{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T20:35:36Z","timestamp":1792787736011,"version":"4.5.0"},"reference-count":25,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2019,11,5]],"date-time":"2019-11-05T00:00:00Z","timestamp":1572912000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["A114297"],"award-info":[{"award-number":["A114297"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["U01DP005120"],"award-info":[{"award-number":["U01DP005120"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>We examined psychometric performance of Patient\u2010Reported Outcomes Measurement Information System (<jats:styled-content style=\"fixed-case\">PROMIS<\/jats:styled-content>) measures in a racially\/ethnically and linguistically diverse cohort with systemic lupus erythematosus (<jats:styled-content style=\"fixed-case\">SLE<\/jats:styled-content>).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Data were from the California Lupus Epidemiology Study, a multiracial\/multiethnic cohort of individuals with physician\u2010confirmed <jats:styled-content style=\"fixed-case\">SLE<\/jats:styled-content>. The majority (n = 332) attended in\u2010person research visits that included interviews conducted in English, Spanish, Cantonese, or Mandarin. Up to 12 <jats:styled-content style=\"fixed-case\">PROMIS<\/jats:styled-content> short forms were administered (depending on language availability). An additional 99 individuals completed the interview by phone only. Internal consistency was examined with Cronbach's alpha and item\u2010total correlations. Correlations with the Short Form 36 subscales and both self\u2010reported and physician\u2010assessed disease activity assessed convergent validity. All analyses were repeated within each racial\/ethnic group. Differences in scores by race\/ethnicity were examined in bivariate analyses and by multiple regression analyses controlling for age, sex, disease duration, and disease damage and activity.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The total sample was 30.0% white, 22.3% Hispanic, 10.9% African American, 33.7% Asian, and 3.0% other race\/ethnicity. Seventy\u2010seven percent of interviews were conducted in\u2010person. Non\u2010English interviews were conducted in 26.0% of the Hispanic subjects and 18.6% of the Asian subjects. Each scale demonstrated adequate reliability and validity overall and within racial\/ethnic groups. Minimal floor effects were observed, but ceiling effects were noted. Missing item responses were minimal for most scales, except for items related to work. No differences were noted by mode of administration or by language of administration among Hispanics and Asians. After accounting for differences in disease status, age, and sex, few differences in mean scores between whites and other racial\/ethnic groups were noted.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">PROMIS<\/jats:styled-content> measures appear reliable and valid in persons with lupus across racial\/ethnic groups.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.23797","type":"journal-article","created":{"date-parts":[[2018,10,24]],"date-time":"2018-10-24T10:15:37Z","timestamp":1540376137000},"page":"1630-1639","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":32,"title":["Psychometric Evaluation of the National Institutes of Health Patient\u2010Reported Outcomes Measurement Information System in a Multiracial, Multiethnic Systemic Lupus Erythematosus Cohort"],"prefix":"10.1002","volume":"71","author":[{"given":"Patricia","family":"Katz","sequence":"first","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jinoos","family":"Yazdany","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Trupin","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Rush","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charles G.","family":"Helmick","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention  Atlanta Georgia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3919-0721","authenticated-orcid":false,"given":"Louise B.","family":"Murphy","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention  Atlanta Georgia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6017-4921","authenticated-orcid":false,"given":"Cristina","family":"Lanata","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindsey A.","family":"Criswell","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"Dall'Era","sequence":"additional","affiliation":[{"name":"University of California San Francisco"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,11,5]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.20636"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203308090031"},{"key":"e_1_2_6_4_1","unstructured":"US Department of Health and Human Services.Guidance for industry. 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