{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T22:54:01Z","timestamp":1777416841141,"version":"3.51.4"},"reference-count":19,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2015,3,12]],"date-time":"2015-03-12T00:00:00Z","timestamp":1426118400000},"content-version":"vor","delay-in-days":11,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["DD09-910"],"award-info":[{"award-number":["DD09-910"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2015,3]]},"abstract":"<jats:sec><jats:label\/><jats:p>Surveillance of fetal alcohol syndrome (FAS) is important for monitoring the effects of prenatal alcohol exposure and describing the public health burden of this preventable disorder. Building on the infrastructure of the Fetal Alcohol Syndrome Surveillance Network (FASSNet, 1997\u20132002), in 2009 the Centers for Disease Control and Prevention awarded 5\u2010year cooperative agreements to three states, Arizona, Colorado, and New York, to conduct population\u2010based surveillance of FAS. The Fetal Alcohol Syndrome Surveillance Network II (FASSNetII, 2009\u20132014) developed a surveillance case definition based on three clinical criteria: characteristic facial features, central nervous system abnormalities, and growth deficiency. FASSNetII modified the FASSNet methods in three important ways: (1) estimation of a period prevalence rather than birth prevalence; (2) surveillance of FAS among school\u2010age children (ages 7\u20139 years) to better document the central nervous system abnormalities that are not apparent at birth or during infancy; and (3) implementation of an expert clinical review of abstracted data for probable and confirmed cases classified through a computerized algorithm. FASSNetII abstracted data from multiple sources including birth records, medical records from child development centers or other specialty clinics, and administrative databases such as hospital discharge and Medicaid. One challenge of FASSNetII was its limited access to non\u2010medical records. The FAS prevalence that could be estimated was that of the population identified through an encounter with the healthcare system. Clinical and public health programs that identify children affected by FAS provide critical information for targeting preventive, medical and educational services in this vulnerable population. Birth Defects Research (Part A) 103:196\u2013202, 2015. \u00a9 2015 Wiley Periodicals, Inc.<\/jats:p><\/jats:sec>","DOI":"10.1002\/bdra.23335","type":"journal-article","created":{"date-parts":[[2015,3,12]],"date-time":"2015-03-12T05:28:57Z","timestamp":1426138137000},"page":"196-202","source":"Crossref","is-referenced-by-count":8,"title":["Methods for surveillance of fetal alcohol syndrome: The fetal alcohol syndrome surveillance network II (FASSNetII) \u2013 Arizona, Colorado, New York, 2009 \u2010 2014"],"prefix":"10.1002","volume":"103","author":[{"given":"Leslie A.","family":"O'Leary","sequence":"first","affiliation":[{"name":"Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities  Atlanta Georgia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Linnette","family":"Ortiz","sequence":"additional","affiliation":[{"name":"University of Arizona Department of Pediatrics Tucson Arizona"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"April","family":"Montgomery","sequence":"additional","affiliation":[{"name":"Colorado Department of Public Health and Environment Colorado Responds to Children with Special Needs Denver Colorado"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Deborah J.","family":"Fox","sequence":"additional","affiliation":[{"name":"New York State Department of Health, Congenital Malformations Registry Albany New York"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christopher","family":"Cunniff","sequence":"additional","affiliation":[{"name":"University of Arizona Department of Pediatrics Tucson Arizona"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margaret","family":"Ruttenber","sequence":"additional","affiliation":[{"name":"Colorado Department of Public Health and Environment Colorado Responds to Children with Special Needs Denver Colorado"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"April","family":"Breen","sequence":"additional","affiliation":[{"name":"New York State Department of Health Western Regional Office Buffalo New York"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sydney","family":"Pettygrove","sequence":"additional","affiliation":[{"name":"University of Arizona College of Public Health Tucson Arizona"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Don","family":"Klumb","sequence":"additional","affiliation":[{"name":"Sewall Child Development Center Denver Colorado"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlotte","family":"Druschel","sequence":"additional","affiliation":[{"name":"New York State Department of Health, Congenital Malformations Registry Albany New York"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jaime L.","family":"Fr\u00edas","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities  Atlanta Georgia"},{"name":"McKing Consulting Corporation Fairfax Virginia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luther K.","family":"Robinson","sequence":"additional","affiliation":[{"name":"Women and Children's Hospital of Buffalo Buffalo New York"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jacquelyn","family":"Bertrand","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities  Atlanta Georgia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kelly","family":"Ferrara","sequence":"additional","affiliation":[{"name":"University of Arizona Department of Pediatrics Tucson Arizona"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maureen","family":"Kelly","sequence":"additional","affiliation":[{"name":"University of Arizona Department of Pediatrics Tucson Arizona"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne M.","family":"Gilboa","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities  Atlanta Georgia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"F. 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