{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,7]],"date-time":"2026-03-07T13:46:04Z","timestamp":1772891164986,"version":"3.50.1"},"reference-count":29,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2013,1,24]],"date-time":"2013-01-24T00:00:00Z","timestamp":1358985600000},"content-version":"vor","delay-in-days":389,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Proc of Assoc for Info"],"published-print":{"date-parts":[[2012,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Consumer health information behavior (CHIB), which encompasses a person's health\u2010related information needs and the activities in which they engage in order to look for, manage, and use information related to their health condition, impacts a person's ability to manage and cope with a disease. Although CHIB has been found to be both dynamic and situational, very few studies have undertaken to study this phenomenon as a process that unfolds across time. This paper reports results from a longitudinal, mixed\u2010method study of the information behavior of people with type 2 diabetes. This study aimed to discover this group's information needs and information seeking practices, the factors that motivate or impede their information seeking and use, the sources and types of information that they find useful, and how all of these changed across time. This paper focuses on results related to participants' perceptions regarding the usefulness of different sources and types of diabetes\u2010related information. The findings indicate that important changes took place in participants' perceptions regarding the usefulness of information as their disease progressed, as their attitudes changed, and as their awareness of their information needs changed. A suggestion is made to extend the definition of information behavior to encompass an earlier state (\u201cincognizance\u201d) in which a person has not yet become aware that he\/she has an information need and is, thus, less able (or unable) to recognize the potential relevance and usefulness of information. Implications for the important role that researchers and information professionals can play in helping to mitigate incognizance and its potentially devastating impacts are discussed.<\/jats:p>","DOI":"10.1002\/meet.14504901030","type":"journal-article","created":{"date-parts":[[2013,1,24]],"date-time":"2013-01-24T10:49:23Z","timestamp":1359024563000},"page":"1-10","source":"Crossref","is-referenced-by-count":10,"title":["I just don't know what I don't know!\u201d: A longitudinal investigation of the perceived usefulness of information to people with type 2 diabetes"],"prefix":"10.1002","volume":"49","author":[{"given":"Beth","family":"St. Jean","sequence":"first","affiliation":[]}],"member":"311","published-online":{"date-parts":[[2013,1,24]]},"reference":[{"issue":"3","key":"e_1_2_8_2_1","article-title":"Use of information sources by cancer patients: Results of a systematic review of the research literature","volume":"11","author":"Ankem K.","year":"2006","journal-title":"Information Research"},{"key":"e_1_2_8_3_1","first-page":"133","article-title":"Anomalous States of Knowledge as a basis for information retrieval","volume":"5","author":"Belkin N. J.","year":"1980","journal-title":"Canadian Journal of Information Science"},{"issue":"3","key":"e_1_2_8_4_1","first-page":"353","article-title":"Avoiding versus seeking: The relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts","volume":"93","author":"Case D. O.","year":"2005","journal-title":"Journal of the Medical Library Association"},{"key":"e_1_2_8_5_1","unstructured":"Centers for Disease Control and Prevention. (2010).Number of Americans with diabetes projected to double or triple by 2050. Available:http:\/\/www.cdc.gov\/media\/pressrel\/2010\/r101022.html"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-4571(199603)47:3<193::AID-ASI3>3.0.CO;2-T"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/105413730501300207"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1997.03540420081039"},{"issue":"4","key":"e_1_2_8_9_1","first-page":"S74","article-title":"Libraries reaching out with health information to vulnerable populations: Guidance from research on information seeking and use","volume":"93","author":"Dervin B.","year":"2005","journal-title":"Journal of the Medical Library Association"},{"key":"e_1_2_8_10_1","volume-title":"Sense\u2010Making Methodology Reader: Selected Writings of Brenda Dervin","author":"Dervin B.","year":"2003"},{"key":"e_1_2_8_11_1","first-page":"3","article-title":"Information needs and uses","volume":"21","author":"Dervin B.","year":"1986","journal-title":"Annual Review of Information Science and Technology (ARIST)"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/014572179802400307"},{"key":"e_1_2_8_13_1","unstructured":"Estabrook L. Witt E. &Rainie L.(2007).Information Searches that Solve Problems: Pew Internet & American Life Project. Avail.:http:\/\/www.pewinternet.org\/\u223c\/media\/\/Files\/Reports\/2007\/Pew_UI_LibrariesReport.pdf.pdf"},{"issue":"2","key":"e_1_2_8_14_1","first-page":"141","article-title":"Health information\u2010seeking behavior and older African\u2010American women","volume":"85","author":"Gollop C. J.","year":"1997","journal-title":"Bulletin of the Medical Library Association"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(94)90336-0"},{"issue":"1","key":"e_1_2_8_16_1","article-title":"Searching for health information in rural Canada: Where do residents look for health information and what do they do when they find it?","volume":"12","author":"Harris R. M.","year":"2006","journal-title":"Information Research"},{"key":"e_1_2_8_17_1","volume-title":"Seeking Meaning","author":"Kuhlthau C.","year":"2004"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(98)00453-5"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1996.tb00010.x"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2006.01817.x"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.584"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1988.tb00082.x"},{"issue":"4","key":"e_1_2_8_23_1","first-page":"10","article-title":"A phenomenological study of the decision\u2010making experience of individuals with long\u2010standing diabetes","volume":"18","author":"Paterson B. L.","year":"1994","journal-title":"Canadian Journal of Diabetes Care"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1177\/10547730022158663"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1177\/104973239300300103"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1369-6513.2002.00191.x"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lisr.2005.11.001"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.5860\/crl_29_03_178"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1002\/asi.20016"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3999(99)00109-9"}],"container-title":["Proceedings of the American Society for Information Science and Technology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fmeet.14504901030","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fmeet.14504901030","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/asistdl.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/meet.14504901030","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,20]],"date-time":"2025-10-20T11:36:42Z","timestamp":1760960202000},"score":1,"resource":{"primary":{"URL":"https:\/\/asistdl.onlinelibrary.wiley.com\/doi\/10.1002\/meet.14504901030"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,1]]},"references-count":29,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2012,1]]}},"alternative-id":["10.1002\/meet.14504901030"],"URL":"https:\/\/doi.org\/10.1002\/meet.14504901030","archive":["Portico"],"relation":{},"ISSN":["0044-7870","1550-8390"],"issn-type":[{"value":"0044-7870","type":"print"},{"value":"1550-8390","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,1]]}}}