{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T10:31:51Z","timestamp":1782901911523,"version":"3.54.5"},"update-to":[{"DOI":"10.1002\/14651858.cd013329","type":"new_version","label":"New version","source":"publisher","updated":{"date-parts":[[2024,5,30]],"date-time":"2024-05-30T00:00:00Z","timestamp":1717027200000}}],"reference-count":94,"publisher":"Wiley","issue":"5","content-domain":{"domain":["wiley.com","cochranelibrary.com"],"crossmark-restriction":true},"short-container-title":[],"DOI":"10.1002\/14651858.cd013329.pub2","type":"journal-article","created":{"date-parts":[[2024,5,30]],"date-time":"2024-05-30T07:58:48Z","timestamp":1717055928000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Comprehensive care programmes for children with medical complexity"],"prefix":"10.1002","volume":"2024","author":[{"given":"Adrienne R","family":"Harvey","sequence":"additional","affiliation":[{"name":"Neurodisability and Rehabilitation; Murdoch Children's Research Institute; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elaine","family":"Meehan","sequence":"additional","affiliation":[{"name":"Neurodisability and Rehabilitation; Murdoch Children's Research Institute; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicole","family":"Merrick","sequence":"additional","affiliation":[{"name":"Department of Paediatrics; The University of Melbourne; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anita L","family":"D\u2019Aprano","sequence":"additional","affiliation":[{"name":"Department of Paediatrics; The University of Melbourne; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgina R","family":"Cox","sequence":"additional","affiliation":[{"name":"Neurodevelopment and Disability; Royal Children's Hospital; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrina","family":"Williams","sequence":"additional","affiliation":[{"name":"Department of Paediatrics; Monash University; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan M","family":"Gibb","sequence":"additional","affiliation":[{"name":"Neurodevelopment and Disability; Royal Children's Hospital; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicki J","family":"Mountford","sequence":"additional","affiliation":[{"name":"Complex Care Hub; The Royal Children's Hospital; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tom G","family":"Connell","sequence":"additional","affiliation":[{"name":"General Medicine; The Royal Children's Hospital; Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eyal","family":"Cohen","sequence":"additional","affiliation":[{"name":"Paediatrics and Health Policy, Management & Evaluation; University of Toronto; Toronto Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,5,30]]},"reference":[{"issue":"5","key":"10.1002\/14651858.CD013329.pub2-BIB0001|cit1","doi-asserted-by":"publisher","first-page":"461","DOI":"10.1001\/jamapediatrics.2023.0115","article-title":"Effectiveness of structured care coordination for children with medical complexity: the Complex Care for Kids Ontario (CCKO) randomized clinical trial","volume":"177","author":"Cohen","year":"2023","journal-title":"JAMA Pediatrics"},{"issue":"7","key":"10.1002\/14651858.CD013329.pub2-BIB0002|cit2","doi-asserted-by":"crossref","first-page":"1497","DOI":"10.1007\/s10995-014-1654-1","article-title":"Meeting the needs of children with medical complexity using a telehealth advanced practice registered nurse care coordination model","volume":"19","author":"Cady","year":"2015","journal-title":"Maternal Child Health Journal"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0003|cit3","doi-asserted-by":"crossref","first-page":"352","DOI":"10.1016\/j.pedhc.2015.01.007","article-title":"Effects of a telehealth care coordination intervention on perceptions of health care by caregivers of children with medical complexity: a randomized controlled trial","volume":"29","author":"Looman","year":"2015","journal-title":"Journal of Pediatric Health Care"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0004|cit4","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1016\/j.pedhc.2017.07.007","article-title":"Health-related quality of life outcomes of a telehealth care coordination intervention for children with medical complexity: a randomized controlled trial","volume":"32","author":"Looman","year":"2018","journal-title":"Journal of Pediatric Health Care"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0005|cit5","doi-asserted-by":"crossref","first-page":"452","DOI":"10.1016\/j.pedhc.2016.11.006","article-title":"The impact of telehealth and care coordination on the number and type of clinical visits for children with medical complexity","volume":"31","author":"McKissick","year":"2017","journal-title":"Journal of Pediatric Health Care"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0006|cit6","unstructured":"Telehealth nursing intervention for children with complex health care needs (CCHCN) clinicaltrials.gov\/ct2\/show\/NCT01328353"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0007|cit7","doi-asserted-by":"crossref","first-page":"312","DOI":"10.1016\/j.pedhc.2015.04.004","article-title":"Comprehensive care for high-risk chronically ill children utilizing pediatric nurse practitioners in an enhanced medical home: a randomized control trial emerging knowledge for clinical practice podium presentations focusing on research agenda priority quality of care presented at the 36th Annual NAPNAP Conference, March 2015, Las Vegas, NV","volume":"29","author":"Harris","year":"2015","journal-title":"Journal of Pediatric Healthcare"},{"issue":"24","key":"10.1002\/14651858.CD013329.pub2-BIB0008|cit8","doi-asserted-by":"crossref","first-page":"2640","DOI":"10.1001\/jama.2014.16419","article-title":"Effect of an enhanced medical home on serious illness and cost of care among high-risk children with chronic illness: a randomized clinical trial","volume":"312","author":"Mosquera","year":"2014","journal-title":"JAMA"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0009|cit9","unstructured":"An enhanced medical home for high-risk chronically ill children clinicaltrials.gov\/study\/NCT02128776"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0010|cit10","unstructured":"Improving care for children with complex needs clinicaltrials.gov\/ct2\/show\/NCT01587105"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0011|cit11","doi-asserted-by":"crossref","first-page":"e20171641","DOI":"10.1542\/peds.2017-1641","article-title":"Effectiveness of a comprehensive case management service for children with medical complexity","volume":"140","author":"Simon","year":"2017","journal-title":"Pediatrics"},{"issue":"16","key":"10.1002\/14651858.CD013329.pub2-BIB0012|cit12","doi-asserted-by":"crossref","first-page":"2070","DOI":"10.1001\/jama.284.16.2070","article-title":"Comprehensive follow-up care and life-threatening illnesses among high-risk infants: a randomized controlled trial","volume":"284","author":"Broyles","year":"2000","journal-title":"JAMA"},{"issue":"10","key":"10.1002\/14651858.CD013329.pub2-BIB0013|cit13","doi-asserted-by":"crossref","first-page":"e1912604","DOI":"10.1001\/jamanetworkopen.2019.12604","article-title":"Effect of comprehensive care coordination on Medicaid expenditures compared with usual care among children and youth with chronic disease: a randomized clinical trial","volume":"2","author":"Caskey","year":"2019","journal-title":"JAMA Network Open"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0014|cit14","doi-asserted-by":"crossref","first-page":"e20174278","DOI":"10.1542\/peds.2017-4278","article-title":"Complex care hospital use and postdischarge coaching: a randomized controlled trial","volume":"142","author":"Coller","year":"2018","journal-title":"Pediatrics"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0015|cit15","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1186\/s12887-018-1034-x","article-title":"Integrated children's clinic care (ICCC) versus a self-directed care pathway for children with a chronic health condition: a multi-centre randomised controlled trial study protocol","volume":"18","author":"Frakking","year":"2018","journal-title":"BMC Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0016|cit16","doi-asserted-by":"crossref","first-page":"602","DOI":"10.1542\/peds.93.4.602","article-title":"Providing comprehensive health care to children with chronic illness","volume":"93","author":"Jessop","year":"1994","journal-title":"Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0017|cit17","first-page":"272","article-title":"Assessing the impact of an integrated care system on the healthcare expenditures of children with special healthcare needs","volume":"22","author":"Marcu","year":"2016","journal-title":"American Journal of Managed Care"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0018|cit18","doi-asserted-by":"crossref","first-page":"e205026","DOI":"10.1001\/jamapediatrics.2020.5026","article-title":"Hospital consultation from outpatient clinicians for medically complex children: a randomized clinical trial","volume":"175","author":"Mosquera","year":"2021","journal-title":"JAMA Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0019|cit19","unstructured":"Improving health care transition for youth with special needs clinicaltrials.gov\/study\/NCT03312621"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0020|cit20","unstructured":"Evaluating innovations in transition from pediatric to adult care - the transition navigator trial clinicaltrials.gov\/show\/nct03342495"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0021|cit21","doi-asserted-by":"crossref","first-page":"e947","DOI":"10.1542\/peds.2006-1717","article-title":"Follow-up care for infants with chronic lung disease: a randomized comparison of community- and center-based models","volume":"119","author":"O'Shea","year":"2007","journal-title":"Pediatrics"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0022|cit22","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1097\/JHQ.0000000000000101","article-title":"Advancing value-based population health management through payer-provider partnerships: improving outcomes for children with complex conditions","volume":"40","author":"Peele","year":"2018","journal-title":"Journal for Healthcare Quality: Promoting Excellence in Healthcare"},{"issue":"Suppl 2","key":"10.1002\/14651858.CD013329.pub2-BIB0023|cit23","doi-asserted-by":"crossref","first-page":"49","DOI":"10.1111\/1475-6773.13816","article-title":"The effect of adding telemedicine to comprehensive care for children with medical complexity: a randomized quality improvement trial","volume":"56","author":"Ricardo","year":"2021","journal-title":"Health Services Research"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0024|cit24","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1089\/153056203763317657","article-title":"Use of telemedicine to follow special needs children","volume":"91","author":"Robinson","year":"2003","journal-title":"Telemedicine Journal and E-Health"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0025|cit25","first-page":"109","article-title":"Partially capitated managed care versus FFS for special needs children","volume":"28","author":"Schuster","year":"2007","journal-title":"Health Care Financing Review"},{"issue":"3","key":"10.1002\/14651858.CD013329.pub2-BIB0026|cit26","doi-asserted-by":"crossref","first-page":"e12184","DOI":"10.1111\/jspn.12184","article-title":"Effectiveness of a nurse-led preadmission intervention for parents of children with profound multiple disabilities undergoing hip-joint surgery: a quasi-experimental pilot study","volume":"22","author":"Seliner","year":"2017","journal-title":"Journal for Specialists in Pediatric Nursing"},{"issue":"5","key":"10.1002\/14651858.CD013329.pub2-BIB0027|cit27","doi-asserted-by":"crossref","first-page":"648","DOI":"10.1007\/s10995-018-2477-2","article-title":"Care coordination: empowering families, a promising practice to facilitate medical home use among children and youth with special health care needs","volume":"22","author":"Ufer","year":"2018","journal-title":"Maternal Child Health Journal"},{"issue":"Suppl 2","key":"10.1002\/14651858.CD013329.pub2-BIB0028|cit28","doi-asserted-by":"crossref","first-page":"S109","DOI":"10.1542\/peds.2016-2786E","article-title":"Partners for kids care coordination: lessons from the field","volume":"139","author":"Weier","year":"2017","journal-title":"Pediatrics"},{"issue":"9","key":"10.1002\/14651858.CD013329.pub2-BIB0029|cit29","doi-asserted-by":"crossref","first-page":"949","DOI":"10.1177\/0009922819839231","article-title":"Effective care management for children with special health care needs in the era of value-based payment","volume":"58","author":"Weiss","year":"2019","journal-title":"Clinical Pediatrics (Phila)"},{"issue":"5","key":"10.1002\/14651858.CD013329.pub2-BIB0030|cit30","doi-asserted-by":"crossref","first-page":"667","DOI":"10.1007\/s10995-008-0406-5","article-title":"A longitudinal study of a pediatric practice-based versus an agency-based model of care coordination for children and youth with special health care needs","volume":"13","author":"Wood","year":"2009","journal-title":"Maternal Child Health Journal"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0031|cit31","doi-asserted-by":"crossref","first-page":"373","DOI":"10.2147\/CLEP.S48870","article-title":"A sensitivity analysis of the Children's Treatment Network trial: a randomized controlled trial of integrated services versus usual care for children with special health care needs","volume":"5","author":"Ye","year":"2013","journal-title":"Clinical Epidemiology"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0032|cit32","unstructured":"Virtually-integrated co-management between complex care and community-based primary care providers (CoTS) classic.clinicaltrials.gov\/ct2\/show\/NCT03530709"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0033|cit33","unstructured":"ICOLLAB FOR children with medical complexity (ICOLLAB) clinicaltrials.gov\/study\/NCT03978468"},{"issue":"4 Pt 1","key":"10.1002\/14651858.CD013329.pub2-BIB0034|cit34","doi-asserted-by":"crossref","first-page":"978","DOI":"10.1542\/peds.104.4.978","article-title":"Care coordination: integrating health and related systems of care for children with special health care needs","volume":"104","author":"American Academy of Pediatrics Committee on Children With Disabilities","year":"1999","journal-title":"Pediatrics"},{"issue":"12","key":"10.1002\/14651858.CD013329.pub2-BIB0035|cit35","doi-asserted-by":"crossref","first-page":"1299","DOI":"10.1111\/dmcn.13576","article-title":"Care maps for children with medical complexity","volume":"59","author":"Adams","year":"2017","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0036|cit36","doi-asserted-by":"crossref","first-page":"e20192401","DOI":"10.1542\/peds.2019-2401","article-title":"Costs and use for children with medical complexity in a care management program","volume":"145","author":"Bergman","year":"2020","journal-title":"Pediatrics"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0037|cit37","doi-asserted-by":"crossref","first-page":"e637","DOI":"10.1542\/peds.2004-2084","article-title":"Utilization and costs for children who have special health care needs and are enrolled in a hospital-based comprehensive primary care clinic","volume":"115","author":"Berman","year":"2005","journal-title":"Pediatrics"},{"issue":"7","key":"10.1002\/14651858.CD013329.pub2-BIB0038|cit38","doi-asserted-by":"crossref","first-page":"682","DOI":"10.1001\/jama.2011.122","article-title":"Hospital utilization and characteristics of patients experiencing recurrent readmissions within children's hospitals","volume":"305","author":"Berry","year":"2011","journal-title":"JAMA"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0039|cit39","doi-asserted-by":"crossref","first-page":"284","DOI":"10.1016\/j.jpeds.2011.02.002","article-title":"Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity","volume":"159","author":"Berry","year":"2011","journal-title":"Journal of Pediatrics"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0040|cit40","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1001\/jamapediatrics.2013.432","article-title":"Inpatient growth and resource use in 28 children's hospitals: a longitudinal, multi-institutional study","volume":"167","author":"Berry","year":"2013","journal-title":"JAMA Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0041|cit41","volume-title":"The Landscape of Medical Care for Children with Medical Complexity. Special Report","author":"Berry","year":"2013"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0042|cit42","volume-title":"What Children with Medical Complexity, Their Families, and Healthcare Providers Deserve from an Ideal Healthcare System (Briefing Paper)","author":"Berry","year":"2015"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0043|cit43","doi-asserted-by":"crossref","first-page":"229","DOI":"10.1016\/j.jpeds.2015.04.068","article-title":"Ways to identify children with medical complexity and the importance of why","volume":"167","author":"Berry","year":"2015","journal-title":"Journal of Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0044|cit44","doi-asserted-by":"crossref","first-page":"638","DOI":"10.1542\/peds.2009-1658","article-title":"Increasing prevalence of medically complex children in US hospitals","volume":"126","author":"Burns","year":"2010","journal-title":"Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0045|cit45","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1016\/j.pedhc.2013.06.005","article-title":"Attributes of advanced practice registered nurse care coordination for children with medical complexity","volume":"28","author":"Cady","year":"2014","journal-title":"Journal of Pediatric Health Care"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0046|cit46","doi-asserted-by":"crossref","first-page":"574","DOI":"10.1111\/j.1365-2214.2009.01069.x","article-title":"The impact of a complex care clinic in a children's hospital","volume":"36","author":"Cohen","year":"2010","journal-title":"Child: Care, Health and Development"},{"issue":"3","key":"10.1002\/14651858.CD013329.pub2-BIB0047|cit47","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1542\/peds.2010-0910","article-title":"Children with medical complexity: an emerging population for clinical and research initiatives","volume":"127","author":"Cohen","year":"2011","journal-title":"Pediatrics"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0048|cit48","doi-asserted-by":"crossref","first-page":"554","DOI":"10.1001\/archpediatrics.2011.74","article-title":"Hospital-based comprehensive care programs for children with special health care needs: a systematic review","volume":"165","author":"Cohen","year":"2011","journal-title":"Archives of Pediatrics and Adolescent Medicine"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0049|cit49","doi-asserted-by":"crossref","first-page":"e1463","DOI":"10.1542\/peds.2012-0175","article-title":"Patterns and costs of health care use of children with medical complexity","volume":"130","author":"Cohen","year":"2012","journal-title":"Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0050|cit50","doi-asserted-by":"crossref","first-page":"366","DOI":"10.1186\/1472-6963-12-366","article-title":"Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration","volume":"12","author":"Cohen","year":"2012","journal-title":"BMC Health Services Research"},{"issue":"Suppl 3","key":"10.1002\/14651858.CD013329.pub2-BIB0051|cit51","doi-asserted-by":"crossref","first-page":"S202","DOI":"10.1542\/peds.2017-1284E","article-title":"Status complexicus? The emergence of pediatric complex care","volume":"141","author":"Cohen","year":"2018","journal-title":"Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0052|cit52","doi-asserted-by":"crossref","first-page":"1106","DOI":"10.1542\/peds.2004-1409","article-title":"Providing a primary care medical home for children and youth with cerebral palsy","volume":"114","author":"Cooley","year":"2004","journal-title":"Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0053|cit53","unstructured":"Data collection form. EPOC resources for review authors, 2017 epoc.cochrane.org\/resources\/epoc-resources-review-authors"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0054|cit54","unstructured":"Suggested risk of bias criteria for EPOC reviews. EPOC resources for review authors, 2017 epoc.cochrane.org\/epoc-specific-resources-review-authors"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0055|cit55","unstructured":"Analysis in EPOC reviews. EPOC Resources for review authors, 2017 epoc.cochrane.org\/resources\/epoc-resources-review-authors"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0056|cit56","unstructured":"EPOC worksheets for preparing a 'Summary of findings' table using GRADE. EPOC resources for review authors, 2013 epoc.cochrane.org\/resources\/epoc-resources-review-authors"},{"issue":"11","key":"10.1002\/14651858.CD013329.pub2-BIB0057|cit57","doi-asserted-by":"crossref","first-page":"1116","DOI":"10.1111\/dmcn.13201","article-title":"Children with medical complexity: creating a framework for care based on the International Classification of Functioning, Disability and Health","volume":"58","author":"Glader","year":"2016","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"10","key":"10.1002\/14651858.CD013329.pub2-BIB0058|cit58","doi-asserted-by":"crossref","first-page":"937","DOI":"10.1001\/archpedi.161.10.937","article-title":"A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs","volume":"161","author":"Gordon","year":"2007","journal-title":"Archives of Pediatrics and Adolescent Medicine"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0059|cit59","unstructured":"GRADEpro GDT McMaster University (developed by Evidence Prime) 2015"},{"issue":"7650","key":"10.1002\/14651858.CD013329.pub2-BIB0060|cit60","doi-asserted-by":"crossref","first-page":"924","DOI":"10.1136\/bmj.39489.470347.AD","article-title":"GRADE: an emerging consensus on rating quality of evidence and strength of recommendations","volume":"336","author":"Guyatt","year":"2008","journal-title":"BMJ"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0061|cit61","unstructured":"Higgins JP Green S Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011 Available from training.cochrane.org\/handbook\/archive\/v5.1\/"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0062|cit62","doi-asserted-by":"crossref","first-page":"12","DOI":"10.5334\/ijic.2250","article-title":"The role of care coordinator for children with complex care needs: a systematic review","volume":"16","author":"Hillis","year":"2016","journal-title":"International Journal of Integrated Care"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0063|cit63","volume-title":"Crossing the Quality Chasm, a New Health System for the 21st Century","author":"Institute of Medicine Committee on Quality of Health Care in America","year":"2002"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0064|cit64","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1207\/s15326888chc3301_3","article-title":"Evaluating health service delivery to children with chronic conditions and their families: development of a refined Measure of Processes of Care (MPOC-20)","volume":"33","author":"King","year":"2004","journal-title":"Children's Health Care"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0065|cit65","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1111\/cch.12122","article-title":"Inter-organizational partnership for children with medical complexity: the integrated complex care model","volume":"41","author":"Kingsnorth","year":"2015","journal-title":"Child: Care, Health and Development"},{"issue":"11","key":"10.1002\/14651858.CD013329.pub2-BIB0066|cit66","doi-asserted-by":"crossref","first-page":"1020","DOI":"10.1001\/archpediatrics.2011.172","article-title":"A national profile of caregiver challenges among more medically complex children with special health care needs","volume":"165","author":"Kuo","year":"2011","journal-title":"Archives of Pediatrics and Adolescent Medicine"},{"issue":"12","key":"10.1002\/14651858.CD013329.pub2-BIB0067|cit67","doi-asserted-by":"crossref","first-page":"2190","DOI":"10.1377\/hlthaff.2014.0273","article-title":"Inequities in health care needs for children with medical complexity","volume":"33","author":"Kuo","year":"2014","journal-title":"Health Afffairs (Millwood)"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0068|cit68","doi-asserted-by":"crossref","first-page":"291","DOI":"10.1016\/j.jpeds.2015.10.010","article-title":"Health services and health care needs fulfilled by structured clinical programs for children with medical complexity","volume":"169","author":"Kuo","year":"2016","journal-title":"Journal of Pediatrics"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0069|cit69","doi-asserted-by":"crossref","first-page":"e20163021","DOI":"10.1542\/peds.2016-3021","article-title":"Recognition and management of medical complexity (Clinical report)","volume":"138","author":"Kuo","year":"2016","journal-title":"Pediatrics"},{"issue":"9615","key":"10.1002\/14651858.CD013329.pub2-BIB0070|cit70","first-page":"813","article-title":"Neurodevelopmental disabilities and special care of 5-year-old children born before 33 weeks of gestation (the EPIPAGE study): a longitudinal cohort study","volume":"371","author":"Larroque","year":"2008","journal-title":"Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0071|cit71","unstructured":"Lefebvre C Manheimer E Glanville J Chapter 6: Searching for studies. In: Higgins JP, Green S, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011 Available from training.cochrane.org\/handbook\/archive\/v5.1\/"},{"issue":"7","key":"10.1002\/14651858.CD013329.pub2-BIB0072|cit72","doi-asserted-by":"crossref","first-page":"e1000100","DOI":"10.1371\/journal.pmed.1000100","article-title":"The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration","volume":"6","author":"Liberati","year":"2009","journal-title":"PLOS Medicine"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0073|cit73","doi-asserted-by":"crossref","first-page":"444","DOI":"10.1080\/13668803.2016.1202195","article-title":"Impact of caring for children with medical complexity on parents\u2019 employment and time","volume":"20","author":"Mandic","year":"2017","journal-title":"Community, Work & Family"},{"issue":"3","key":"10.1002\/14651858.CD013329.pub2-BIB0074|cit74","doi-asserted-by":"crossref","first-page":"e723","DOI":"10.1542\/peds.2006-1684","article-title":"Practice-based care coordination: a medical home essential","volume":"120","author":"McAllister","year":"2007","journal-title":"Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0075|cit75","unstructured":"McKenzie JE Brennan SE Chapter 12. Synthesizing and presenting findings using other methods. In: Higgins JP, Thomas J, Chandler J, Cumpston M, Li T, Page MJ, et al, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 6.4 (updated August 2023). Cochrane, 2023 Available from training.cochrane.org\/handbook"},{"issue":"1 Pt 1","key":"10.1002\/14651858.CD013329.pub2-BIB0076|cit76","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1542\/peds.102.1.137","article-title":"A new definition of children with special health care needs","volume":"102","author":"McPherson","year":"1998","journal-title":"Pediatrics"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0077|cit77","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1007\/978-3-319-18096-0_18","volume-title":"Health Care for People with Intellectual and Developmental Disabilities Across the Lifespan","author":"Morin","year":"2016"},{"issue":"3","key":"10.1002\/14651858.CD013329.pub2-BIB0078|cit78","doi-asserted-by":"publisher","first-page":"e2021050400","DOI":"10.1542\/peds.2021-050400","article-title":"Telemedicine for children with medical complexity: a randomized clinical trial","volume":"148","author":"Mosquera","year":"2021","journal-title":"Pediatrics"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0079|cit79","doi-asserted-by":"publisher","first-page":"e205026","DOI":"10.1001\/jamapediatrics.2020.5026","article-title":"Hospital consultation from outpatient clinicians for medically complex children: a randomized clinical trial","volume":"175","author":"Mosquera","year":"2021","journal-title":"JAMA Pediatrics"},{"issue":"1","key":"10.1002\/14651858.CD013329.pub2-BIB0080|cit80","doi-asserted-by":"crossref","first-page":"e20153076","DOI":"10.1542\/peds.2015-3076","article-title":"A population intervention to Improve outcomes in children with medical complexity","volume":"139","author":"Noritz","year":"2017","journal-title":"Pediatrics"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0081|cit81","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1111\/1468-0009.t01-1-00005","article-title":"Health services research for children with disabilities","volume":"80","author":"Perrin","year":"2002","journal-title":"Milbank Quarterly"},{"issue":"12","key":"10.1002\/14651858.CD013329.pub2-BIB0082|cit82","doi-asserted-by":"crossref","first-page":"2099","DOI":"10.1377\/hlthaff.2014.0832","article-title":"The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations","volume":"2014","author":"Perrin","year":"2014","journal-title":"Health Affairs"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0083|cit83","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1111\/j.1744-6155.2011.00303.x","article-title":"Care coordination for children with complex care needs significantly reduces hospital utilization","volume":"16","author":"Peter","year":"2011","journal-title":"Journal for Specialists in Pediatric Nursing"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0084|cit84","unstructured":"Review Manager 5 (RevMan 5) The Cochrane Collaboration 2020"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0085|cit85","doi-asserted-by":"crossref","first-page":"323","DOI":"10.1001\/archpediatrics.2011.1154","article-title":"Medical home access and health care use and expenditures among children with special health care needs","volume":"166","author":"Romaire","year":"2012","journal-title":"Archives of Pediatric and Adolescent Medicine"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0086|cit86","doi-asserted-by":"crossref","first-page":"647","DOI":"10.1542\/peds.2009-3266","article-title":"Children with complex chronic conditions in inpatient hospital settings in the United States","volume":"126","author":"Simon","year":"2010","journal-title":"Pediatrics"},{"issue":"5","key":"10.1002\/14651858.CD013329.pub2-BIB0087|cit87","doi-asserted-by":"crossref","first-page":"566","DOI":"10.1111\/jpc.13152","article-title":"Costs of children with medical complexity in Australian public hospitals","volume":"52","author":"Srivastava","year":"2016","journal-title":"Journal of Paediatrics and Child Health"},{"key":"10.1002\/14651858.CD013329.pub2-BIB0088|cit88","doi-asserted-by":"crossref","first-page":"187","DOI":"10.1016\/j.jpeds.2016.01.049","article-title":"Financial and social hardships in families of children with medical complexity","volume":"172","author":"Thomson","year":"2016","journal-title":"Journal of Pediatrics"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0089|cit89","doi-asserted-by":"crossref","first-page":"e20154182","DOI":"10.1542\/peds.2015-4182","article-title":"Potentially preventable 30-day hospital readmissions at a children\u2019s hospital","volume":"138","author":"Toomey","year":"2016","journal-title":"Pediatrics"},{"issue":"2","key":"10.1002\/14651858.CD013329.pub2-BIB0090|cit90","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1097\/00005650-199902000-00003","article-title":"The PedsQL: measurement model for the pediatric quality of life inventory","volume":"37","author":"Varni","year":"1999","journal-title":"Medical Care"},{"issue":"6","key":"10.1002\/14651858.CD013329.pub2-BIB0091|cit91","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1097\/00005650-199206000-00002","article-title":"The MOS 36-itemshort-form health survey (SF-36). I. Conceptual framework and item selection","volume":"30","author":"Sherbourne","year":"1992","journal-title":"Medical Care"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0092|cit92","doi-asserted-by":"crossref","first-page":"997","DOI":"10.1542\/peds.2004-0221","article-title":"Improved survival rates with increased neurodevelopmental disability for extremely low birth weight infants in the 1990s","volume":"115","author":"Wilson-Costello","year":"2005","journal-title":"Pediatrics"},{"issue":"4","key":"10.1002\/14651858.CD013329.pub2-BIB0093|cit93","doi-asserted-by":"crossref","first-page":"615","DOI":"10.5334\/ijic.s3615","article-title":"Care coordination for children with medical complexity results in savings for the healthcare system and for families","volume":"19","author":"Zurynski","year":"2019","journal-title":"International Journal of Integrated Care"},{"issue":"5","key":"10.1002\/14651858.CD013329.pub2-BIB0094|cit94","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD013329","article-title":"Comprehensive care programmes for children with medical complexity","author":"Meehan","year":"2019","journal-title":"Cochrane Database of Systematic Reviews"}],"container-title":["Cochrane Database of Systematic Reviews"],"original-title":[],"language":"en","deposited":{"date-parts":[[2025,10,27]],"date-time":"2025-10-27T16:05:10Z","timestamp":1761581110000},"score":1,"resource":{"primary":{"URL":"http:\/\/doi.wiley.com\/10.1002\/14651858.CD013329.pub2"}},"subtitle":[],"editor":[{"name":"Cochrane Effective Practice and Organisation of Care Group","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2024,5,30]]},"references-count":94,"journal-issue":{"issue":"5","published-online":{"date-parts":[[2024,5]]}},"URL":"https:\/\/doi.org\/10.1002\/14651858.cd013329.pub2","relation":{},"ISSN":["1465-1858"],"issn-type":[{"value":"1465-1858","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,5,30]]}}}