{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,4]],"date-time":"2026-11-04T15:01:12Z","timestamp":1793804472632,"version":"4.6.1"},"reference-count":34,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2023,5,19]],"date-time":"2023-05-19T00:00:00Z","timestamp":1684454400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["alz-journals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Alzheimer's &amp;amp; Dementia"],"published-print":{"date-parts":[[2023,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>INTRODUCTION<\/jats:title><jats:p>Alzheimer's\u2010focused participant recruitment registries are tools for accelerating enrollment into studies, however, registry members are primarily White women.<\/jats:p><\/jats:sec><jats:sec><jats:title>METHODS<\/jats:title><jats:p>We conducted a national online survey of 1501 adults ages 50\u201380, oversampling for Black and Hispanic\/Latino respondents, assessing intention to join a generic \u201cbrain health\u201d registry and to join a registry that required specific tasks.<\/jats:p><\/jats:sec><jats:sec><jats:title>RESULTS<\/jats:title><jats:p>Intention to join a registry was low (M 3.48, SD 1.77), and lower than intention to join a registry requiring specific tasks. Intention was greatest for registries requiring completing surveys (M 4.70, SD 1.77). Differences in intention were primarily between White women and Black women; differences between other groups were limited to specific tasks required.<\/jats:p><\/jats:sec><jats:sec><jats:title>DISCUSSION<\/jats:title><jats:p>The results indicate uncertainty about what a registry is, its purpose, and\/or the concept of \u201cbrain health.\u201d Using the Reasoned Action Approach (RAA) to develop evidence\u2010based outreach messages describing a registry and required tasks may increase diversity.<\/jats:p><\/jats:sec>","DOI":"10.1002\/alz.13126","type":"journal-article","created":{"date-parts":[[2023,5,19]],"date-time":"2023-05-19T08:44:25Z","timestamp":1684485865000},"page":"5399-5406","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["How intention to join an Alzheimer's participant recruitment registry differs by race, ethnicity, sex, and family history: Results from a national survey of US adults"],"prefix":"10.1002","volume":"19","author":[{"given":"Jessica B.","family":"Langbaum","sequence":"first","affiliation":[{"name":"Alzheimer's Prevention Initiative Department Banner Alzheimer's Institute  Phoenix Arizona USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erin","family":"Maloney","sequence":"additional","affiliation":[{"name":"Department of Communication University of Delaware  Newark Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Hennessy","sequence":"additional","affiliation":[{"name":"Department of Communication University of Delaware  Newark Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Harkins","sequence":"additional","affiliation":[{"name":"Department of Medicine University of Pennsylvania  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Karlawish","sequence":"additional","affiliation":[{"name":"Departments of Medicine Medical Ethics and Health Policy, and Neurology, University of Pennsylvania  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel L.","family":"Nosheny","sequence":"additional","affiliation":[{"name":"Departments of Psychiatry and Behavioral Sciences Radiology and Biomedical Engineering, University of California  San Francisco California USA"},{"name":"Northern California Institute for Research and Education (NCIRE) Department of Veterans Affairs Medical Center  San Francisco California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Bleakley","sequence":"additional","affiliation":[{"name":"Department of Communication University of Delaware  Newark Delaware 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