{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T05:02:57Z","timestamp":1777698177358,"version":"3.51.4"},"reference-count":21,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2002,4,5]],"date-time":"2002-04-05T00:00:00Z","timestamp":1017964800000},"content-version":"vor","delay-in-days":4,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arthritis &amp; Rheumatism"],"published-print":{"date-parts":[[2002,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To describe the patients' perceptions of the effects of systemic lupus erythematosus (SLE) and Wegener's granulomatosis (WG) on health, function, income, and interpersonal relationships.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>114 patients with SLE, and 79 patients with WG completed a self\u2010administered questionnaire. Patients had been diagnosed with SLE or WG for a median period of 10 and 5 years, respectively.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>All patients experienced substantial functional morbidity. Two\u2010thirds of the patients with SLE or WG reported either a periodic or permanent inability to perform daily activities at home and\/or at work. Furthermore, SLE as well as WG had a considerable impact upon the psychological and social life, affecting their happiness and altering relationships.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Our study demonstrates that SLE and WG are associated with substantial medical morbidity resulting in physical and occupational disability. SLE has a profound impact on patients' lives, similar to that experienced in patients with WG.<\/jats:p><\/jats:sec>","DOI":"10.1002\/art.10341","type":"journal-article","created":{"date-parts":[[2004,10,25]],"date-time":"2004-10-25T19:35:25Z","timestamp":1098732925000},"page":"196-201","source":"Crossref","is-referenced-by-count":70,"title":["Patients' perceptions of the effects of systemic lupus erythematosus on health, function, income, and interpersonal relationships: A comparison with Wegener's granulomatosis"],"prefix":"10.1002","volume":"47","author":[{"given":"Maarten M.","family":"Boomsma","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marc","family":"Bijl","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Coen A.","family":"Stegeman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cees G. 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