{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T05:56:27Z","timestamp":1780552587056,"version":"3.54.1"},"reference-count":14,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2005,12,15]],"date-time":"2005-12-15T00:00:00Z","timestamp":1134604800000},"content-version":"vor","delay-in-days":3850,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arthritis & Rheumatism"],"published-print":{"date-parts":[[1995,6]]},"abstract":"Abstract<\/jats:title>Objective.<\/jats:bold> A parent consultant program was established to promote active family involvement in the health care process and to provide parent\u2010to\u2010parent support, education, and training.<\/jats:p>Methods.<\/jats:bold> Parents of children with rheumatic disease were hired by 7 pediatric rheumatology centers to serve as role models and advocates for other parents whose children attended the clinics. In the clinic, the parent consultants provided support, advocacy, and education regarding specific nonmedical issues. At the local level, they assisted parents in obtaining community\u2010based services, such as individual educational plans at school, local physical therapy, or access to recreational resources.<\/jats:p>Results.<\/jats:bold> Program impact was evaluated by an anonymous, mail\u2010response questionnaire sent to parents who met with a parent consultant during a clinic visit for their child. Surveys were sent within 6 months of the initial parent consultant meeting; 257 questionnaires were mailed, 33% were returned. The majority of respondents (87%) felt their interaction with the parent consultant was helpful. The general support received and the specific information and\/or assis\u2010tance received were found to be equally useful by respondents. The majority of respondents (98%) stated they would recommend that other parents meet with the parent consultant.<\/jats:p>Conclusion.<\/jats:bold> Parents of children with rheumatic disease are effective peer counselors, providing general support and specific assistance to enhance family involvement in care.<\/jats:p>","DOI":"10.1002\/art.1790080211","type":"journal-article","created":{"date-parts":[[2007,2,15]],"date-time":"2007-02-15T02:01:43Z","timestamp":1171504903000},"page":"120-125","source":"Crossref","is-referenced-by-count":9,"title":["Parents of children with rheumatic disease as peer counselors"],"prefix":"10.1002","volume":"8","author":[{"given":"Bethany A.","family":"DeNardo","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judith A.","family":"Stebulis","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lori B.","family":"Tucker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane G.","family":"Schaller","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2005,12,15]]},"reference":[{"key":"e_1_2_1_2_2","volume-title":"Issues in the Care of Children with Chronic Illness","author":"Hobbs N","year":"1984"},{"key":"e_1_2_1_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0031-3955(16)34549-7"},{"key":"e_1_2_1_4_2","first-page":"1055","article-title":"Family\u2010centered, community\u2010based, coordinated care for children with special health care needs","volume":"83","author":"Brewer EJ","year":"1989","journal-title":"Pediatrics"},{"key":"e_1_2_1_5_2","unstructured":"KoopCE:Surgeon General's Report: Children with Special Health Care Needs. Department of Health and Human Services DHHS publication no. HRS\/10\/76 87\u20132 Washington US Government Printing Office 1987"},{"key":"e_1_2_1_6_2","volume-title":"Family\u2010Centered Care for Children with Special Health Care Needs. Association for the Care of Children's Health and the Bureau of Maternal and Child Health, Public Health Service","author":"Shelton TL","year":"1987"},{"key":"e_1_2_1_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/000992287201100709"},{"key":"e_1_2_1_8_2","doi-asserted-by":"publisher","DOI":"10.1207\/s15326888chc1401_9"},{"key":"e_1_2_1_9_2","first-page":"1553","article-title":"Demography of a regional pediatric rheumatology patient population","volume":"21","author":"Denardo BA","year":"1994","journal-title":"J Rheumatol"},{"key":"e_1_2_1_10_2","doi-asserted-by":"publisher","DOI":"10.1207\/s15326888chc2302_5"},{"key":"e_1_2_1_11_2","doi-asserted-by":"publisher","DOI":"10.1002\/art.1780290709"},{"key":"e_1_2_1_12_2","volume-title":"Parenting a Child with Arthritis","author":"Brewer EJ","year":"1992"},{"key":"e_1_2_1_13_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/17.5.587"},{"key":"e_1_2_1_14_2","first-page":"225","article-title":"Health care services received by children with chronic illness","volume":"137","author":"Stein REK","year":"1983","journal-title":"Am J Dis Child"},{"key":"e_1_2_1_15_2","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1542\/peds.84.3.465","article-title":"Community physician's role in case management of children with chronic illnesses","volume":"84","author":"Liptak GS","year":"1989","journal-title":"Pediatrics"}],"container-title":["Arthritis & Rheumatism"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fart.1790080211","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/art.1790080211","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,23]],"date-time":"2023-11-23T20:43:16Z","timestamp":1700772196000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/art.1790080211"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[1995,6]]},"references-count":14,"journal-issue":{"issue":"2","published-print":{"date-parts":[[1995,6]]}},"alternative-id":["10.1002\/art.1790080211"],"URL":"https:\/\/doi.org\/10.1002\/art.1790080211","archive":["Portico"],"relation":{},"ISSN":["0004-3591","1529-0131"],"issn-type":[{"value":"0004-3591","type":"print"},{"value":"1529-0131","type":"electronic"}],"subject":[],"published":{"date-parts":[[1995,6]]}}}