{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T23:43:27Z","timestamp":1781307807735,"version":"3.54.1"},"reference-count":38,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2023,9,9]],"date-time":"2023-09-09T00:00:00Z","timestamp":1694217600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Autism Research"],"published-print":{"date-parts":[[2023,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Participatory approaches, in which researchers work together with members of the autism community (e.g., autistic people, family members, caregivers, or other stakeholders) to design, conduct, and disseminate research, have become increasingly prominent within the field of autism research over the past decade. Despite growing academic and community interest in conducting participatory studies, stakeholder collaboration remains infrequent in autism research, at least partially due to systemic barriers. To help reduce barriers to engaging in participatory autism research, the International Society for Autism Research (INSAR) Autistic Researchers Committee has launched the INSAR Community Collaborator Request (ICCR; <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"https:\/\/www.autism-insar.org\/page\/iccr\">https:\/\/www.autism-insar.org\/page\/iccr<\/jats:ext-link>), a platform on the INSAR website that allows autism researchers conducting participatory research to seek out stakeholder collaborators from the autism community (including both autistic people and their family members\/caregivers, as relevant to a given research project). Interested stakeholders also have the opportunity to subscribe to ICCR posts, allowing them to be alerted of new opportunities for collaboration and potentially increasing their involvement in autism research. Overall, the ICCR provides a venue to connect autism researchers with potential community collaborators, reducing barriers to participatory autism research and increasing the frequency of successful community\u2013academic partnerships within the field. We are hopeful that in the long term, such changes will lead to greater alignment between research outputs and the goals of the greater autism community, and consequently an increase in the overall quality and relevance of autism research.<\/jats:p>","DOI":"10.1002\/aur.3027","type":"journal-article","created":{"date-parts":[[2023,9,9]],"date-time":"2023-09-09T10:14:30Z","timestamp":1694254470000},"page":"2071-2076","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["The <scp>INSAR Community Collaborator Request<\/scp>: Using community\u2013academic partnerships to enhance outcomes of participatory autism research"],"prefix":"10.1002","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6669-520X","authenticated-orcid":false,"given":"Rebecca","family":"Poulsen","sequence":"first","affiliation":[{"name":"Macquarie University Hearing, Department of Linguistics, Faculty of Medicine, Health and Human Sciences Macquarie University  Sydney New South Wales Australia"},{"name":"Reframing Autism  St Leonards New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick","family":"Dwyer","sequence":"additional","affiliation":[{"name":"Center for Mind and Brain, University of California Davis  Davis California USA"},{"name":"Department of Psychology University of California Davis  Davis California USA"},{"name":"MIND Institute, UC Davis Health  Sacramento California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dena","family":"Gassner","sequence":"additional","affiliation":[{"name":"School of Social Work, Adelphi University  Garden City New York USA"},{"name":"Department of Health Sciences Towson University  Towson Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"Heyworth","sequence":"additional","affiliation":[{"name":"Reframing Autism  St Leonards New South Wales Australia"},{"name":"Macquarie School of Education, Macquarie University  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7646-423X","authenticated-orcid":false,"given":"Zachary J.","family":"Williams","sequence":"additional","affiliation":[{"name":"Medical Scientist Training Program Vanderbilt University School of Medicine  Nashville Tennessee USA"},{"name":"Department of Hearing and Speech Sciences Vanderbilt University Medical Center  Nashville Tennessee USA"},{"name":"Vanderbilt Brain Institute, Vanderbilt University  Nashville Tennessee USA"},{"name":"Frist Center for Autism and Innovation, Vanderbilt University  Nashville Tennessee USA"},{"name":"Vanderbilt Kennedy Center, Vanderbilt University Medical Center  Nashville Tennessee USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,9,9]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"crossref","unstructured":"Askham A. V.(2022).A new hub for participatory research: Q&A with Zachary Williams.Spectrum.https:\/\/www.spectrumnews.org\/opinion\/a-new-hub-for-participatory-research-qa-with-zachary-williams\/","DOI":"10.53053\/MOZM4905"},{"key":"e_1_2_6_3_1","unstructured":"PCORI. (2020).Autistic adults and other stakeholders engage together: Engagement & compensation guide | PCORI.https:\/\/www.pcori.org\/engagement\/engagement-resources\/Engagement-Tool-Resource-Repository\/autistic-adults-and-other"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361320908410"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1108\/978-1-80382-463-520221010"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-049437F"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.202000494"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2017.1320273"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.20220085"},{"key":"e_1_2_6_10_1","doi-asserted-by":"crossref","unstructured":"Dattaro L.(2021 January 14).The promise of scientific partnerships with people on the spectrum.Spectrum.https:\/\/www.spectrumnews.org\/features\/deep\u2010dive\/the\u2010promise\u2010of\u2010scientific\u2010partnerships\u2010with\u2010people\u2010on\u2010the\u2010spectrum\/","DOI":"10.53053\/OMDL1377"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361320951696"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2022.876990"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/1468-0009.12184"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1089\/aut.2021.29019.rtb"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361318786721"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40474-021-00227-z"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-018-3783-7"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-015-1949-1"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.202000468"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.1089\/aut.2021.29012.scj"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.713982"},{"key":"e_1_2_6_22_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781003049081-3"},{"key":"e_1_2_6_23_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40474-017-0104-3"},{"key":"e_1_2_6_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2015.12.006"},{"key":"e_1_2_6_25_1","doi-asserted-by":"publisher","DOI":"10.1108\/TLDR-09-2018-0029"},{"key":"e_1_2_6_26_1","doi-asserted-by":"publisher","DOI":"10.1038\/479033a"},{"key":"e_1_2_6_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361319830523"},{"key":"e_1_2_6_28_1","doi-asserted-by":"publisher","DOI":"10.1353\/cpr.2011.0022"},{"key":"e_1_2_6_29_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0109946"},{"key":"e_1_2_6_30_1","doi-asserted-by":"publisher","DOI":"10.1089\/aut.2021.0039"},{"key":"e_1_2_6_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/13623613211019594"},{"key":"e_1_2_6_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/13623613211064421"},{"key":"e_1_2_6_33_1","doi-asserted-by":"publisher","DOI":"10.1089\/aut.2022.0017"},{"key":"e_1_2_6_34_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11213-016-9376-5"},{"key":"e_1_2_6_35_1","doi-asserted-by":"publisher","DOI":"10.1093\/fampra\/cmx001"},{"key":"e_1_2_6_36_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41562-022-01446-z"},{"key":"e_1_2_6_37_1","doi-asserted-by":"publisher","DOI":"10.1089\/aut.2020.0050"},{"key":"e_1_2_6_38_1","doi-asserted-by":"publisher","DOI":"10.3122\/jabfm.2014.06.140022"},{"key":"e_1_2_6_39_1","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0000000000000953"}],"container-title":["Autism Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/aur.3027","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,24]],"date-time":"2023-11-24T00:32:07Z","timestamp":1700785927000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/aur.3027"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,9,9]]},"references-count":38,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2023,11]]}},"alternative-id":["10.1002\/aur.3027"],"URL":"https:\/\/doi.org\/10.1002\/aur.3027","archive":["Portico"],"relation":{},"ISSN":["1939-3792","1939-3806"],"issn-type":[{"value":"1939-3792","type":"print"},{"value":"1939-3806","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,9,9]]},"assertion":[{"value":"2022-09-18","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-08-21","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-09","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}