{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T02:59:23Z","timestamp":1787626763308,"version":"build-2736575974"},"reference-count":37,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2017,8,8]],"date-time":"2017-08-08T00:00:00Z","timestamp":1502150400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arthritis Care &amp;amp; Research"],"published-print":{"date-parts":[[2017,9]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>The Patient\u2010Reported Outcomes Measurement Information System (PROMIS) was developed to improve measurement of patient\u2010reported outcomes. We examined performance of the 29\u2010item PROMIS Profile (PROMIS\u201029) in persons with rheumatoid arthritis (RA), osteoarthritis (OA), fibromyalgia (FM), and systemic lupus erythematosus (SLE).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants in the National Data Bank for Rheumatic Diseases completed the PROMIS\u201029, which includes 4\u2010item forms for 7 PROMIS domains. Scales were scored and converted to T scores. Distributions of scale scores were examined, convergent and known\u2010groups validity was tested, and differences in scores from online versus paper questionnaires were examined.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Sample sizes were 4,346 for RA, 727 for OA, 241 for FM, and 240 for SLE. Participants were predominantly female, with a mean disease duration \u226520 years, and were ages \u223c60 years. Large ceiling effects occurred for some PROMIS\u201029 scales. Correlations of PROMIS\u201029 scores with scales measuring similar constructs ranged from high to moderate for RA, OA, and SLE; correlations for FM were markedly lower for some scales. Consistent patterns of worsening PROMIS\u201029 scores with increasing disease severity or declining health status were observed. Differences in scores obtained by online versus paper questionnaires ranged from 0.3 to 2.2 points.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Results provide guarded support for using the PROMIS\u201029 in these conditions. The PROMIS\u201029 4\u2010item static forms appear to identify differences among levels of health and to measure constructs similar to those measured by legacy questionnaires. However, large ceiling effects suggest that measurement may be more precise at the \u201cbad\u201d ends of the scales, which may limit responsiveness, and differences by mode of administration appear to exist.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.23183","type":"journal-article","created":{"date-parts":[[2016,12,28]],"date-time":"2016-12-28T11:56:49Z","timestamp":1482926209000},"page":"1312-1321","source":"Crossref","is-referenced-by-count":94,"title":["Performance of the Patient\u2010Reported Outcomes Measurement Information System 29\u2010Item Profile in Rheumatoid Arthritis, Osteoarthritis, Fibromyalgia, and Systemic Lupus Erythematosus"],"prefix":"10.1002","volume":"69","author":[{"given":"Patricia","family":"Katz","sequence":"first","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sofia","family":"Pedro","sequence":"additional","affiliation":[{"name":"National Data Bank for Rheumatic Diseases Wichita Kansas"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5350-3934","authenticated-orcid":false,"given":"Kaleb","family":"Michaud","sequence":"additional","affiliation":[{"name":"University of Nebraska Medical Center Omaha"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,8,8]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rdc.2016.01.007"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.090358"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/ar3461"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.110402"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2013.07.016"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0138543"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2013-204053"},{"key":"e_1_2_6_9_1","first-page":"2221","article-title":"Validity and measurement precision of the PROMIS physical function item bank and a content validity\u2010driven 20\u2010item short form in rheumatoid arthritis compared with traditional measures","volume":"54","author":"Oude Voshaar R","year":"2015","journal-title":"Rheumatology (Oxford)"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2015.08.039"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22956"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2015.08.038"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2015.08.035"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2015.08.037"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22025"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12891-015-0715-y"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-016-0478-7"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203316631632"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.20591"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.140143"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.1097\/NNR.0000000000000162"},{"key":"e_1_2_6_22_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keq155"},{"key":"e_1_2_6_23_1","unstructured":"WareJJ SnowK KosinskiM GandekB.SF\u201036 health survey: manual and interpretation guide. 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