{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,29]],"date-time":"2025-12-29T11:44:25Z","timestamp":1767008665675,"version":"3.40.5"},"reference-count":11,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2019,2,13]],"date-time":"2019-02-13T00:00:00Z","timestamp":1550016000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2019,4]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>In Argentina, birth defects are a leading cause of infant deaths. In 2009, the National Network for Congenital Anomalies of Argentina (RENAC) was established as a hospital\u2010based surveillance system of major structural birth defects. To assess and enhance the system's data quality, we previously developed data quality indicators (DQI). Our aim was to evaluate quality indicators in RENAC.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We applied the DQI presented in a related publication to the 2016 RENAC data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Among the DQI of description, spina bifida coverage and talipes had the lowest results. Regarding prevalence of hypospadias, it was lower than the defined threshold. RENAC did not achieve the ascertainment threshold of a prevalence of 21.5 per 10,000 for critical congenital heart defects. There was a high ratio of spina bifida to anencephaly.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>DQI provide a focus for improving quality, making decisions, and advocating for interventions. Examples include advocating for newborn screening of critical congenital heart defects with pulse oximetry; developing training programs for clinicians to improve the detection of isolated hypospadias; and developing visual tools and checklists to improve the completeness and accuracy of case description for spina bifida, talipes, and other major malformations. After the interventions, it is important to track the impact by measuring again the DQI.<\/jats:p><\/jats:sec>","DOI":"10.1002\/bdr2.1472","type":"journal-article","created":{"date-parts":[[2019,2,13]],"date-time":"2019-02-13T10:59:20Z","timestamp":1550055560000},"page":"333-340","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Application of quality indicators to data from the National Network of Congenital Anomalies of Argentina"],"prefix":"10.1002","volume":"111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6263-2562","authenticated-orcid":false,"given":"Boris","family":"Groisman","sequence":"first","affiliation":[{"name":"National Network of Congenital Anomalies of Argentina (RENAC) National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health  Buenos Aires Argentina"},{"name":"National Scientific and Technical Research Council (CONICET)  Argentina"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6026-744X","authenticated-orcid":false,"given":"Pablo","family":"Barbero","sequence":"additional","affiliation":[{"name":"National Network of Congenital Anomalies of Argentina (RENAC) National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health  Buenos Aires Argentina"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8318-8664","authenticated-orcid":false,"given":"Pierpaolo","family":"Mastroiacovo","sequence":"additional","affiliation":[{"name":"International Centre on Birth Defects (ICBD)  Rome Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5322-7116","authenticated-orcid":false,"given":"Lorenzo D.","family":"Botto","sequence":"additional","affiliation":[{"name":"International Centre on Birth Defects (ICBD)  Rome Italy"},{"name":"Division of Medical Genetics University of Utah  Salt Lake City Utah"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4792-4775","authenticated-orcid":false,"given":"Mar\u00eda Paz","family":"Bidondo","sequence":"additional","affiliation":[{"name":"National Network of Congenital Anomalies of Argentina (RENAC) National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health  Buenos Aires Argentina"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7953-3197","authenticated-orcid":false,"given":"Rosa","family":"Liascovich","sequence":"additional","affiliation":[{"name":"National Network of Congenital Anomalies of Argentina (RENAC) National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health  Buenos Aires Argentina"},{"name":"National Scientific and Technical Research Council (CONICET)  Argentina"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2019,2,13]]},"reference":[{"key":"e_1_2_6_2_1","article-title":"Prenatal diagnosis and prevalence of critical congenital heart defects: An international retrospective cohort study","author":"Bakker M. K.","year":"2018","journal-title":"BMJ Open"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12687-014-0209-x"},{"volume-title":"Improving healthcare with control charts: Basic and advanced SPC methods and case studies","year":"2003","author":"Carey R. G.","key":"e_1_2_6_4_1"},{"volume-title":"March of Dimes global report on birth defects: The hidden toll of dying and disabled children","year":"2006","author":"Christianson A.","key":"e_1_2_6_5_1"},{"key":"e_1_2_6_6_1","unstructured":"DEIS (Direcci\u00f3n de Estad\u00edsticas e Informaci\u00f3n de Salud) Annual report2017. Available athttp:\/\/www.deis.msal.gov.ar"},{"issue":"6","key":"e_1_2_6_7_1","first-page":"484","article-title":"RENAC task force. RENAC: National Registry of Congenital Anomalies of Argentina","volume":"111","author":"Groisman B.","year":"2013","journal-title":"Archivos Argentinos de Pediatr\u00eda"},{"key":"e_1_2_6_8_1","unstructured":"RENAC annual report 2017. Available athttp:\/\/www.anlis.gov.ar\/cenagem\/wp-content\/uploads\/2014\/05\/REPORTE-RENAC-2017-formato-web.pdf"},{"key":"e_1_2_6_9_1","unstructured":"ICDBSR annual reports 2018. Available athttp:\/\/www.icbdsr.org\/resources\/annual-report\/"},{"key":"e_1_2_6_10_1","unstructured":"Mario S. &Pantelides E. A.(2009).Estimaci\u00f3n de la magnitud del aborto inducido en la Argentina CEPAL. Available athttps:\/\/repositorio.cepal.org\/bitstream\/handle\/11362\/12842\/np87095120_es.pdf?sequence=1&isAllowed=y"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.10012"},{"key":"e_1_2_6_12_1","unstructured":"World Health Organization. (2010).63rd World Health Assembly. Agenda item 11.7. Birth defects. Available athttp:\/\/apps.who.int\/gb\/ebwha\/pdf_files\/WHA63\/A63_R17-en.pdf"}],"container-title":["Birth Defects Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fbdr2.1472","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bdr2.1472","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/bdr2.1472","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bdr2.1472","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,10]],"date-time":"2023-09-10T14:47:29Z","timestamp":1694357249000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/bdr2.1472"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,2,13]]},"references-count":11,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2019,4]]}},"alternative-id":["10.1002\/bdr2.1472"],"URL":"https:\/\/doi.org\/10.1002\/bdr2.1472","archive":["Portico"],"relation":{},"ISSN":["2472-1727","2472-1727"],"issn-type":[{"type":"print","value":"2472-1727"},{"type":"electronic","value":"2472-1727"}],"subject":[],"published":{"date-parts":[[2019,2,13]]},"assertion":[{"value":"2018-09-06","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-01-16","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-02-13","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}