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However, there are more constructs of importance to people with PPA that have received less attention.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>METHODS<\/jats:title>\n                    <jats:p>\n                      Following Core Outcome Set Standards for Development Recommendations (COSSTAD), this study comprised: Stage 1 \u2013 systematic review to identify measures; Stage 2 \u2013 consensus groups to identify important outcome constructs for people with PPA (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a082) and care partners (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a091); Stage 3 \u2013 e\u2010Delphi consensus with 57 researchers.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS<\/jats:title>\n                    <jats:p>The systematic review identified 84 Outcome Measurement Instruments. Core outcome constructs identified included: (1) Participate in conversations with family and friends, (2) get words out, (3) be more fluent, (4) convey a message by any means, and (5) understand what others are saying. Researchers were unable to reach a consensus on measurement instruments.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DISCUSSION<\/jats:title>\n                    <jats:p>Further work is required to develop appropriate measurement instruments that address all core outcome constructs important to key stakeholders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Highlights<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>We introduce new symptom\u2010led perspectives on primary progressive aphasia (PPA).<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>The focus is on non\u2010fluent\/agrammatic (nfvPPA) and semantic (svPPA) variants.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Foregrounding of early and non\u2010verbal features of PPA and clinical trajectories is featured.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>We introduce a symptom\u2010led staging scheme for PPA.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>We propose a prototype for a functional impairment scale, the PPA Progression Planning Aid.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/alz.14362","type":"journal-article","created":{"date-parts":[[2024,11,13]],"date-time":"2024-11-13T07:38:34Z","timestamp":1731483514000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":21,"title":["An international core outcome set for primary progressive aphasia (COS\u2010PPA): Consensus\u2010based recommendations for communication interventions across research and clinical settings"],"prefix":"10.1002","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4149-409X","authenticated-orcid":false,"given":"Anna","family":"Volkmer","sequence":"first","affiliation":[{"name":"Division of Psychology and Language Sciences University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily Viega","family":"Alves","sequence":"additional","affiliation":[{"name":"Graduate Programme in Medical Sciences Federal University of Rio Grande do Sul  Porto Alegre 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