{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2023,11,15]],"date-time":"2023-11-15T05:07:18Z","timestamp":1700024838799},"reference-count":37,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2007,12,27]],"date-time":"2007-12-27T00:00:00Z","timestamp":1198713600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["American J Hematol"],"published-print":{"date-parts":[[2008,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>In recent years, there has been a growing interest in the assessment of quality of life (QOL) issues, particularly in chronic debilitating conditions. Several instruments have been developed, tested, and validated in the general population and in other chronic diseases; however, few studies have examined QOL issues in adults with sickle cell disease (SCD). We developed Sickle Cell Impact Measurement Scale (SIMS), an instrument for measuring the QOL of adults with SCD. The 142\u2010item multi\u2010dimensional SIMS questionnaire was developed using 4 validated instruments and additional questions based upon recommendations of patient focus groups. The SIMS was self\u2010administered to 106 SCD and 45 rheumatoid arthritis (RA) patients over 4 sites. SIMS was evaluated on measures of both internal consistency and construct validity. Item reduction was performed based on results of factor analysis. The SIMS achieved good internal consistency, with a Cronbach's alpha coefficient reported of 0.86, and distinguished between patients with SCD and RA. Overall, QOL did not differ significantly among SCD and RA patients. However, SCD patients scored higher in both physical and social domains, which was expected and reflected the differences in the pathophysiology of each disease. The SIMS is a reliable, valid, and responsive questionnaire, which functions well as a discriminative instrument for the measure of health\u2010related QOL (HRQOL) of adults with SCD. The SIMS is currently being administered to adults with SCD across several centers for further validation to become a disease\u2010specific, global QOL instrument. Am. J. Hematol., 2008. \u00a9 2007 Wiley\u2010Liss, Inc.<\/jats:p>","DOI":"10.1002\/ajh.21146","type":"journal-article","created":{"date-parts":[[2007,12,27]],"date-time":"2007-12-27T14:17:37Z","timestamp":1198765057000},"page":"558-562","source":"Crossref","is-referenced-by-count":7,"title":["Development and validation of SIMS: An instrument for measuring quality of life of adults with sickle cell disease"],"prefix":"10.1002","volume":"83","author":[{"given":"Patricia","family":"Adams\u2010Graves","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kimberly","family":"Lamar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cage","family":"Johnson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pat","family":"Corley","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2007,12,27]]},"reference":[{"key":"e_1_2_1_2_2","first-page":"233","volume-title":"Sickle Cell Disease Basic Principles and Clinical Practice","author":"Embury S","year":"1994"},{"key":"e_1_2_1_3_2","first-page":"531","volume-title":"Sickle Cell Disease Basic Principles and Clinical Practice","year":"1994"},{"key":"e_1_2_1_4_2","first-page":"581","volume-title":"Willliams Hematology","author":"Beutler E","year":"2001"},{"key":"e_1_2_1_5_2","first-page":"3","article-title":"Health related quality of life in sickle cell patients. The PiSCES project","volume":"29","author":"McClish DK","year":"2005","journal-title":"Health Qual Life Outcomes"},{"key":"e_1_2_1_6_2","doi-asserted-by":"crossref","first-page":"662","DOI":"10.7326\/0003-4819-118-8-199304150-00009","article-title":"Measuring health\u2010related quality of life","volume":"118","author":"Guyatt GH","year":"1993","journal-title":"Ann Intern Med"},{"key":"e_1_2_1_7_2","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/35.3.275"},{"key":"e_1_2_1_8_2","doi-asserted-by":"publisher","DOI":"10.1016\/0021-9681(87)90028-2"},{"key":"e_1_2_1_9_2","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.67.3.320"},{"key":"e_1_2_1_10_2","first-page":"327","article-title":"Comprehensibility of measures of health\u2010related quality of life in minority and low\u2010income patients","volume":"94","author":"Lubetkin EL","year":"2002","journal-title":"J Natl Medical Assoc"},{"key":"e_1_2_1_11_2","volume-title":"Conceptualization and Measurement of Health for Adults in the Health Insurance Study, Vol. 8: Overview","author":"Brook RH","year":"1979"},{"key":"e_1_2_1_12_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.mph.0000136453.93704.2e"},{"key":"e_1_2_1_13_2","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1097\/00005650-199303000-00006","article-title":"The MOS 36\u2010item short\u2010form health survey (SF\u201036). II. Psychometrick and clinical tests of validity in measuring physical and mental health constructs","volume":"32","author":"McHorney C","year":"1993","journal-title":"Med Care"},{"key":"e_1_2_1_14_2","first-page":"785","article-title":"The AIMS approach to health status measurement: Conceptual background and measurement properties","volume":"9","author":"Meenan RF","year":"1982","journal-title":"J Rheumatol"},{"key":"e_1_2_1_15_2","doi-asserted-by":"publisher","DOI":"10.1002\/art.1780250903"},{"key":"e_1_2_1_16_2","doi-asserted-by":"publisher","DOI":"10.1002\/art.1780271204"},{"key":"e_1_2_1_17_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.1994.12.3.608"},{"key":"e_1_2_1_18_2","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-116-2-129"},{"issue":"2","key":"e_1_2_1_19_2","first-page":"S29","article-title":"Health\u2010related quality\u2010of\u2010life issues: Optimizing patient outcomes","volume":"45","author":"Baker GA","year":"1995","journal-title":"Neurology"},{"issue":"5","key":"e_1_2_1_20_2","first-page":"109","article-title":"Quality of life as a new end point","author":"Kosmidis P","year":"1996","journal-title":"Chest"},{"key":"e_1_2_1_21_2","first-page":"281","article-title":"Quality of life: A review","volume":"66","author":"Hoffman LG","year":"1995","journal-title":"J Am Optom Assoc"},{"key":"e_1_2_1_22_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1008928518577"},{"key":"e_1_2_1_23_2","first-page":"36","article-title":"Use of focus groups for pain and quality of life assessment in adults with sickle cell disease","volume":"12","author":"Strickland OL","year":"2001","journal-title":"J Natl Black Nurses Assoc"},{"key":"e_1_2_1_24_2","doi-asserted-by":"publisher","DOI":"10.1089\/107830299311916"},{"key":"e_1_2_1_25_2","first-page":"533","article-title":"Depression in sickle cell disease","volume":"95","author":"Hasan SP","year":"2003","journal-title":"J Natl Med Assoc"},{"key":"e_1_2_1_26_2","doi-asserted-by":"publisher","DOI":"10.1348\/135910702760213724"},{"key":"e_1_2_1_27_2","doi-asserted-by":"publisher","DOI":"10.1348\/135910702760213715"},{"key":"e_1_2_1_28_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.nmd.0000158375.73779.50"},{"key":"e_1_2_1_29_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2141.2005.05622.x"},{"key":"e_1_2_1_30_2","doi-asserted-by":"publisher","DOI":"10.1002\/1097-4679(198409)40:5<1170::AID-JCLP2270400508>3.0.CO;2-6"},{"key":"e_1_2_1_31_2","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.57.6.725"},{"key":"e_1_2_1_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0033-3182(82)73062-2"},{"key":"e_1_2_1_33_2","doi-asserted-by":"publisher","DOI":"10.1097\/00007611-198806000-00015"},{"key":"e_1_2_1_34_2","doi-asserted-by":"publisher","DOI":"10.1016\/S1096-6374(98)80011-7"},{"key":"e_1_2_1_35_2","volume-title":"PAIS and PAIS\u2010SR: Administration, Scoring and Procedures Manual\u2010I","author":"Derogatis LR","year":"1983"},{"key":"e_1_2_1_36_2","volume-title":"Scoring and Procedures Manual for PAIS","author":"Derogatis LR","year":"1976"},{"key":"e_1_2_1_37_2","volume-title":"Quality of Life Assessements in Clinical Trials","author":"Jaeschke R","year":"1990"},{"key":"e_1_2_1_38_2","doi-asserted-by":"publisher","DOI":"10.1177\/014662168400800306"}],"container-title":["American Journal of Hematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fajh.21146","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ajh.21146","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,14]],"date-time":"2023-11-14T10:22:13Z","timestamp":1699957333000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajh.21146"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,12,27]]},"references-count":37,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2008,7]]}},"alternative-id":["10.1002\/ajh.21146"],"URL":"https:\/\/doi.org\/10.1002\/ajh.21146","archive":["Portico"],"relation":{},"ISSN":["0361-8609","1096-8652"],"issn-type":[{"value":"0361-8609","type":"print"},{"value":"1096-8652","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,12,27]]}}}