{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,15]],"date-time":"2026-05-15T20:07:39Z","timestamp":1778875659822,"version":"3.51.4"},"reference-count":15,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2016,10,28]],"date-time":"2016-10-28T00:00:00Z","timestamp":1477612800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100006483","name":"AbbVie","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100006483","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2016,12]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>Participation in social roles for persons with chronic disease is important for their quality of life, but interpretation of the data on participation is difficult in the absence of a benchmark. This study aimed to compare social role participation in patients with ankylosing spondylitis (AS) to population controls using the Social Role Participation Questionnaire (SRPQ).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>There were 246 AS patients and 510 population controls who completed the SRPQ, which assesses participation in 11 roles (with scores ranging 1\u20135) across 4 dimensions (importance, satisfaction with performance, satisfaction with time, and physical difficulty), and additionally ranked their 3 most important roles. The ranking of role importance, the SRPQ dimension scores, and the gap between importance and satisfaction with performance of roles were compared between patients and controls.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Patients (62% male; mean\u2009\u00b1\u2009SD age 51\u2009\u00b1\u200912 years) and controls (70% male; mean\u2009\u00b1\u2009SD 42\u2009\u00b1\u200915 years) ranked intimate relationships, relationships with children\/stepchildren\/grandchildren, and employment as the most important roles. Compared to controls, patients gave higher scores on the SRPQ to importance (3.75 versus 3.43), but reported lower satisfaction with performance (3.19 versus 3.58) and greater physical difficulty (3.87 versus 4.67) (<jats:italic>P<\/jats:italic>\u2009\u2264\u20090.05 for all). The largest differences in gaps between importance and satisfaction with performance for patients compared to controls were seen in the physical leisure, hobbies, and traveling and vacation categories, in which patients assigned higher importance but reported especially low satisfaction.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>As society places increasing emphasis on individual responsibility to participate fully in social roles, the current data suggest that health care providers should pay more attention to participation restrictions experienced by patients with AS.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.22907","type":"journal-article","created":{"date-parts":[[2016,4,10]],"date-time":"2016-04-10T08:36:01Z","timestamp":1460277361000},"page":"1899-1905","source":"Crossref","is-referenced-by-count":16,"title":["Social Role Participation in Patients With Ankylosing Spondylitis: A Cross\u2010Sectional Comparison With Population Controls"],"prefix":"10.1002","volume":"68","author":[{"given":"Simon","family":"van Genderen","sequence":"first","affiliation":[{"name":"Maastricht University Medical Center Maastricht The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Guy","family":"Plasqui","sequence":"additional","affiliation":[{"name":"Maastricht University Medical Center Maastricht The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robert","family":"Landew\u00e9","sequence":"additional","affiliation":[{"name":"Amsterdam Medical Center Amsterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Diane","family":"Lacaille","sequence":"additional","affiliation":[{"name":"University of British Columbia and Arthritis Research Centre of Canada Vancouver British Columbia Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne","family":"Arends","sequence":"additional","affiliation":[{"name":"University Medical Center Groningen, University of Groningen, Groningen, The Netherlands, and Medical Center Leeuwarden Leeuwarden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Floris","family":"van Gaalen","sequence":"additional","affiliation":[{"name":"Leiden University Medical Center Leiden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D\u00e9sir\u00e9e","family":"van der Heijde","sequence":"additional","affiliation":[{"name":"Leiden University Medical Center Leiden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Liesbeth","family":"Heuft","sequence":"additional","affiliation":[{"name":"Sint Laurentius Hospital Roermond, Roermond, The Netherlands, and Sint Jans Gasthuis Weert Weert The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jolanda","family":"Luime","sequence":"additional","affiliation":[{"name":"Erasmus Medical Center Rotterdam Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anneke","family":"Spoorenberg","sequence":"additional","affiliation":[{"name":"University Medical Center Groningen, University of Groningen, Groningen, The Netherlands, and Medical Center Leeuwarden Leeuwarden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Monique","family":"Gignac","sequence":"additional","affiliation":[{"name":"Dalla Lana School of Public Health, University of Toronto, and Institute for Work and Health Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Annelies","family":"Boonen","sequence":"additional","affiliation":[{"name":"Annelies Boonen, MD, PhD, Maastricht University Medical Center and Caphri Research Institute, Maastricht University Maastricht The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2016,10,28]]},"reference":[{"key":"e_1_2_5_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/ncprheum0297"},{"key":"e_1_2_5_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2009.10.036"},{"key":"e_1_2_5_4_1","first-page":"2475","article-title":"Identification of the most common problems by patients with ankylosing spondylitis using the international classification of functioning, disability and health","volume":"33","author":"Echteld I","year":"2006","journal-title":"J Rheumatol"},{"key":"e_1_2_5_5_1","first-page":"516","article-title":"Impact of functional impairment in ankylosing spondylitis: impairment, activity limitation, and participation restrictions","volume":"32","author":"Dagfinrud H","year":"2005","journal-title":"J 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