{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,27]],"date-time":"2025-11-27T02:22:14Z","timestamp":1764210134598,"version":"build-2065373602"},"reference-count":49,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2025,1,25]],"date-time":"2025-01-25T00:00:00Z","timestamp":1737763200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["168990"],"award-info":[{"award-number":["168990"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Arthritis Care &amp; Research"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>This study examined the lived employment experiences of young adults with childhood\u2010 and adult\u2010onset systemic lupus erythematosus (SLE).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants were recruited from three Canadian lupus clinics and asked to complete semistructured, qualitative video\/phone interviews. Interviews were transcribed verbatim and analyzed using thematic analysis. Participants were recruited until consolidated thematic saturation.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twenty\u2010one participants (median age: 27 years)\u201414 woman, 5 men, and 2 gender\u2010nonconforming individuals\u2014were included. Thirty\u2010eight percent had childhood\u2010onset SLE. Seventy\u2010one percent of the participants were employed, 19% were looking for work, and 10% were not working and not looking for work. Qualitative analysis revealed two themes. 1) \u201cMaintaining control internally and externally\u201d: Participants described how the ability to exercise control over their symptoms (internally) and their job (externally) allowed them to gain and maintain employment. 2) \u201cTough choices: Health, then work and everything else\u201d: Participants described challenges in maintaining a balance among their health, other social responsibilities, and work because of their SLE\u2010related limitations. Within this theme, participants also offered advice on how others could best manage the conflicting demands on their time and energy, which was summarized in a subtheme called \u201cRecommendations for others\u2014\u2018take care of yourself first.\u2019\u201d<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>When faced with the competing demands of their health (managing their SLE) and work, many young adults with SLE choose to prioritize their health, sacrificing their work or social responsibilities. Efforts aimed at promoting the employment success of young adults with SLE should inform individuals of these challenges and offer potential coping strategies.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr.25495","type":"journal-article","created":{"date-parts":[[2025,1,3]],"date-time":"2025-01-03T00:13:52Z","timestamp":1735863232000},"page":"710-719","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Lived Employment Experiences of Young Adults With Childhood\u2010 and Adult\u2010Onset Systemic Lupus Erythematosus: A Multicenter Canadian Qualitative Study"],"prefix":"10.1002","volume":"77","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7426-3386","authenticated-orcid":false,"given":"Michael A.","family":"Golding","sequence":"first","affiliation":[{"name":"University of Manitoba  Winnipeg Manitoba Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fareha","family":"Nishat","sequence":"additional","affiliation":[{"name":"The Hospital for Sick Children and University of Toronto  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kaitlyn A.","family":"Merrill","sequence":"additional","affiliation":[{"name":"University of Manitoba  Winnipeg Manitoba Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4065-4151","authenticated-orcid":false,"given":"Diane","family":"Lacaille","sequence":"additional","affiliation":[{"name":"University of British Columbia and Arthritis Research Canada  Vancouver British Columbia Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Umut","family":"O\u011fuzo\u011flu","sequence":"additional","affiliation":[{"name":"University of Manitoba  Winnipeg Manitoba Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer L. 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