{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,17]],"date-time":"2026-03-17T23:15:26Z","timestamp":1773789326027,"version":"3.50.1"},"reference-count":11,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2016,11,28]],"date-time":"2016-11-28T00:00:00Z","timestamp":1480291200000},"content-version":"vor","delay-in-days":27,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Plastic Surgery Foundation 2013 Pilot Research","award":["273938"],"award-info":[{"award-number":["273938"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Birth Defects Research"],"published-print":{"date-parts":[[2016,11]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>On October 1, 2015, the United States required use of the Clinical Modification of the International Classification of Diseases, 10<jats:sup>th<\/jats:sup> Revision (ICD\u201010\u2010CM) for diagnostic coding. The ICD\u201010\u2010CM code set is limited to gross categories for cleft lip and\/or cleft palate (using only four of a possible seven characters).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Herein, a clinically useful expansion of the ICD\u201010\u2010CM code set is proposed to improve the diagnostic accuracy necessary for individual clinical, research, and statistical projects that require it. (This is similar to how the Centers for Disease Control and Prevention\/British P\u00e6diatric Association Code served to extend the ICD\u20109 code base.)<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Our proposed expansion does not replace the required use of ICD\u201010\u2010CM for clinical, administrative, or financial transactions. Rather, it is offered as an optional set of cleft codes that could be used in parallel to document true classification\u2010level data with phenotypic accuracy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The expanded set is \u201ccollapsible\u201d into the official ICD\u201010\u2010CM codes; this improves compatibility of the expanded codes that would be contained in research and epidemiologic databases with the standard codes from hospital electronic medical record systems and administrative billing data. Birth Defects Research (Part A) 106:905\u2013914, 2016. \u00a9 2016 Wiley Periodicals, Inc.<\/jats:p><\/jats:sec>","DOI":"10.1002\/bdra.23544","type":"journal-article","created":{"date-parts":[[2016,11,28]],"date-time":"2016-11-28T05:15:28Z","timestamp":1480310128000},"page":"905-914","source":"Crossref","is-referenced-by-count":12,"title":["ICD\u201010\u2013based expanded code set for use in cleft lip\/palate research and surveillance"],"prefix":"10.1002","volume":"106","author":[{"given":"Alexander C.","family":"Allori","sequence":"first","affiliation":[{"name":"Division of Plastic Maxillofacial &amp; Oral Surgery; Duke University Hospital &amp; Children's Health Center; Durham North Carolina USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Janet D.","family":"Cragan","sequence":"additional","affiliation":[{"name":"National Center on Birth Defects and Developmental Disabilities (NCBDDD) Centers for Disease Control and Prevention (CDC) Atlanta Georgia USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cynthia H.","family":"Cassell","sequence":"additional","affiliation":[{"name":"Center for Global Health Centers for Disease Control and Prevention (CDC) Atlanta Georgia USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeffrey R.","family":"Marcus","sequence":"additional","affiliation":[{"name":"Division of Plastic Maxillofacial &amp; Oral Surgery; Duke University Hospital &amp; Children's Health Center; Durham North Carolina USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2016,11,28]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1597\/15-219"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1597\/14-080"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.23415"},{"key":"e_1_2_11_5_1","unstructured":"Centers for Disease Control and Prevention (CDC).The ICD\u201010 transition and public health surveillance \u2010 what you need to know. 2013:1\u20132. Available at:http:\/\/www.cdc.gov\/nchs\/icd\/icd10cm_pcs.htm. Accessed January 7 2014."},{"key":"e_1_2_11_6_1","first-page":"54663","article-title":"Administrative simplification: adoption of standard for unique health plan identifier; addition to national provider identifier requirements; and a change to the compliance date for the international classification of diseases, 10th edition (ICD\u201010\u2010CM and ICD\u201010\u2010PCS) medical data code sets","author":"Department of Health and Human Services (HHS), Centers for Medicare and Medicaid Services (CMS)","year":"2012","journal-title":"Federal Register"},{"key":"e_1_2_11_7_1","volume-title":"Guidelines for conducting birth defects surveillance","author":"National Birth Defects Prevention Network (NBDPN)","year":"2004"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/tera.1077"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.10012"},{"key":"e_1_2_11_10_1","volume-title":"Division Palatine: Anatomie, Chirurgie, Phon\u00e9tique","author":"Veau V","year":"1931"},{"key":"e_1_2_11_11_1","unstructured":"World Health Organization (WHO).ICD information sheet. Available at:http:\/\/www.who.int\/classifications\/icd\/factsheet\/en\/index.html. 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