{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T09:30:21Z","timestamp":1791538221589,"version":"4.3.4"},"reference-count":36,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2022,9,19]],"date-time":"2022-09-19T00:00:00Z","timestamp":1663545600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Arthritis Care &amp;amp; Research"],"published-print":{"date-parts":[[2023,2]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>The aim of this work was to provide evidence of validity and reliability for 4 parent\/child\u2013reported outcome measures included in the Outcome Measures in Rheumatology juvenile idiopathic arthritis core domain set: the evaluation of the child's pain and level of disease activity, the assessment of morning stiffness duration, and an active joint count for proxy\/self\u2010assessment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Patients were included in the multinational study Epidemiology Treatment and Outcome of Childhood Arthritis. Criterion validity was assessed by examining the correlation of the 4 tested measures with physician measures and the clinical Juvenile Arthritis Disease Activity Score in 10 joints (cJADAS10) in the whole sample and after grouping patients by International League of Associations for Rheumatology (ILAR) category, geographic area, and education level. Reliability was assessed comparing 2 visits 7\u201314\u2009days apart with intraclass correlation coefficients (ICCs).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 8,643 parents and 6,060 patients had all the evaluations available. Correlations of tested measures were moderate (0.4\u20130.7) with physician\u2010reported measures. The level of correlation with the cJADAS10 remained stable after grouping patients by ILAR category, geographic areas, and level of education of the parent filling the questionnaire. In 442 parents and 344 children, ICCs ranged between 0.79 and 0.87 for parents and 0.81 and 0.88 for children.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The 4 tested parent\/child\u2013reported outcomes showed good criterion validity and excellent reliability. These tools can be considered for remote patient assessment, when in\u2010person evaluation might not be possible.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.24855","type":"journal-article","created":{"date-parts":[[2022,1,10]],"date-time":"2022-01-10T09:43:48Z","timestamp":1641807828000},"page":"391-400","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Validity and Reliability of Four Parent\/Patient\u2013Reported Outcome Measures for Juvenile Idiopathic Arthritis Remote Monitoring"],"prefix":"10.1002","volume":"75","author":[{"given":"E. H. 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Giannina Gaslini, Genoa, Italy, and Saint Petersburg State Pediatric Medical University  Saint Petersburg Russia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marta","family":"Mazzoni","sequence":"additional","affiliation":[{"name":"University of Genoa  Genoa Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Sutera","sequence":"additional","affiliation":[{"name":"IRCCS Istituto Giannina Gaslini, Genoa, and Gaetano Martino University Hospital, University of Messina  Messina Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3594-7387","authenticated-orcid":false,"given":"Nuray Aktay","family":"Ayaz","sequence":"additional","affiliation":[{"name":"Kanuni Sultan S\u00fcleyman Education and Research Hospital  Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Inmaculada Calvo","family":"Penades","sequence":"additional","affiliation":[{"name":"Hospital Universitario y Polit\u00e9cnico la Fe  Valencia Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tamas","family":"Constantin","sequence":"additional","affiliation":[{"name":"Semmelweis University  Budapest Hungary"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Troels","family":"Herlin","sequence":"additional","affiliation":[{"name":"Aarhus University Hospital  Aarhus Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheila K.","family":"Oliveira","sequence":"additional","affiliation":[{"name":"Universidade Federal do Rio de Janeiro  Rio de Janeiro Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marite","family":"Rygg","sequence":"additional","affiliation":[{"name":"Norwegian University of Science and Technology and St. Olavs University Hospital of Trondheim  Trondheim 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