{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T00:30:20Z","timestamp":1790037020626,"version":"4.0.1"},"reference-count":83,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T00:00:00Z","timestamp":1747267200000},"content-version":"vor","delay-in-days":14,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,5,1]],"date-time":"2025-05-01T00:00:00Z","timestamp":1746057600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000864","name":"Michael J. 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Most reported caregiver experiences (67%). Few focused solely on people with DLB.\u00a0 Three themes emerged: (1) symptoms and impacts; (2) caregivers\u2019 care challenges; and (3) needs and priorities for education, support, and research.\u00a0Gaps in qualitative literature included small DLB sample sizes, inconsistent diagnostic criteria, variably reported characteristics, merged data across dementia types and stages, and under\u2010representation of informants and diverse groups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DISCUSSION<\/jats:title>\n                    <jats:p>This review provides the first qualitative evidence synthesis in DLB, highlighting profound impacts of DLB symptoms, but also gaps in understanding direct experiences. Additional qualitative work regarding the lived experience in DLB is needed to inform clinical management and therapeutic development.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Highlights<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Symptoms in dementia with Lewy bodies (DLB) vary greatly across individuals.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Existing qualitative studies, though limited, show profound personal impact in DLB.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Rigorous, systematic qualitative research in DLB symptom science is needed.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Identifying what matters to people with DLB is essential for guiding treatment.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/alz.70217","type":"journal-article","created":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T06:25:35Z","timestamp":1747290335000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Examining the lived experience of dementia with Lewy bodies through qualitative research: A systematic review"],"prefix":"10.1002","volume":"21","author":[{"given":"Jennifer R.","family":"Mammen","sequence":"first","affiliation":[{"name":"University of Massachusetts Dartmouth College of Nursing and Health Sciences  Dartmouth Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer G.","family":"Goldman","sequence":"additional","affiliation":[{"name":"JPG Enterprises LLC, Chicago, IL Barrow Neurological Institute  Phoenix Arizona USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mirinda","family":"Tyo","sequence":"additional","affiliation":[{"name":"University of Massachusetts Dartmouth College of Nursing and Health Sciences  Dartmouth Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yuge","family":"Xiao","sequence":"additional","affiliation":[{"name":"Michael J. 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