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Significant gaps of a delayed, incomplete, siloed and decentered transition can be avoided when transition is approached in a longitudinal and holistic manner. Young adults with Down syndrome are specifically vulnerable to these gaps as the combination of intellectual differences and healthcare complexity leads to the need for a process that allows for appropriate preparation to develop the skills and process for an appropriate. To establish a successful transition care plan, the six core elements of policy, tracking, readiness, planning, transfer of care, and complete transition will compose the scaffolding of the transition process and address these gaps in care. A comprehensive tool kit including policy statements, healthcare transition tracking forms, the TRAQ tool, and template portable medical summaries will operationalize those elements and counteract any gaps in the transition process.<\/jats:p>","DOI":"10.1002\/ajmg.c.32065","type":"journal-article","created":{"date-parts":[[2023,9,25]],"date-time":"2023-09-25T09:10:26Z","timestamp":1695633026000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Healthy transition: Roadmap for young adults with Down syndrome to adulthood"],"prefix":"10.1002","volume":"196","author":[{"given":"Maya","family":"Weaver","sequence":"first","affiliation":[{"name":"University of Delware, Children's Hospital of Pittsburgh of UPMC  Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2184-4742","authenticated-orcid":false,"given":"Andrew","family":"McCormick","sequence":"additional","affiliation":[{"name":"Division of Pediatric Hospital Medicine, Children's Hospital of Pittsburgh of UPMC  Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,9,25]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-0969"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0000000000000122"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/1054-139X(93)90143-D"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-1909"},{"key":"e_1_2_13_6_1","volume-title":"Six core elements of health care transition","author":"GotTransition.org","year":"2021"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2012-3050"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.peds.2018.01.072"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.62403"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.62854"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018-2587"},{"key":"e_1_2_13_12_1","volume-title":"Incorporating health care transition services into preventive care for adolescents and young adults: A toolkit for clinicians","author":"White P.","year":"2018"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2014.03.008"}],"container-title":["American Journal of Medical Genetics Part C: Seminars in Medical Genetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ajmg.c.32065","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,3,12]],"date-time":"2024-03-12T05:27:09Z","timestamp":1710221229000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajmg.c.32065"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,9,25]]},"references-count":12,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2024,3]]}},"alternative-id":["10.1002\/ajmg.c.32065"],"URL":"https:\/\/doi.org\/10.1002\/ajmg.c.32065","archive":["Portico"],"relation":{},"ISSN":["1552-4868","1552-4876"],"issn-type":[{"value":"1552-4868","type":"print"},{"value":"1552-4876","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,9,25]]},"assertion":[{"value":"2023-07-31","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-12","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-25","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e32065"}}