{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T12:16:28Z","timestamp":1788264988440,"version":"build-2803163510"},"reference-count":22,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2019,2,5]],"date-time":"2019-02-05T00:00:00Z","timestamp":1549324800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["CER\u20101310\u201008323"],"award-info":[{"award-number":["CER\u20101310\u201008323"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000069","name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases","doi-asserted-by":"publisher","award":["K24 AR06312"],"award-info":[{"award-number":["K24 AR06312"]}],"id":[{"id":"10.13039\/100000069","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2019,3]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>In a pilot study, our group showed that an internet\u2010based self\u2010management program improves self\u2010efficacy in systemic sclerosis (<jats:styled-content style=\"fixed-case\">SS<\/jats:styled-content>c). The objective of the current study was to compare an internet\u2010based self\u2010management program to a patient\u2010focused educational book developed to assess measures of self\u2010efficacy and other patient\u2010reported outcomes in patients with <jats:styled-content style=\"fixed-case\">SS<\/jats:styled-content>c.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We conducted a 16\u2010week randomized, controlled trial.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Of the 267 participants who completed baseline questionnaires and were randomized to the intervention (internet: <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"http:\/\/www.selfmanagescleroderma.com\">www.selfmanagescleroderma.com<\/jats:ext-link>) or control (book) group, 123 participants (93%) in the internet group and 124 participants (94%) in the control group completed the 16\u2010week randomized controlled trial (<jats:styled-content style=\"fixed-case\">RCT<\/jats:styled-content>). The mean \u00b1 <jats:styled-content style=\"fixed-case\">SD<\/jats:styled-content> age of all participants was 53.7 \u00b1 11.7 years, 91% were women, and 79.4% had some college or a higher degree. The mean \u00b1 <jats:styled-content style=\"fixed-case\">SD<\/jats:styled-content> disease duration after diagnosis of <jats:styled-content style=\"fixed-case\">SS<\/jats:styled-content>c was 8.97 \u00b1 8.50 years. There were no statistical differences between the 2 groups for the primary outcome measure (Patient\u2010Reported Outcomes Measurement Information System Self\u2010Efficacy for Managing Symptoms: mean change of 0.35 in the internet group versus 0.94 in the control group; <jats:italic>P<\/jats:italic> = 0.47) and secondary outcome measures, except the EuroQol 5\u2010domain instrument visual analog scale score (<jats:italic>P<\/jats:italic> = 0.05). Internet group participants agreed that the self\u2010management modules were of importance to them, the information was presented clearly, and the website was easy to use and at an appropriate reading level.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Our <jats:styled-content style=\"fixed-case\">RCT<\/jats:styled-content> showed that the internet\u2010based self\u2010management website was not statistically superior to an educational patient\u2010focused book in improving self\u2010efficacy and other measures. The participants were enthusiastic about the content and presentation of the self\u2010management website.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.23595","type":"journal-article","created":{"date-parts":[[2018,5,9]],"date-time":"2018-05-09T05:21:44Z","timestamp":1525843304000},"page":"435-447","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":45,"title":["Randomized Controlled Trial to Evaluate an Internet\u2010Based Self\u2010Management Program in Systemic Sclerosis"],"prefix":"10.1002","volume":"71","author":[{"given":"Dinesh","family":"Khanna","sequence":"first","affiliation":[{"name":"University of Michigan  Ann Arbor"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Serrano","sequence":"additional","affiliation":[{"name":"University of Michigan  Ann Arbor"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Veronica J.","family":"Berrocal","sequence":"additional","affiliation":[{"name":"University of Michigan  Ann Arbor"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard M.","family":"Silver","sequence":"additional","affiliation":[{"name":"Medical University of South Carolina  Charleston"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pedro","family":"Cuencas","sequence":"additional","affiliation":[{"name":"Local Leverage Media  Dallas Texas"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon L.","family":"Newbill","sequence":"additional","affiliation":[{"name":"Folkstone Evaluation Anthropology  Pace Florida"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josephine","family":"Battyany","sequence":"additional","affiliation":[{"name":"Scleroderma Foundation Southern California Chapter  Culver City California"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cynthia","family":"Maxwell","sequence":"additional","affiliation":[{"name":"Johns Island South Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary","family":"Alore","sequence":"additional","affiliation":[{"name":"Shelby Township Michigan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Dyas","sequence":"additional","affiliation":[{"name":"Scleroderma Foundation Michigan Chapter  Southfield"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Riggs","sequence":"additional","affiliation":[{"name":"National Scleroderma Foundation  Danvers Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kerri","family":"Connolly","sequence":"additional","affiliation":[{"name":"National Scleroderma Foundation  Danvers Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saville","family":"Kellner","sequence":"additional","affiliation":[{"name":"Lake Industries, Revenue Media Group, and JLS Financial Inc.  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