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Treatment involves protecting joints, preventing injuries, and managing symptoms\/comorbidities. Pediatric EDS\u2010HT patients often see multiple medical providers; however, data on healthcare utilization (HCU) in this population are lacking. This retrospective, electronic chart review examines HCU data 1\u2009year prior and subsequent to a new diagnosis of EDS\u2010HT using Villefranche criteria. Demographics, diagnoses, and HCU (office visits, therapies, hospital encounters\/procedures, and tests) were obtained for <jats:italic>N<\/jats:italic>\u00a0=\u00a0102 youth attending a Connective Tissue Disorder Clinic over a 21\u2010month timeframe. After EDS\u2010HT diagnosis, HCU patterns shifted to reflect greater involvement of therapy (physical, psychological, and occupational) and symptom management. More genetics, rheumatology, and orthopedics visits occurred prediagnosis, and more physical therapy, pain management, cardiology, and neurology visits occurred postdiagnosis. Testing and hospital encounter\/procedure frequencies did not change. Overall, the pattern of HCU changed from diagnostic to treatment, in accordance with evidence\u2010based EDS\u2010HT care. Understanding HCU patterns of pediatric patients with EDS\u2010HT can elucidate patient interaction with the health care system, with the potential to inform and improve the standard of care.<\/jats:p>","DOI":"10.1002\/ajmg.a.62625","type":"journal-article","created":{"date-parts":[[2022,1,6]],"date-time":"2022-01-06T09:58:12Z","timestamp":1641463092000},"page":"1109-1117","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Healthcare utilization among youth with <scp>Ehlers\u2013Danlos<\/scp> syndrome hypermobile type"],"prefix":"10.1002","volume":"188","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0140-4763","authenticated-orcid":false,"given":"Sara E.","family":"Williams","sequence":"first","affiliation":[{"name":"Department of Pediatrics University of Cincinnati College of Medicine  Cincinnati Ohio USA"},{"name":"Division of Behavioral Medicine and Clinical Psychology Cincinnati Children's Hospital Medical 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