{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T18:33:28Z","timestamp":1787510008564,"version":"build-2736575974"},"reference-count":28,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2014,4,16]],"date-time":"2014-04-16T00:00:00Z","timestamp":1397606400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["U84-CCU524082"],"award-info":[{"award-number":["U84-CCU524082"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","award":["UL1-TR000427"],"award-info":[{"award-number":["UL1-TR000427"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2014,9]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>\n                      Fetal alcohol syndrome (FAS) is a leading cause of developmental disability (Abel &amp; Sokol,\n                      <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#bdra23245-bib-0002\"\/>\n                      ). Active public health surveillance through medical record abstraction has been used to estimate FAS prevalence rates, typically based on birth cohorts. There is an extended time for FAS characteristics to become apparent in infants and young children, and there are often delays in syndrome recognition and documentation. This methodological study analyzes the age at case ascertainment in a large surveillance program.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The Fetal Alcohol Syndrome Surveillance (FASSLink) Project, funded by the Centers for Disease Control and Prevention, sought to estimate FAS prevalence rates in eight U.S. states. FASSLink used linked abstractions from multiple health care records of suspected cases of FAS. The present study analyzed data from this effort to determine the child's age in months at confirming abstraction.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The average age at abstraction for confirmed\/probable FAS cases (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009422) was 48.3 (\u00b119.5) months with a range of 0 to 94 months. Age of ascertainment varied by state and decreased with each birth year; the number of cases ascertained also decreased in a steep stepwise gradient over the 6 birth years in the study.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>\n                      FAS surveillance efforts should screen records of children who are much older than is typical in birth defects surveillance. To best establish rates of FAS using medical records abstraction, surveillance efforts should focus on 1\u2010year birth cohorts followed for a fixed number of years or, if using multi\u2010year cohorts, should implement staggered end dates allowing all births to be followed for up to 8 years of age.\n                      <jats:italic>Birth Defects Research (Part A), 100:663\u2013669, 2014<\/jats:italic>\n                      . \u00a9 2014 Wiley Periodicals, Inc.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/bdra.23245","type":"journal-article","created":{"date-parts":[[2014,4,16]],"date-time":"2014-04-16T03:06:40Z","timestamp":1397617600000},"page":"663-669","source":"Crossref","is-referenced-by-count":16,"title":["Fetal alcohol syndrome surveillance: Age of syndrome manifestation in case ascertainment"],"prefix":"10.1002","volume":"100","author":[{"given":"D. Paul","family":"Moberg","sequence":"first","affiliation":[{"name":"Population Health Institute, University of Wisconsin School of Medicine and Public Health Madison Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Bowser","sequence":"additional","affiliation":[{"name":"Population Health Institute, University of Wisconsin School of Medicine and Public Health Madison Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Larry","family":"Burd","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of North Dakota School of Medicine and Health Sciences Grand Forks North Dakota"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy J.","family":"Elliott","sequence":"additional","affiliation":[{"name":"Center for Health Outcomes and Prevention, Sanford Research Sioux Falls South Dakota"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judy","family":"Punyko","sequence":"additional","affiliation":[{"name":"Division of Community and Family Health Minnesota Department of Health St. Paul Minnesota"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgiana","family":"Wilton","sequence":"additional","affiliation":[{"name":"Department of Family Medicine University of Wisconsin School of Medicine and Public Health Madison Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"for the Fetal Alcohol Syndrome Surveillance Program\u2013FASSLink Team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,4,16]]},"reference":[{"key":"e_1_2_6_2_1","first-page":"5","article-title":"Clinical recognition of FAS: difficulties of detection and diagnosis","volume":"18","author":"Aase JM","year":"1994","journal-title":"Alcohol Health Res World"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(86)92234-8"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1530-0277.1993.tb00826.x"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/0031-9384(89)90318-1"},{"key":"e_1_2_6_6_1","article-title":"Population based surveillance for fetal alcohol syndrome in infants and young children","author":"Burd L","year":"2011","journal-title":"Unpublished manuscript"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ntt.2011.09.010"},{"key":"e_1_2_6_8_1","unstructured":"Centers for Disease Control and Prevention. 2009. 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