{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T07:34:51Z","timestamp":1780472091611,"version":"3.54.1"},"reference-count":15,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2019,5,9]],"date-time":"2019-05-09T00:00:00Z","timestamp":1557360000000},"content-version":"vor","delay-in-days":8,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ACR Open Rheumatology"],"published-print":{"date-parts":[[2019,5]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>The objective of this study was to identify patient\u2010reported school barriers and their associated impact in juvenile idiopathic arthritis (<jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional observational study of children aged 8 to 17, diagnosed with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>, and followed in the rheumatology clinic\/Alberta Children's Hospital was performed. Demographics, diagnosis, and disease course were obtained from health records. A questionnaire was administered to the child to assess the barriers experienced by <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> patients at school. The questionnaire collected information about school attendance\/performance, impact of <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> symptoms (eg, pain and fatigue), physical challenges and accommodations, communication, participation and peers, and school support. Descriptive statistics were used to analyze the data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 98 children with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> were recruited into the study. The median age of participants was 13 years (interquartile range 11\u201015). The <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> subtypes in this cohort reflected the normal <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> distribution. Physical challenges at school (eg, gym, writing, and sitting for long periods of time) were reported by 42.1% of patients. Accommodations (eg, modified gym, accommodation letter, and computer access) were used by 23% of patients. The inability to participate in activities in class or outside with their peers occurred for 32.2% of patients and in gym for 40.7% of patients. Social concerns included embarrassment from talking about their illness, worry regarding being treated differently, and being told they were fabricating their illness.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Children with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content> experienced barriers at school, especially physical challenges, with a need for accommodations in a proportion of children. Decreased participation and increased social anxiety were additional key barriers.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr2.1023","type":"journal-article","created":{"date-parts":[[2019,5,9]],"date-time":"2019-05-09T12:58:19Z","timestamp":1557406699000},"page":"182-187","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":30,"title":["Patient\u2010Reported Barriers at School for Children with Juvenile Idiopathic Arthritis"],"prefix":"10.1002","volume":"1","author":[{"given":"Kelsey","family":"Chomistek","sequence":"first","affiliation":[{"name":"University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicole","family":"Johnson","sequence":"additional","affiliation":[{"name":"University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebeka","family":"Stevenson","sequence":"additional","affiliation":[{"name":"University of 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