{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,7]],"date-time":"2026-07-07T22:25:33Z","timestamp":1783463133655,"version":"3.55.0"},"reference-count":53,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T00:00:00Z","timestamp":1778716800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T00:00:00Z","timestamp":1778716800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease\u2010related complications. Canadian data on inpatient care is limited. This study compared caregiver\u2010reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive condition with cumulative morbidities and frequent hospitalizations, within a provincial Canadian healthcare system.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Procedure<\/jats:title>\n                    <jats:p>\n                      Caregivers of pediatric patients with SCD or CF, hospitalized at tertiary children's hospitals in Alberta, completed the Alberta Pediatric Inpatient Experience Survey (APIES) between 2015 and 2019. Survey responses were linked to administrative inpatient records. Proportions of \u201ctop\u2010box\u201d responses (i.e., most positive) were calculated across 46 items spanning 12 care domains. Chi\u2010square tests assessed group differences between SCD (\n                      <jats:italic>n<\/jats:italic>\n                      = 105) and CF (\n                      <jats:italic>n<\/jats:italic>\n                      = 60) respondents.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Caregivers of children with SCD reported significantly higher satisfaction compared to caregivers of CF on 16 of 46 survey items (\n                      <jats:italic>p<\/jats:italic>\n                      &lt; 0.05), including domains related to provider communication, care coordination, and pain management. Notable differences included higher ratings in quietness around the child's hospital room (SCD: 64.8% vs. CF: 22.4%;\n                      <jats:italic>p<\/jats:italic>\n                      &lt; 0.001) and provider knowledge of the child's medical history (SCD: 77.1% vs. CF: 40.0%;\n                      <jats:italic>p<\/jats:italic>\n                      &lt; 0.001). No items were rated significantly lower by the SCD group.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Contrary to prior research conducted in the United States, caregivers of children with SCD in Alberta reported equal, or more positive, hospital experiences than children with CF. These findings emphasize the importance of capturing caregiver\u2010reported outcomes to better understand and improve inpatient care for children in Canada.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/1545-5017.70386","type":"journal-article","created":{"date-parts":[[2026,5,15]],"date-time":"2026-05-15T05:03:49Z","timestamp":1778821429000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Hospitalization Through Families\u2019 Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada"],"prefix":"10.1002","volume":"73","author":[{"given":"Hailey M.","family":"Zwicker","sequence":"first","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kyle","family":"Kemp","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"},{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Perri","family":"Tutelman","sequence":"additional","affiliation":[{"name":"Department of Psychology University of Calgary  Calgary Alberta Canada"},{"name":"Department of Oncology University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon H. J.","family":"Hou","sequence":"additional","affiliation":[{"name":"Faculty of Education Simon Fraser University  Burnaby British Columbia Canada"},{"name":"British Columbia Children's Hospital Research Institute  Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"Fairie","sequence":"additional","affiliation":[{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"Santana","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"},{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gregory M. T.","family":"Guilcher","sequence":"additional","affiliation":[{"name":"Section of Pediatric Oncology\/Cellular Therapy, Alberta Children's Hospital, Departments of Oncology and Pediatrics, Cumming School of Medicine University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Taryn","family":"Fay\u2010McClymont","sequence":"additional","affiliation":[{"name":"Department of Psychology University of British Columbia Okanagan  Kelowna British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Glenda","family":"Bendiak","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wendy","family":"Pelletier","sequence":"additional","affiliation":[{"name":"Department of Oncology University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicola","family":"Wright","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fiona","family":"Schulte","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary  Calgary Alberta Canada"},{"name":"Department of Psychology University of Calgary  Calgary Alberta Canada"},{"name":"Department of Oncology University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,5,14]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev\u2010pathmechdis\u2010012418\u2010012838"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.21443"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.blre.2022.100982"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003\u20104819\u2010148\u20102\u2010200801150\u201000004"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0214355"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.9778\/cmajo.20220145"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0000000000000013"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/AJP.0000000000000553"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajem.2012.11.005"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2020.1737"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2005-1611"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild\u20102018\u2010314955"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2015.06.004"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjh.12700"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/hsw\/33.3.211"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S377924"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.2196\/11058"},{"key":"e_1_2_9_19_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4614-1037-9"},{"key":"e_1_2_9_20_1","unstructured":"\u201cCystic fibrosis \u201dMayo Clinic 2021."},{"key":"e_1_2_9_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ccm.2015.10.002"},{"key":"e_1_2_9_22_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2018.10"},{"key":"e_1_2_9_23_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.gim.0000195894.67756.8b"},{"issue":"3","key":"e_1_2_9_24_1","first-page":"370","article-title":"Racial Differences in Beliefs About Genetic Screening Among Patients at Inner\u2010City Neighborhood Health Centers","volume":"98","author":"Zimmerman R. 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