{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T16:10:31Z","timestamp":1787501431153,"version":"build-2736575974"},"reference-count":30,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"vor","delay-in-days":11,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["NU01DD000036"],"award-info":[{"award-number":["NU01DD000036"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Electronic case reporting (eCR) is increasingly used by public health agencies to support disease surveillance. Its utility for birth defects surveillance remains unexplored. This project aimed to evaluate birth defects surveillance staff experiences and perceptions of eCR data to identify its challenges, benefits, and opportunities for improvement in birth defects surveillance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Two virtual, 1\u2010h focus groups were conducted with 15 staff from the Texas Birth Defects Registry (TBDR) who had participated in a pilot evaluation of electronic initial case reports (eICRs). The focus groups explored staff experiences with identifying and abstracting cases from eICRs and how these experiences compared to abstraction from electronic health records (EHRs). Discussions followed a structured interview guide with six broad question categories. Detailed notes were taken during the sessions and analyzed using thematic analysis to identify common themes and patterns.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thematic analysis identified six key themes related to the eICR: Structure; Quality and Completeness; Comparison with EHRs; Technical and Workflow Challenges; Usefulness and Potential Applications; and Recommendations to Strengthen its Utility for Birth Defect Surveillance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Staff reported that while eCR offers potential advantages, such as serving as a data source for case\u2010finding, significant challenges remain. These include issues with eICR structure, data completeness, and integration into existing workflows. Recommended improvements include better organization of eICR data, inclusion of additional clinical details, and development of standardized abstraction protocols. These findings can inform strategies to optimize eCR for birth defects surveillance and point to the need for national guidelines.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/bdr2.70002","type":"journal-article","created":{"date-parts":[[2025,12,13]],"date-time":"2025-12-13T05:33:28Z","timestamp":1765604008000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Staff Experiences With Electronic Initial Case Reports for Birth Defects Surveillance in Texas"],"prefix":"10.1002","volume":"117","author":[{"given":"Alexandra","family":"Koops","sequence":"first","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services  Austin Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9943-9133","authenticated-orcid":false,"given":"Rebecca","family":"Howell","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services  Austin Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0633-8013","authenticated-orcid":false,"given":"Rachel P.","family":"Allred","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services  Austin Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hye Na","family":"Jeon","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services  Austin Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2884-2835","authenticated-orcid":false,"given":"Charles","family":"Shumate","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services  Austin Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,12,12]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"Allred R. P. C.Yantz H. N.Jeon R.Howell M.Kilburn andC.Shumate. Forthcoming.\u201cUtility of Electronic Case Reporting for Case Identification in Birth Defects Surveillance.\u201dTexas Department of State Health Services Birth Defects Epidemiology and Surveillance Branch."},{"key":"e_1_2_10_3_1","unstructured":"Assistant Secretary for Technology Policy\/Office of the National Coordinator for Health IT.2025.\u201cUnited States Core Data for Interoperability (USCDI) \u201dU.S. Department of Health and Human Services.https:\/\/www.healthit.gov\/isp\/united\u2010states\u2010core\u2010data\u2010interoperability\u2010uscdi."},{"key":"e_1_2_10_4_1","unstructured":"Association of Public Health Laboratories (APHL) Informatics Messaging Services (AIMS). n.d.\u201cPublic Health Agencies\u2013RCKMS Decision Support & Authoring.\u201d Accessed September 3 2025.https:\/\/ecr.aimsplatform.org\/public\u2010health\u2010agencies\/rckms\u2010decision\u2010support\u2010authoring\/."},{"key":"e_1_2_10_5_1","unstructured":"Association of Public Health Laboratories (APHL). Informatics Messaging Services (AIMS). n.d. \u201cEHR Implementers.\u201d Accessed September 3 2025. eICR Creation Validation & Standards.https:\/\/ecr.aimsplatform.org\/ehr\u2010implementers\/eicr\u2010creation\u2010validation\u2010standards\/."},{"key":"e_1_2_10_6_1","unstructured":"Center For Health Statistics.2025.\u201cLive Births \u201dTexas Department of State Health Services.https:\/\/healthdata.dshs.texas.gov\/dashboard\/births\u2010and\u2010deaths\/live\u2010births#data\u2010source."},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/00333549241308414"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHH.0000000000002147"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.3233\/SHTI190362"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.15585\/mmwr.mm7246a4"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHH.0000000000001825"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamiaopen\/ooad102"},{"issue":"14","key":"e_1_2_10_13_1","first-page":"373","article-title":"Automated Detection and Reporting of Notifiable Diseases Using Electronic Medical Records Versus Passive Surveillance\u2014Massachusetts, June 2006\u2010July 2007","volume":"57","author":"Klompas M.","year":"2008","journal-title":"Morbidity and Mortality Weekly Report"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/00333549241227160"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/0033354916670871"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20331"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.2196\/26388"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.2196\/38868"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHH.0000000000000954"},{"key":"e_1_2_10_21_1","volume-title":"Guidelines for Conducting Birth Defects Surveillance","author":"National Birth Defects Prevention Network (NBDPN)","year":"2004"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/1609406917733847"},{"key":"e_1_2_10_23_1","unstructured":"Public Health Informatics and Data Exchange (PHID) Unit.2025.\u201cPublic Health Informatics and Data Exchange (PHID) Unit.\u201dTexas Department of State Health Services.https:\/\/www.dshs.texas.gov\/public\u2010health\u2010informatics\u2010data\u2010exchange\u2010unit."},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamia\/ocac133"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1197\/jamia.M3299"},{"key":"e_1_2_10_26_1","unstructured":"Reportable Conditions Knowledge Management Service (RCKMS).2025.\u201cRCKMS List of Available Conditions.\u201dhttps:\/\/www.rckms.org\/conditions\u2010available\/."},{"key":"e_1_2_10_27_1","first-page":"1","volume-title":"ASTP Health IT Data Brief","author":"Richwine C.","year":"2023"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781526405555.n2"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1097\/OLQ.0000000000001507"},{"issue":"1","key":"e_1_2_10_30_1","first-page":"4","article-title":"A Case Study of Early\u2010Onset Colorectal Cancer: Using Electronic Health Records to Support Public Health Surveillance on an Emerging Cancer Control Topic","volume":"48","author":"Townsend J. S.","year":"2021","journal-title":"Journal of Registry Management"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.5210\/ojphi.v11i2.9733"}],"container-title":["Birth Defects Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bdr2.70002","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,29]],"date-time":"2025-12-29T09:15:38Z","timestamp":1766999738000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/bdr2.70002"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,12]]},"references-count":30,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2025,12]]}},"alternative-id":["10.1002\/bdr2.70002"],"URL":"https:\/\/doi.org\/10.1002\/bdr2.70002","archive":["Portico"],"relation":{},"ISSN":["2472-1727","2472-1727"],"issn-type":[{"value":"2472-1727","type":"print"},{"value":"2472-1727","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,12]]},"assertion":[{"value":"2025-07-24","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-11-17","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-12","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70002"}}