{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T06:05:07Z","timestamp":1761717907900},"reference-count":30,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2003,9,26]],"date-time":"2003-09-26T00:00:00Z","timestamp":1064534400000},"content-version":"vor","delay-in-days":25,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2003,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>BACKGROUND<\/jats:title><jats:p>Fetal alcohol syndrome (FAS) is a preventable birth defect, easiest to recognize in children two through eleven years and more difficult to recognize in newborns. In New York State, two systems ascertain FAS cases, the statewide birth defects registry and the Fetal Alcohol Syndrome Surveillance Network (FASSNet) system. The accuracy of FAS reports to the birth defects registry was assessed through a comparison with the FASSNet system.<\/jats:p><\/jats:sec><jats:sec><jats:title>METHODS<\/jats:title><jats:p>The birth defects registry mandates reporting up to age two, including FAS with an ICD\u20109 code of 760.71. FASSNet is a population\u2010based, multi\u2010source surveillance and uses a standard definition to determine FAS case status.<\/jats:p><\/jats:sec><jats:sec><jats:title>RESULTS<\/jats:title><jats:p>Among 33 children reported to the registry with FAS, 19 (58%) met FASSNet criteria for FAS. FASSNet identified 24 additional children with FAS facial features documented before the child's second birthday that should have been reported to the birth defects registry. FAS prevalence rate for the birth defects registry was 0.28 per 1,000 live births but would have been 0.37 if all children diagnosed before age two were included.<\/jats:p><\/jats:sec><jats:sec><jats:title>CONCLUSIONS<\/jats:title><jats:p>Almost 60% of children reported to a birth defects registry with FAS from 1995 to 1998 were confirmed as FAS based on a more intensive surveillance. Additional children with FAS were not reported to the CMR. FAS prevalence calculated from birth defects registries, relying on the ICD\u20109 code 760.71, include false positives and underestimate the true prevalence. Age limits for reporting FAS to registries further contribute to under ascertainment. Birth Defects Research (Part A) 67:604\u2013608, 2003. \u00a9 2003 Wiley\u2010Liss, Inc.<\/jats:p><\/jats:sec>","DOI":"10.1002\/bdra.10108","type":"journal-article","created":{"date-parts":[[2003,9,29]],"date-time":"2003-09-29T07:41:01Z","timestamp":1064821261000},"page":"604-608","source":"Crossref","is-referenced-by-count":16,"title":["Estimating prevalence of fetal alcohol syndrome (FAS): Effectiveness of a passive birth defects registry system"],"prefix":"10.1002","volume":"67","author":[{"given":"Deborah J.","family":"Fox","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlotte M.","family":"Druschel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2003,9,26]]},"reference":[{"issue":"1","key":"e_1_2_6_2_1","first-page":"5","article-title":"Clinical Recognition of FAS \u2010 Difficulties of Detection and Diagnosis","volume":"18","author":"Aase JM","year":"1994","journal-title":"Alcohol Health & Research World"},{"key":"e_1_2_6_3_1","volume-title":"Fetal Alcohol Syndrome","author":"Abel EL","year":"1990"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/0892-0362(95)00005-C"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1530-0277.1991.tb00553.x"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1530-0277.1993.tb00826.x"},{"issue":"18","key":"e_1_2_6_7_1","first-page":"312","article-title":"Linking multiple data sources in fetal alcohol syndrome surveillance \u2014 Alaska","volume":"42","author":"CDC","year":"1993","journal-title":"MMWR"},{"issue":"17","key":"e_1_2_6_8_1","first-page":"339","article-title":"Fetal alcohol syndrome \u2014 United States, 1979\u20131992","volume":"42","author":"CDC","year":"1993","journal-title":"MMWR"},{"issue":"13","key":"e_1_2_6_9_1","first-page":"249","article-title":"Update: Trends in FAS \u2014 United States, 1979\u20131993","volume":"44","author":"CDC","year":"1995","journal-title":"MMWR"},{"issue":"47","key":"e_1_2_6_10_1","first-page":"1118","article-title":"Surveillance for fetal alcohol syndrome using multiple sources \u2014 Atlanta, Georgia, 1981\u20131989","volume":"46","author":"CDC","year":"1997","journal-title":"MMWR"},{"issue":"13","key":"e_1_2_6_11_1","first-page":"273","article-title":"Alcohol use among women of childbearing age \u2010 United States, 1991\u20131999","volume":"51","author":"CDC","year":"2002","journal-title":"MMWR"},{"issue":"20","key":"e_1_2_6_12_1","first-page":"433","article-title":"Fetal Alcohol Syndrome \u2014 Alaska, Arizona, Colorado, and New York, 1995\u20131997","volume":"51","author":"CDC","year":"2002","journal-title":"MMWR"},{"issue":"23","key":"e_1_2_6_13_1","doi-asserted-by":"crossref","first-page":"2436","DOI":"10.1001\/jama.1981.03310480052033","article-title":"Recognition of Fetal Alcohol Syndrome","volume":"245","author":"Clarren SK","year":"1981","journal-title":"JAMA"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/1096-9926(200101)63:1<3::AID-TERA1001>3.0.CO;2-P"},{"issue":"1","key":"e_1_2_6_15_1","first-page":"82","article-title":"Tracking the Prevalence of FAS","volume":"18","author":"Cordero JF","year":"1994","journal-title":"Alcohol Health & Research World"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/tera.1082"},{"issue":"1","key":"e_1_2_6_17_1","first-page":"58","article-title":"Fetal Alcohol Syndrome Prevention Research","volume":"26","author":"Hankin JR","year":"2002","journal-title":"Alcohol Research & Health"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/tera.90010"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3476(99)70157-5"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.10023"},{"issue":"3","key":"e_1_2_6_21_1","first-page":"192","article-title":"The Effects of Prenatal Alcohol Exposure","volume":"21","author":"Larkby C","year":"1997","journal-title":"Alcohol Health & Research World"},{"key":"e_1_2_6_22_1","first-page":"1142","article-title":"Failure to Recognize Fetal Alcohol Syndrome in Newborn Infants","volume":"144","author":"Little BB","year":"1990","journal-title":"American Journal of Disease in Children"},{"key":"e_1_2_6_23_1","unstructured":"LoudenburgR BurdL LeonardsonG DrubeG.2002.Retrospective Chart Abstraction of Individuals Referred for Fetal Alcohol Syndrome (FAS) Evaluations. 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