{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:42:07Z","timestamp":1788309727044,"version":"build-2803163510"},"reference-count":22,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2021,3,12]],"date-time":"2021-03-12T00:00:00Z","timestamp":1615507200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000142","name":"Arthritis Society","doi-asserted-by":"publisher","award":["Arthritis Centre Grant 19\u20100517"],"award-info":[{"award-number":["Arthritis Centre Grant 19\u20100517"]}],"id":[{"id":"10.13039\/501100000142","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100008360","name":"Hamilton Health Sciences","doi-asserted-by":"publisher","award":["New Investigator Fund 19458"],"award-info":[{"award-number":["New Investigator Fund 19458"]}],"id":[{"id":"10.13039\/100008360","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ACR Open Rheumatology"],"published-print":{"date-parts":[[2021,4]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>The transition from pediatric to adult rheumatology care represents a particularly vulnerable time for patients with juvenile idiopathic arthritis (JIA) and childhood\u2010onset systemic lupus erythematosus (cSLE). Improving self\u2010management skills is important in optimizing health care transition. The study\u2019s objectives were to 1) examine variability in transition readiness of adolescents and young adults within and between different ages, sexes, and disease types; 2) determine the association between age and transition readiness; and 3) identify specific challenges to transition readiness for adolescents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Over 1 year, patients 14 to 20 years of age with JIA or cSLE were recruited from pediatric transition and young adult clinics at a single academic institution. Participants completed the 14\u2010item Transition\u2010Q at a single time point. Total scores range from 0 to 100; higher scores indicate greater health care self\u2010management skills as a proxy for transition readiness. Descriptive statistics summarized patient characteristics and Transition\u2010Q scores for the population. Regression analyses determined the association between age, sex, and disease type and Transition\u2010Q score.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Among 70 participants, 61 had JIA and 9 cSLE (mean disease duration 4.6 years). The mean (SD) total Transition\u2010Q score was 59.8 (14.9). Age was significantly associated with Transition\u2010Q score (standardized\n                      <jats:italic>\u03b2<\/jats:italic>\n                      = 0.372l\n                      <jats:italic>P<\/jats:italic>\n                      = 0.002). The most commonly reported challenges were seeing the physician alone (without parents), making one\u2019s own appointments, picking up prescriptions, and independent transportation for appointments.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Transition readiness appears to increase with patient age. There is significant variability in Transition\u2010Q scores between patients of the same age, suggesting that an individualized approach to improving self\u2010management skills is necessary.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/acr2.11237","type":"journal-article","created":{"date-parts":[[2021,3,12]],"date-time":"2021-03-12T12:00:21Z","timestamp":1615550421000},"page":"260-265","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":25,"title":["Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood\u2010Onset Systemic Lupus Erythematosus"],"prefix":"10.1002","volume":"3","author":[{"given":"Jeanine","family":"McColl","sequence":"first","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Teresa","family":"Semalulu","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen A.","family":"Beattie","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Arzoo","family":"Alam","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steffy","family":"Thomas","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Herrington","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jan Willem","family":"Gorter","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tania","family":"Cellucci","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Garner","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liane","family":"Heale","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Matsos","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6412-1029","authenticated-orcid":false,"given":"Michelle","family":"Batthish","sequence":"additional","affiliation":[{"name":"McMaster University Hamilton Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,3,12]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/1054-139X(93)90143-D"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.39554"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-015-0040-x"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22611"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/1546-0096-8-2"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1053\/berh.2002.0233"},{"key":"e_1_2_8_8_1","first-page":"1989","article-title":"Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort","volume":"29","author":"Oen K","year":"2002","journal-title":"J Rheumatol"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1186\/1546-0096-7-13"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2011.05.038"},{"key":"e_1_2_8_11_1","first-page":"1086","article-title":"Patients with juvenile idiopathic arthritis become adults: the role of transitional care","volume":"36","author":"Conti F","year":"2018","journal-title":"Clin Exp Rheumatol"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13075-017-1502-y"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.semarthrit.2016.06.003"},{"key":"e_1_2_8_14_1","unstructured":"JWGorter AmariaK CassidyC DiRezzeB GrantC GrewalK et al.Teens Reaching Adulthood: Needs and Support for Improved Transitional Care in Ontario (TRANSITION). Presented at the 8th Annual Health Care Transition Research Consortium; 2016 October 26; Houston TX."},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jspn.12199"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-017-0197-6"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12207"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12241"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11336-010-9154-8"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.23739"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1177\/0193945919875470"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203316640913"},{"key":"e_1_2_8_23_1","first-page":"163","article-title":"Disease activity and dropout in young persons with juvenile idiopathic arthritis in transition of care: a longitudinal observational study","volume":"36","author":"Van Pelt PA","year":"2018","journal-title":"Clin Exp Rheumatol"}],"container-title":["ACR Open Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/acr2.11237","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/acr2.11237","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/acrjournals.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/acr2.11237","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,2]],"date-time":"2025-10-02T15:26:30Z","timestamp":1759418790000},"score":1,"resource":{"primary":{"URL":"https:\/\/acrjournals.onlinelibrary.wiley.com\/doi\/10.1002\/acr2.11237"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,3,12]]},"references-count":22,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2021,4]]}},"alternative-id":["10.1002\/acr2.11237"],"URL":"https:\/\/doi.org\/10.1002\/acr2.11237","archive":["Portico"],"relation":{},"ISSN":["2578-5745","2578-5745"],"issn-type":[{"value":"2578-5745","type":"print"},{"value":"2578-5745","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,3,12]]},"assertion":[{"value":"2020-11-25","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-01-27","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-03-12","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}