{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,20]],"date-time":"2026-06-20T06:35:39Z","timestamp":1781937339463,"version":"3.54.5"},"reference-count":42,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,11,17]],"date-time":"2021-11-17T00:00:00Z","timestamp":1637107200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["acrjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["ACR Open Rheumatology"],"published-print":{"date-parts":[[2022,2]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>The study objective was to test the acceptability of a self\u2010management program (SMP) for adolescents with juvenile idiopathic arthritis (JIA) focused on disease information, self\u2010management, and social support needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This study was conducted using inductive qualitative methods to explore the acceptability of an in\u2010person\/videoconference SMP. Two groups of four adolescents with JIA (mean age\u00a0=\u00a013.5, SD\u00a0<jats:italic>=<\/jats:italic>\u00a00.8) and two groups of pediatric rheumatology health care professionals (n\u00a0=\u00a04, n\u00a0=\u00a05) participated in four feedback sessions each. The SMP was presented to study participants, and feedback was provided on the content, format, and structure of the program. Thematic analysis was used to analyze the data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Adolescents felt that the content was appropriate and would be effective in supporting self\u2010management of their arthritis. Participants advised that the trustworthiness of the information would be increased if a rheumatology health care provider facilitated the session. Potential barriers to participation included distance and availability (weekdays and times), but the option for videoconference\u2010based participation was an appropriate solution to both of these issues. Minor changes were made to content and format, and required changes were made to address participant recommendations for improvement.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study confirmed the acceptability of an in\u2010person\/videoconference SMP for patients with JIA. Modifications were made to the SMP based on the focus group feedback, and future directions include a pilot randomized controlled trial to assess feasibility and preliminary effectiveness of the program.<\/jats:p><\/jats:sec>","DOI":"10.1002\/acr2.11373","type":"journal-article","created":{"date-parts":[[2021,11,17]],"date-time":"2021-11-17T21:58:45Z","timestamp":1637186325000},"page":"142-151","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Acceptability of an Adolescent <scp>Self\u2010Management<\/scp> Program for Juvenile Idiopathic Arthritis"],"prefix":"10.1002","volume":"4","author":[{"given":"Kelsey","family":"Chomistek","sequence":"first","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3761-237X","authenticated-orcid":false,"given":"Cheryl","family":"Barnabe","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"McCaig Institute for Bone and Joint Health, Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Syeda Farwa","family":"Naqvi","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn A.","family":"Birnie","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Alberta Children's Hospital Research Institute, Cumming School of medicine, University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicole","family":"Johnson","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nadia","family":"Luca","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Alberta Children's Hospital Research Institute, Cumming School of medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paivi","family":"Miettunen","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria J.","family":"Santana","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"},{"name":"Alberta Children's Hospital Research Institute, Cumming School of medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Stinson","sequence":"additional","affiliation":[{"name":"Lawrence S. Bloomberg Faculty of Nursing, University of Toronto and Research Institute, The Hospital for Sick Children  Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8142-8946","authenticated-orcid":false,"given":"Heinrike","family":"Schmeling","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"McCaig Institute for Bone and Joint Health, Cumming School of Medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Alberta Children's Hospital Research Institute, Cumming School of medicine, University of Calgary  Calgary Alberta Canada"},{"name":"Department of Pediatrics Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,11,17]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.4274\/balkanmedj.2017.0111"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/1546-0096-8-20"},{"key":"e_1_2_8_4_1","unstructured":"Adolescent health and development.World Health Organization. October 19 2020. URL:https:\/\/www.who.int\/maternal_child_adolescent\/topics\/adolescence\/development\/en\/."},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/RHU.0b013e31829d4e82"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.21695"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1546-0096-9-35"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.23244"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/21679169.2017.1342865"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2016.02.012"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2013.785605"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0029-6465(22)01852-7"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0220116"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-publhealth-040218-044008"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1089\/tmj.2013.0057"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.8090"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/1357633X18775855"},{"key":"e_1_2_8_18_1","unstructured":"J Am Med Inform Assoc"},{"key":"e_1_2_8_19_1","unstructured":"J Adolesc Health"},{"key":"e_1_2_8_20_1","doi-asserted-by":"crossref","unstructured":"Michaud TL Zhou J McCarthy MA Siahpush M Su D. Costs of home\u2010based telemedicine programs: a systematic review. 2018;34:410\u20138.","DOI":"10.1017\/S0266462318000454"},{"key":"e_1_2_8_21_1","article-title":"Development and acceptability of an adolescent self\u2010management program for juvenile idiopathic arthritis [abstract]. Arthritis","volume":"4","author":"Chomistek K","year":"2020","journal-title":"Rheumatol"},{"key":"e_1_2_8_22_1","volume-title":"Ontario Agency for Health Protection and Promotion (Public Health Ontario). Planning health promotion programs: introductory workbook [ebook]","year":"2018"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.1349"},{"key":"e_1_2_8_24_1","volume-title":"Development and acceptability of an adolescent self\u2010management program for juvenile idiopathic arthritis [Unpublished master's thesis]","author":"Chomistek K.","year":"2020"},{"key":"e_1_2_8_25_1","first-page":"448","volume-title":"Qualitative inquiry & research design: choosing among five approaches","author":"Creswell JW","year":"2013"},{"key":"e_1_2_8_26_1","article-title":"Theme in qualitative content analysis and thematic analysis","volume":"20","author":"SS Vaismoradi M","year":"2019","journal-title":"Forum: Qual Soc Res"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.1.47"},{"key":"e_1_2_8_28_1","first-page":"120","volume-title":"Qualitative research methods: a data collector's field guide","author":"Mack N","year":"2005"},{"key":"e_1_2_8_29_1","doi-asserted-by":"crossref","first-page":"284","DOI":"10.4135\/9781849209823","volume-title":"Researching children's experience","author":"Greene S","year":"2005"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1177\/1098214005283748"},{"key":"e_1_2_8_31_1","unstructured":"NVivo qualitative data analysis software; QSR International Pty Ltd. Version 12 2019."},{"key":"e_1_2_8_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/104973200129118453"},{"key":"e_1_2_8_33_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.091327"},{"key":"e_1_2_8_34_1","doi-asserted-by":"publisher","DOI":"10.2147\/OARRR.S122015"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-016-0108-2"},{"key":"e_1_2_8_36_1","doi-asserted-by":"publisher","DOI":"10.2196\/16407"},{"key":"e_1_2_8_37_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-015-0032-x"},{"key":"e_1_2_8_38_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.1790090108"},{"key":"e_1_2_8_39_1","doi-asserted-by":"publisher","DOI":"10.1080\/030097401317148507"},{"key":"e_1_2_8_40_1","unstructured":"[ask the author to supply \u2013 wasn't on origianl list]"},{"key":"e_1_2_8_41_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsy066"},{"key":"e_1_2_8_42_1","doi-asserted-by":"publisher","DOI":"10.1177\/1367493511430679"},{"key":"e_1_2_8_43_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/cyg113"}],"container-title":["ACR Open Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/acr2.11373","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/acr2.11373","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/acrjournals.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/acr2.11373","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,2]],"date-time":"2025-10-02T15:45:50Z","timestamp":1759419950000},"score":1,"resource":{"primary":{"URL":"https:\/\/acrjournals.onlinelibrary.wiley.com\/doi\/10.1002\/acr2.11373"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,11,17]]},"references-count":42,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2022,2]]}},"alternative-id":["10.1002\/acr2.11373"],"URL":"https:\/\/doi.org\/10.1002\/acr2.11373","archive":["Portico"],"relation":{},"ISSN":["2578-5745","2578-5745"],"issn-type":[{"value":"2578-5745","type":"print"},{"value":"2578-5745","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,11,17]]},"assertion":[{"value":"2021-06-18","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-10-11","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-11-17","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}