{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T14:57:16Z","timestamp":1773413836249,"version":"3.50.1"},"reference-count":42,"publisher":"Oxford University Press (OUP)","issue":"9","license":[{"start":{"date-parts":[[1995,9,1]],"date-time":"1995-09-01T00:00:00Z","timestamp":809913600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/academic.oup.com\/journals\/pages\/open_access\/funder_policies\/chorus\/standard_publication_model"}],"funder":[{"name":"Research and Development Directorate, South"},{"name":"West Regional Health Authority"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[1995,9,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>Quality of life (QOL) assessment may improve the evaluation of treatment for oesophageal cancer but patient compliance using self completion questionnaires is often poor. The use of a proxy to estimate QOL might improve data collection from patients who are either unable or unwilling to complete the questionnaire. This study examined whether a doctor or patients' carers could accurately assess QOL using the QLQ-C30 questionnaire developed by the European Organisation for Research and Treatment of Cancer Study Group on Quality of Life. One doctor, 52 patients and 39 carers completed the instrument independently. Proxy and patient ratings were analysed for agreement using weighted k scores. Agreement was poor or moderate in most QOL scales and items (\u03ba \u226460). This study demonstrates that a carer or doctor is not sufficiently accurate to postulate the patient's responses to the questionnaire. Quality of life data, therefore, should come from the patients themselves.<\/jats:p>","DOI":"10.1002\/bjs.1800820916","type":"journal-article","created":{"date-parts":[[2007,3,3]],"date-time":"2007-03-03T23:00:08Z","timestamp":1172962808000},"page":"1200-1203","source":"Crossref","is-referenced-by-count":69,"title":["Observer variation in assessment of quality of life in patients with oesophageal cancer"],"prefix":"10.1093","volume":"82","author":[{"given":"J M","family":"Blazeby","sequence":"first","affiliation":[{"name":"University Department of Surgery, Bristol Royal Infirmary , Bristol,","place":["UK"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M H","family":"Williams","sequence":"additional","affiliation":[{"name":"Department of Social Medicine, University of Bristol , Bristol,","place":["UK"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D","family":"Alderson","sequence":"additional","affiliation":[{"name":"University Department of Surgery, Bristol Royal Infirmary , Bristol,","place":["UK"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J R","family":"Farndon","sequence":"additional","affiliation":[{"name":"University Department of Surgery, Bristol Royal Infirmary , Bristol,","place":["UK"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[1995,9,1]]},"reference":[{"key":"2024092816222033000_bib1","first-page":"97","article-title":"Resection for carcinoma of the oesophagus","volume":"34","author":"Salama","year":"1989","journal-title":"J R Coll Surg Edinb"},{"key":"2024092816222033000_bib2","doi-asserted-by":"crossref","first-page":"845","DOI":"10.1002\/bjs.1800770804","article-title":"Surgical therapy of oesophageal carcinoma","volume":"77","author":"Muller","year":"1990","journal-title":"Br J Surg"},{"key":"2024092816222033000_bib3","doi-asserted-by":"crossref","first-page":"585","DOI":"10.1002\/bjs.1800691009","article-title":"A study of the quality and duration of survival following resection, endoscopic intubation and surgical intubation in oesophageal carcinoma","volume":"69","author":"Watson","year":"1982","journal-title":"Br J Surg"},{"key":"2024092816222033000_bib4","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1007\/BF00316815","article-title":"Operable esophageal cancer: current results from the West","volume":"15","author":"Watson","year":"1994","journal-title":"World J Surg"},{"key":"2024092816222033000_bib5","doi-asserted-by":"crossref","first-page":"1321","DOI":"10.1002\/bjs.1800791226","article-title":"Oesophageal cancer: a population-based study of survival after treatment","volume":"79","author":"Oliver","year":"1992","journal-title":"Br J Surg"},{"key":"2024092816222033000_bib6","doi-asserted-by":"crossref","first-page":"1602","DOI":"10.1136\/gut.33.12.1602","article-title":"Endoscopic palliation for inoperable malignant dysphagia: long term follow up","volume":"33","author":"Maunoury","year":"1992","journal-title":"Gut"},{"key":"2024092816222033000_bib7","doi-asserted-by":"crossref","first-page":"552","DOI":"10.1016\/0003-4975(91)90309-E","article-title":"Prospective, randomised trial of palliative treatment for unresectable cancer of the esophagus","volume":"51","author":"Reed","year":"1991","journal-title":"Ann Thorac Surg"},{"key":"2024092816222033000_bib8","doi-asserted-by":"crossref","first-page":"1763","DOI":"10.1002\/bjs.1800811218","article-title":"Combination chemotherapy with epirubicin, cisplatin and 5-fluorouracil for the palliation of advanced gastric and oesophageal cancer","volume":"81","author":"Highley","year":"1994","journal-title":"Br J Surg"},{"key":"2024092816222033000_bib9","first-page":"138","article-title":"Quality of life: definition, conceptualization and implications - a surgeon's view","volume":"6","author":"Troidl","year":"1991","journal-title":"Theoretical Surgery"},{"key":"2024092816222033000_bib10","volume-title":"The Quality of Life: The Missing Measurement in Health Care","author":"Fallowfield","year":"1990"},{"key":"2024092816222033000_bib11","first-page":"1","article-title":"Quality of life in current oncology practice and research","volume":"4","author":"Tchekmedyian","year":"1990","journal-title":"Oncology"},{"key":"2024092816222033000_bib12","doi-asserted-by":"crossref","first-page":"1034","DOI":"10.1038\/bjc.1990.434","article-title":"Measuring psychological and physical distress in cancer patients: structure and application of the Rotterdam Symptom Checklist","volume":"62","author":"de Haes","year":"1990","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib13","first-page":"384","article-title":"Measurement of quality of life in cancer patients","volume":"45","author":"Selby","year":"1993","journal-title":"J Pharm Pharmacol"},{"key":"2024092816222033000_bib14","doi-asserted-by":"crossref","first-page":"1157","DOI":"10.1038\/bjc.1993.497","article-title":"A randomised trial of three or six courses of etoposide cyclophosphamide methotrexate and vincristine or six courses of etoposide and ifosfamide in small cell lung cancer (SCLC) II: quality of life","volume":"68","author":"Bleehen","year":"1993","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib15","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1038\/bjc.1994.240","article-title":"Quality of life assessment in clinical cancer research","volume":"70","author":"Olschewski","year":"1994","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib16","doi-asserted-by":"crossref","first-page":"365","DOI":"10.1093\/jnci\/85.5.365","article-title":"The European Organisation for Research and Treatment of Cancer QLQ-C30: a quality of life instrument for use in international clinical trials in oncology","volume":"85","author":"Aaronson","year":"1993","journal-title":"J Natl Cancer Inst"},{"key":"2024092816222033000_bib17","doi-asserted-by":"crossref","first-page":"472","DOI":"10.1200\/JCO.1984.2.5.472","article-title":"Measuring the quality of life of cancer patients: the Functional Living Index - Cancer: development and validation","volume":"2","author":"Schipper","year":"1984","journal-title":"J Clin Oncol"},{"key":"2024092816222033000_bib18","doi-asserted-by":"crossref","first-page":"585","DOI":"10.1016\/0021-9681(81)90058-8","article-title":"Measuring the quality of life of cancer patients. A concise QL-index for use by physicians","volume":"34","author":"Spitzer","year":"1981","journal-title":"Journal of Chronic Diseases"},{"key":"2024092816222033000_bib19","doi-asserted-by":"crossref","first-page":"814","DOI":"10.1136\/bmj.1.6013.814","article-title":"Observer variation in assessment of results of surgery for peptic ulceration","volume":"1","author":"Hall","year":"1976","journal-title":"BMJ"},{"key":"2024092816222033000_bib20","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1038\/bjc.1988.20","article-title":"Who should measure quality of life, the doctor or the patient?","volume":"57","author":"Slevin","year":"1988","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib21","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1038\/bjc.1984.134","article-title":"The development of a method for assessing the quality of life of cancer patients","volume":"50","author":"Selby","year":"1984","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib22","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1038\/bjc.1988.218","article-title":"Cancer patients' perceptions of their disease and its treatment","volume":"58","author":"Mackillop","year":"1988","journal-title":"Br J Cancer"},{"key":"2024092816222033000_bib23","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1016\/0895-4356(93)90125-K","article-title":"Interviewer versus self-administered questionnaires in developing a disease-specific, health-related quality of life instrument for asthma","volume":"46","author":"Cook","year":"1993","journal-title":"J Clin Epidemiol"},{"key":"2024092816222033000_bib24","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1177\/026921639300700309","article-title":"Validity of the support team assessment schedule: do staffs' ratings reflect those made by patients or their families?","volume":"7","author":"Higginson","year":"1993","journal-title":"Palliative Medicine"},{"key":"2024092816222033000_bib25","doi-asserted-by":"crossref","first-page":"608","DOI":"10.1200\/JCO.1994.12.3.608","article-title":"Lessons learned from measuring health-related quality of life in oncology","volume":"12","author":"Osoba","year":"1994","journal-title":"J Clin Oncol"},{"key":"2024092816222033000_bib26","doi-asserted-by":"crossref","first-page":"339","DOI":"10.1007\/BF00451726","article-title":"Approaches to the analysis of quality of life data: experiences gained from a Medical Research Council Lung Cancer Working Party palliative chemotherapy trial","volume":"3","author":"Hopwood","year":"1994","journal-title":"Quality of Life Research"},{"key":"2024092816222033000_bib27","doi-asserted-by":"crossref","first-page":"252","DOI":"10.1136\/gut.31.3.252","article-title":"Prospective randomised trial of laser therapy only and laser therapy followed by endoscopic intubation for the palliation of malignant dysphagia","volume":"31","author":"Barr","year":"1990","journal-title":"Gut"},{"key":"2024092816222033000_bib28","doi-asserted-by":"crossref","first-page":"386","DOI":"10.1002\/1097-0142(19920715)70:2<386::AID-CNCR2820700203>3.0.CO;2-H","article-title":"A prospective assessment of quality of life after endoscopic intubation and laser therapy for malignant dysphagia","volume":"70","author":"Loizou","year":"1992","journal-title":"Cancer"},{"key":"2024092816222033000_bib29","doi-asserted-by":"crossref","first-page":"1660","DOI":"10.1002\/1097-0142(19911001)68:7<1660::AID-CNCR2820680733>3.0.CO;2-L","article-title":"Prospective quality-of-life analysis after palliative photoablation for the treatment of malignant dysphagia","volume":"68","author":"Barr","year":"1991","journal-title":"Cancer"},{"key":"2024092816222033000_bib30","first-page":"206","article-title":"Quality-of-life assessment following oesophagectomy","volume":"6","author":"Roder","year":"1991","journal-title":"Theoretical Surgery"},{"key":"2024092816222033000_bib31","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/0277-9536(92)90161-I","article-title":"Quality of life in patients with resected oesophageal cancer","volume":"35","author":"van Knippenberg","year":"1992","journal-title":"Soc Sci Med"},{"key":"2024092816222033000_bib32","doi-asserted-by":"crossref","first-page":"353","DOI":"10.1007\/BF00451727","article-title":"Psychometric properties and responsiveness of the EORTC quality of life questionnaire (QLQ-C30) in patients with breast, ovarian and lung cancer","volume":"3","author":"Osoba","year":"1994","journal-title":"Quality of Life Research"},{"key":"2024092816222033000_bib33","doi-asserted-by":"crossref","first-page":"231","DOI":"10.1007\/978-3-642-83419-6_27","article-title":"A modular approach to quality-of-life assessment in cancer clinical trials","volume":"111","author":"Aaronson","year":"1988","journal-title":"Recent Results Cancer Res"},{"key":"2024092816222033000_bib34","first-page":"185","volume-title":"Effect of Cancer on Quality of Life","author":"Aaronson","year":"1991"},{"key":"2024092816222033000_bib35","volume-title":"The Quality of Life of Cancer Patients","author":"Aaronson","year":"1987"},{"key":"2024092816222033000_bib36","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1037\/h0026256","article-title":"Weighted kappa: nominal scale agreement with provision for scaled disagreement or partial credit","volume":"70","author":"Cohen","year":"1968","journal-title":"Psychol Bull"},{"key":"2024092816222033000_bib37","volume-title":"Practical Statistics for Medical Research","author":"Aitman","year":"1991"},{"key":"2024092816222033000_bib38","first-page":"454","article-title":"Carcinoma of the esophagus. A new proposal for the evaluation of treatment","volume":"20","author":"Stoller","year":"1977","journal-title":"Can J Surg"},{"key":"2024092816222033000_bib39","first-page":"119","article-title":"Quality of life during treatment for cancer","volume":"48","author":"Saunders","year":"1992","journal-title":"Br J Hosp Med"},{"key":"2024092816222033000_bib40","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1016\/0895-4356(90)90059-X","article-title":"Assessing the quality of life - a study in newly diagnosed breast cancer patients","volume":"43","author":"Ganz","year":"1990","journal-title":"J Clin Epidemiol"},{"key":"2024092816222033000_bib41","doi-asserted-by":"crossref","first-page":"849","DOI":"10.1002\/1097-0142(19880215)61:4<849::AID-CNCR2820610435>3.0.CO;2-B","article-title":"Estimating the quality of life in a clinical trial of patients with metastatic lung cancer using the Karnofsky Performance Status and the Functional Living Index - Cancer","volume":"61","author":"Ganz","year":"1988","journal-title":"Cancer"},{"key":"2024092816222033000_bib42","doi-asserted-by":"crossref","first-page":"804","DOI":"10.1016\/0016-5085(89)90905-0","article-title":"A new measure of health status for clinical trials in inflammatory bowel disease","volume":"96","author":"Guyatt","year":"1989","journal-title":"Gastroenterology"}],"container-title":["Journal of British Surgery"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fbjs.1800820916","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/academic.oup.com\/bjs\/article-pdf\/82\/9\/1200\/59418149\/bjs1800820916.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/academic.oup.com\/bjs\/article-pdf\/82\/9\/1200\/59418149\/bjs1800820916.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,28]],"date-time":"2024-09-28T16:22:41Z","timestamp":1727540561000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/bjs\/article\/82\/9\/1200\/6167358"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[1995,9,1]]},"references-count":42,"journal-issue":{"issue":"9","published-online":{"date-parts":[[1995,9,1]]},"published-print":{"date-parts":[[1995,9,1]]}},"URL":"https:\/\/doi.org\/10.1002\/bjs.1800820916","relation":{},"ISSN":["0007-1323","1365-2168"],"issn-type":[{"value":"0007-1323","type":"print"},{"value":"1365-2168","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[1995,9]]},"published":{"date-parts":[[1995,9,1]]}}}