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Previous research focused on the genetic counseling process for the child and maternal family, despite calls for more research on the support needs of fathers. This study explored experiences and support needs of fathers at least 1\u2009year after their child's FXS diagnosis to understand barriers and enablers and optimize health outcomes for the family. In\u2010depth interviews were conducted with 11 fathers recruited through the Australian Genetics of Learning Disability Service and the Fragile X Association. Deidentified transcripts were analyzed using thematic analysis guided by an inductive approach. Four themes emerged: (1) making life easier through understanding\u2014yesterday and today, (2) the path to a new normal\u2014today and tomorrow, (3) seeking information and support, and (4) what men want. Fathers reported diagnostic odysseys, postdiagnostic grief, and challenges adjusting. They highlighted difficulties in understanding their child's unique behaviors and needs, responding to their partner's psychological support needs, planning for their child's future, and navigating complex health and disability systems. Participants suggested health professionals facilitate father\u2010to\u2010father support and psychological counseling. These findings highlight the unmet needs of fathers and suggest that a strengths\u2010based approach is critically important given the recognized mental health impact.<\/jats:p>","DOI":"10.1002\/ajmg.a.63470","type":"journal-article","created":{"date-parts":[[2023,11,17]],"date-time":"2023-11-17T03:40:42Z","timestamp":1700192442000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["\u201cWe are not a typical family anymore\u201d: Exploring the experiences and support needs of fathers of children with\n                    <scp>Fragile X<\/scp>\n                    syndrome in\n                    <scp>Australia<\/scp>"],"prefix":"10.1002","volume":"194","author":[{"given":"Jacintha","family":"Luermans","sequence":"first","affiliation":[{"name":"Faculty of Medicine and Health, Northern Clinical School University of Sydney  St Leonards New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1164-2386","authenticated-orcid":false,"given":"Jane","family":"Fleming","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health, Northern Clinical School University of Sydney  St Leonards New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9186-1644","authenticated-orcid":false,"given":"Rosie","family":"O'Shea","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health, Northern Clinical School University of Sydney  St Leonards New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1831-9944","authenticated-orcid":false,"given":"Kristine","family":"Barlow\u2010Stewart","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health, Northern Clinical School University of Sydney  St Leonards New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1844-215X","authenticated-orcid":false,"given":"Elizabeth Emma","family":"Palmer","sequence":"additional","affiliation":[{"name":"Discipline of Paediatrics and Child Health, Faculty of Medicine and Health University of New South Wales  Sydney New South Wales Australia"},{"name":"Sydney Children's Hospitals Network  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1344-5554","authenticated-orcid":false,"given":"Melanie","family":"Leffler","sequence":"additional","affiliation":[{"name":"Genetics of Learning Disability (GOLD) Service, Hunter Genetics  Waratah New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,11,16]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-048249"},{"key":"e_1_2_6_3_1","unstructured":"Australian Bureau of Statistics. 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