{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T08:21:58Z","timestamp":1781857318708,"version":"3.54.5"},"reference-count":16,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2015,5,25]],"date-time":"2015-05-25T00:00:00Z","timestamp":1432512000000},"content-version":"vor","delay-in-days":24,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2015,5]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>To critically evaluate studies purporting to measure quality of life (QOL) or health\u2010related QOL (HRQOL) in juvenile idiopathic arthritis (JIA) by assessing the face validity of studies via a predefined set of criteria based on Gill and Feinstein (1994).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Systematic review was conducted of studies in Medline, Embase, and PsycInfo purporting to measure QOL or HRQOL in JIA. Studies were evaluated based on a set of 8 yes\/no criteria set forth by Gill and Feinstein in 1994.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Thirty\u2010four of 50 studies (68%) purported to measure HRQOL, 13 of 50 (26%) measured QOL, and 3 of 50 (6%) measured both QOL and HRQOL. The descriptive analysis of studies is as follows: 22 of 50 studies (44%) explained and defined the authors' meaning of QOL or HRQOL, 42 of 50 studies (84%) stated and explained the domains of the instruments used to measure QOL and HRQOL, authors gave reasons for using a particular instrument in 25 of 50 studies (50%), 14 of 50 studies (28%) asked the patients to give their own global rating, 4 of 50 study authors (8%) tried to differentiate QOL from HRQOL, 5 of 50 authors (10%) provided an opportunity for patients to add items to an instrument, 30 of 50 study authors (60%) reported providing the patients with an opportunity to rate items of importance, and 18 of 50 studies (36%) reported an overall composite score for QOL or HRQOL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Our results show that the face validity of studies measuring QOL in JIA is not up to the standards and recommendations set forth by Gill and Feinstein in 1994.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.22514","type":"journal-article","created":{"date-parts":[[2014,11,10]],"date-time":"2014-11-10T14:19:15Z","timestamp":1415629155000},"page":"880-884","source":"Crossref","is-referenced-by-count":7,"title":["Critical Appraisal of Studies Measuring Quality of Life in Juvenile Idiopathic Arthritis"],"prefix":"10.1002","volume":"67","author":[{"given":"Nikesh Reddy","family":"Adunuri","sequence":"first","affiliation":[{"name":"University of Sydney Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian Michael","family":"Feldman","sequence":"additional","affiliation":[{"name":"University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2015,5,25]]},"reference":[{"key":"e_1_2_3_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(07)60363-8"},{"key":"e_1_2_3_3_1","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1542\/peds.98.1.84","article-title":"Prevalence of juvenile chronic arthritis in a population of 12 year old children in urban Australia","volume":"98","author":"Manners PJ","year":"1996","journal-title":"Pediatrics"},{"key":"e_1_2_3_4_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.109.1.109"},{"key":"e_1_2_3_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.10863"},{"key":"e_1_2_3_6_1","first-page":"945","article-title":"Long\u2010term health outcomes and quality of life in American and Italian inception cohorts of patients with juvenile rheumatoid arthritis: II. 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