{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T20:50:49Z","timestamp":1792270249400,"version":"4.4.0"},"reference-count":46,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2019,11,29]],"date-time":"2019-11-29T00:00:00Z","timestamp":1574985600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>The implementation of value\u2010based health care in inflammatory arthritis requires a standardized set of modifiable outcomes and risk\u2010adjustment variables that is feasible to implement worldwide.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The International Consortium for Health Outcomes Measurement (<jats:styled-content style=\"fixed-case\">ICHOM<\/jats:styled-content>) assembled a multidisciplinary working group that consisted of 24 experts from 6 continents, including 6 patient representatives, to develop a standard set of outcomes for inflammatory arthritis. The process followed a structured approach, using a modified Delphi process to reach consensus on the following decision areas: conditions covered by the set, outcome domains, outcome measures, and risk\u2010adjustment variables. Consensus in areas 2 to 4 were supported by systematic literature reviews and consultation of experts.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The <jats:styled-content style=\"fixed-case\">ICHOM<\/jats:styled-content> Inflammatory Arthritis Standard Set covers patients with rheumatoid arthritis (<jats:styled-content style=\"fixed-case\">RA<\/jats:styled-content>), axial spondyloarthritis, psoriatic arthritis, and juvenile idiopathic arthritis (<jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>). We recommend that outcomes regarding pain, fatigue, activity limitations, overall physical and mental health impact, work\/school\/housework ability and productivity, disease activity, and serious adverse events be collected at least annually. Validated measures for patient\u2010reported outcomes were endorsed and linked to common reporting metrics. Age, sex at birth, education level, smoking status, comorbidities, time since diagnosis, and rheumatoid factor and anti\u2010citrullinated protein antibody lab testing for <jats:styled-content style=\"fixed-case\">RA<\/jats:styled-content> and <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> should be collected as risk\u2010adjustment variables.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>We present the <jats:styled-content style=\"fixed-case\">ICHOM<\/jats:styled-content> inflammatory arthritis Standard Set of outcomes, which enables health care providers to implement the value\u2010based health care framework and compare outcomes that are important to patients with inflammatory arthritis.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.23799","type":"journal-article","created":{"date-parts":[[2018,10,24]],"date-time":"2018-10-24T17:07:16Z","timestamp":1540400836000},"page":"1556-1565","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":74,"title":["International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group"],"prefix":"10.1002","volume":"71","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2438-9973","authenticated-orcid":false,"given":"Martijn A. 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