com\/journals\/jamanetworkopen\/fullarticle\/2854032"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,14]]},"references-count":45,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9,1]]}},"URL":"https:\/\/doi.org\/10.1001\/jamanetworkopen.2026.33498","relation":{},"ISSN":["2574-3805"],"issn-type":[{"value":"2574-3805","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,14]]}}}