{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,9,5]],"date-time":"2024-09-05T17:48:50Z","timestamp":1725558530453},"reference-count":7,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2016,3,25]],"date-time":"2016-03-25T00:00:00Z","timestamp":1458864000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int Forum Allergy Rhinol"],"published-print":{"date-parts":[[2016,8]]},"abstract":"Background<\/jats:title>Long\u2010term follow\u2010up in clinical reviews often presents significant difficulty with conventional medical records alone. Publicly accessible genealogical databases such as Ancestry.com provide another avenue for obtaining extended follow\u2010up and added outcome information. No previous studies have described the use of genealogical databases in the follow\u2010up of individual patients.<\/jats:p><\/jats:sec>Methods<\/jats:title>Ancestry.com, the largest genealogical database in the United States, houses extensive demographic data on an increasing number of Americans. In a recent retrospective review of esthesioneuroblastoma patients treated at our institution, we used this resource to ascertain the outcomes of patients otherwise lost to follow\u2010up. Additional information such as quality of life and supplemental treatments the patient may have received at home was obtained through direct contact with living relatives.<\/jats:p><\/jats:sec>Results<\/jats:title>The use of Ancestry.com resulted in a 25% increase (20 months) in follow\u2010up duration as well as incorporation of an additional 7 patients in our study (18%) who would otherwise not have had adequate hospital chart data for inclusion. Many patients within this subset had more advanced disease or were remotely located from our institution. As such, exclusion of these outliers can impact the quality of subsequent outcome analysis.<\/jats:p><\/jats:sec>Conclusion<\/jats:title>Online genealogical databases provide a unique resource of public information that is acceptable to institutional review boards for patient follow\u2010up in clinical reviews. Utilization of Ancestry.com data led to significant improvement in follow\u2010up duration and increased the number of patients with sufficient data that could be included in our retrospective study.<\/jats:p><\/jats:sec>","DOI":"10.1002\/alr.21744","type":"journal-article","created":{"date-parts":[[2016,3,25]],"date-time":"2016-03-25T08:07:05Z","timestamp":1458893225000},"page":"880-882","source":"Crossref","is-referenced-by-count":2,"title":["Genealogical databases as a tool for extending follow\u2010up in clinical reviews"],"prefix":"10.1002","volume":"6","author":[{"given":"Thuy\u2010Van","family":"Ho","sequence":"first","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Naweed","family":"Chowdhury","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christopher","family":"Kandl","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cindy","family":"Hoover","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ann","family":"Robinson","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Larry","family":"Hoover","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology University of Kansas Medical Center Kansas City KS"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2016,3,25]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/alr.21469"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/lary.25469"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0077087"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00408-013-9484-2"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/ijc.28300"},{"key":"e_1_2_6_7_1","unstructured":"ChowdhuryN MarkJ BeahmD et\u00a0al. Long\u2010term outcomes following surgical resection of skull base esthesioneuroblastomas. 25th Annual Meeting of the North American Skull Base Society (NASBS) 20\u201322 Feb2015 Tampa FL."},{"key":"e_1_2_6_8_1","unstructured":"Ancestry.com. U.S. Social Security Death Index 1935\u20132014. (Data file). Provo UT: Ancestry.com Operations Inc 2016.http:\/\/search.ancestry.com\/search\/db.aspx?dbid=3693. Accessed February 22 2016."}],"container-title":["International Forum of Allergy & Rhinology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Falr.21744","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/alr.21744","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,6]],"date-time":"2023-10-06T19:58:37Z","timestamp":1696622317000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/alr.21744"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,3,25]]},"references-count":7,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2016,8]]}},"alternative-id":["10.1002\/alr.21744"],"URL":"https:\/\/doi.org\/10.1002\/alr.21744","archive":["Portico"],"relation":{},"ISSN":["2042-6976","2042-6984"],"issn-type":[{"value":"2042-6976","type":"print"},{"value":"2042-6984","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,3,25]]}}}