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We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24\u2009years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child\/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech\u2010language therapy, behavioral intervention, and occupational therapy for their child and 20\u201324% expressed needs for family support services such as respite care, parent\/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child\/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child\/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family\u2010centered interventions that address needs of both children and youth with ASD and their families.<\/jats:p><\/jats:sec><jats:sec><jats:title>Lay summary<\/jats:title><jats:p>A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child\/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child\/youth unmet healthcare needs. Severity of autism and difficulties accessing child\/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD.<\/jats:p><\/jats:sec>","DOI":"10.1002\/aur.2514","type":"journal-article","created":{"date-parts":[[2021,4,20]],"date-time":"2021-04-20T06:15:47Z","timestamp":1618899347000},"page":"1736-1758","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":30,"title":["Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware"],"prefix":"10.1002","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4594-2547","authenticated-orcid":false,"given":"Sudha","family":"Srinivasan","sequence":"first","affiliation":[{"name":"Physical Therapy Program, Department of Kinesiology University of Connecticut  Storrs Connecticut USA"},{"name":"Institute for Health, Intervention, and Policy University of Connecticut  Storrs Connecticut USA"},{"name":"The Connecticut Institute for the Brain and Cognitive Sciences University of Connecticut  Storrs Connecticut USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annalisa","family":"Ekbladh","sequence":"additional","affiliation":[{"name":"Center for Disabilities Studies University of Delaware  Newark Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian","family":"Freedman","sequence":"additional","affiliation":[{"name":"Center for Disabilities Studies University of Delaware  Newark Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0771-0967","authenticated-orcid":false,"given":"Anjana","family":"Bhat","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy University of Delaware  Newark Delaware USA"},{"name":"Biomechanics &amp; Movement Sciences Program University of Delaware  Newark Delaware USA"},{"name":"Behavioral Neuroscience Division, Department of Psychological and Brain Sciences University of Delaware  Newark Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,4,19]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"American Psychiatric Association. 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