{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,24]],"date-time":"2026-01-24T07:24:15Z","timestamp":1769239455005,"version":"3.49.0"},"reference-count":49,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2010,11,18]],"date-time":"2010-11-18T00:00:00Z","timestamp":1290038400000},"content-version":"vor","delay-in-days":686,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Proc of Assoc for Info"],"published-print":{"date-parts":[[2009,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Because of fears of stigmatization, people with HIV\/AIDS (PHAs) may avoid health care and refuse illness\u2010related information and support. However, HIV\/AIDS\u2010related information, especially that which is provided by other people, has also been shown to a vital resource for PHAs and their loved ones. This research examines the role of stigmatization in PHAs' and their friends\/family members' efforts to establish personal networks for HIV\/AIDS\u2010related information and help (\"information\/help networks\"). To investigate this question, I draw upon Goffman's () stigma management theory and Chatman's () theory of information poverty. Semi\u2010structured, in\u2010depth interviews were conducted with 114 PHAs, their friends\/family members, health care and service providers in three rural regions of Canada. Results revealed that the majority of PHAs and friends\/family members had relatively small networks for HIV\/AIDS information\/help. For many participants, the challenges of living with HIV\/AIDS led to changes in their personal networks, and stigmatization playing a significant part in such changes. Participants developed information\/help networks in a manner consistent with stigma management theory in their decisions to disclose selectively to others, to avoid the topic in conversation, to obtain information\/help at a distance or to acquire information\/help without disclosing their HIV status. However, in contrast to Chatman's theory, participants did not wholly avoid information from interpersonal sources nor believe that no one was available to help them. These findings suggest that information behaviour theory may need to evolve in order to account for the complexity of self\u2010protective behaviour.<\/jats:p>","DOI":"10.1002\/meet.2009.1450460273","type":"journal-article","created":{"date-parts":[[2010,1,29]],"date-time":"2010-01-29T15:41:53Z","timestamp":1264779713000},"page":"1-20","source":"Crossref","is-referenced-by-count":28,"title":["\u201cA lot of people didn't have a chance to support us because we never told them\u201d Stigma management, information poverty and HIV\/AIDS information\/help networks"],"prefix":"10.1002","volume":"46","author":[{"given":"Tiffany","family":"Veinot","sequence":"first","affiliation":[]}],"member":"311","published-online":{"date-parts":[[2010,11,18]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socnet.2004.11.003"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0740-8188(99)00017-1"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-6427.1993.00753.x"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0265407502191006"},{"key":"e_1_2_7_6_1","unstructured":"Canada. Department of Justice(1985 August 25 2008). Canada Health Act ( R.S. 1985 c. C\u20106 ) Retrieved September 1 2008 fromhttp:\/\/laws.justice.gc.ca\/en\/ShowFullDoc\/cs\/C\u20106\/\/\/en"},{"key":"e_1_2_7_7_1","volume-title":"Good days, bad days: the self in chronic illness and time","author":"Charmaz K.","year":"1991"},{"key":"e_1_2_7_8_1","volume-title":"The information world of retired women","author":"Chatman E. A.","year":"1992"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-4571(199603)47:3<193::AID-ASI3>3.0.CO;2-T"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/00027649921954822"},{"key":"e_1_2_7_11_1","first-page":"217","volume-title":"Health psychology: a handbook","author":"Cohen F.","year":"1979"},{"key":"e_1_2_7_12_1","first-page":"61","volume-title":"Qualitative research in information management","author":"Dervin B.","year":"1992"},{"key":"e_1_2_7_13_1","volume-title":"How libraries help","author":"Dervin B.","year":"1985"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/00027649921954732"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.2307\/2676360"},{"key":"e_1_2_7_16_1","volume-title":"Stigma: notes on the management of a spoiled identity","author":"Goffman E.","year":"1963"},{"key":"e_1_2_7_17_1","doi-asserted-by":"publisher","DOI":"10.1086\/225469"},{"issue":"1","key":"e_1_2_7_18_1","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1111\/j.1467-9566.1997.tb00016.x","article-title":"Fear and loathing in health care settings reported by people with HIV","volume":"19","author":"Green G.","year":"1997","journal-title":"Sociology of Health & Illness"},{"key":"e_1_2_7_19_1","doi-asserted-by":"crossref","first-page":"7","DOI":"10.5040\/9798400616549.ch-002","volume-title":"Theory and research on information\u2010seeking Barriers to information: How formal help systems fail battered women","author":"Harris R. M.","year":"1994"},{"key":"e_1_2_7_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-4571(1998)49:12<1101::AID-ASI6>3.0.CO;2-Z"},{"key":"e_1_2_7_21_1","volume-title":"National HIV\/AIDS treatment information environmental scan: Final report","author":"Health Canada","year":"2000"},{"key":"e_1_2_7_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1748-0361.1998.tb00615.x"},{"key":"e_1_2_7_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/0002764299042007004"},{"issue":"7","key":"e_1_2_7_24_1","first-page":"1126","article-title":"AIDS stigma and sexual prejudice","volume":"42","author":"Herek G. M.","year":"1999","journal-title":"American Behavioral Scientist"},{"issue":"3","key":"e_1_2_7_25_1","first-page":"45","volume":"27","author":"Hersberger J. A.","year":"2003","journal-title":"Are the economically poor information poor? Does the digital divide affect the homeless and access to information? Canadian Journal of Information and Library Science\u2010Revue Canadienne Des Sciences De L Information Et De Bibliotheconomie"},{"issue":"4","key":"e_1_2_7_26_1","first-page":"431","article-title":"Information preferences and practices among people living with HIV\/AIDS: Results from a nationwide survey","volume":"93","author":"Hogan T. P.","year":"2005","journal-title":"Journal of the Medical Library Association"},{"key":"e_1_2_7_27_1","doi-asserted-by":"publisher","DOI":"10.1300\/J115v19n03_03"},{"key":"e_1_2_7_28_1","unstructured":"Huotari M.\u2010L.(1999).Social network analysis as a tool to evaluate IM in the public sector: a pilot study at The University of Tampere. Paper presented at the Exploring The Contexts Of Information Behaviour: Proceedings Of The Second International Conference In Information Needs Use And Seeking In Different Contexts 13\/15 August 1998 Sheffield UK London."},{"key":"e_1_2_7_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lisr.2004.04.001"},{"key":"e_1_2_7_30_1","volume-title":"An Introduction to the U.S. Health Care System","author":"Jonas S.","year":"2003"},{"key":"e_1_2_7_31_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1024252926930"},{"key":"e_1_2_7_32_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.NCC.0000343372.24517.bd"},{"key":"e_1_2_7_33_1","doi-asserted-by":"publisher","DOI":"10.1177\/0093650208315962"},{"key":"e_1_2_7_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0378-8733(96)00291-2"},{"key":"e_1_2_7_35_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.320.7239.909"},{"issue":"3","key":"e_1_2_7_36_1","first-page":"82","article-title":"The searching, processing, and sharing of breast cancer information by women diagnosed with the illness","volume":"38","author":"Loiselle C. G.","year":"2006","journal-title":"Canadian Journal of Nursing Research"},{"issue":"4","key":"e_1_2_7_37_1","first-page":"375","article-title":"Beyond the mere dichotomy of active search versus avoidance of information about the self","volume":"94","author":"Loiselle C. G.","year":"2006","journal-title":"Journal of the Medical Library Association"},{"key":"e_1_2_7_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1748-0361.2002.tb00910.x"},{"key":"e_1_2_7_39_1","first-page":"21","volume-title":"Coping with chronic illness: Overcoming powerlessness","author":"Miller J. F.","year":"2000"},{"key":"e_1_2_7_40_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-0-387-48670-3_6"},{"key":"e_1_2_7_41_1","doi-asserted-by":"publisher","DOI":"10.1080\/09540120412331319750"},{"key":"e_1_2_7_42_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2007.10.018"},{"key":"e_1_2_7_43_1","doi-asserted-by":"publisher","DOI":"10.1300\/J010v23n04_05"},{"key":"e_1_2_7_44_1","doi-asserted-by":"publisher","DOI":"10.1097\/00042560-199602010-00006"},{"key":"e_1_2_7_45_1","first-page":"105","volume-title":"Synthesizing information about HIV\/AIDS and its treatment Making care visible: Antiretroviral therapy and the health work of people living with HIV\/AIDS","author":"Taylor D.","year":"2002"},{"key":"e_1_2_7_46_1","first-page":"353","volume-title":"Youth information\u2010seeking behavior: Theories, models, and issues","author":"Todd R. J.","year":"2004"},{"key":"e_1_2_7_47_1","doi-asserted-by":"publisher","DOI":"10.2307\/2137303"},{"key":"e_1_2_7_48_1","doi-asserted-by":"publisher","DOI":"10.1016\/0378-8733(93)90021-C"},{"key":"e_1_2_7_49_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0378-8733(96)00289-4"},{"key":"e_1_2_7_50_1","first-page":"203","article-title":"Breast cancer information needs and seeking: towards an intelligent, user sensitive portal to breast cancer knowledge online","volume":"3","author":"Williamson K.","year":"2002","journal-title":"New Review of Information Behaviour Research"}],"container-title":["Proceedings of the American Society for Information Science and Technology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fmeet.2009.1450460273","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fmeet.2009.1450460273","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/asistdl.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/meet.2009.1450460273","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,20]],"date-time":"2025-10-20T10:18:01Z","timestamp":1760955481000},"score":1,"resource":{"primary":{"URL":"https:\/\/asistdl.onlinelibrary.wiley.com\/doi\/10.1002\/meet.2009.1450460273"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2009,1]]},"references-count":49,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2009,1]]}},"alternative-id":["10.1002\/meet.2009.1450460273"],"URL":"https:\/\/doi.org\/10.1002\/meet.2009.1450460273","archive":["Portico"],"relation":{},"ISSN":["0044-7870","1550-8390"],"issn-type":[{"value":"0044-7870","type":"print"},{"value":"1550-8390","type":"electronic"}],"subject":[],"published":{"date-parts":[[2009,1]]}}}