{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T02:30:58Z","timestamp":1777948258642,"version":"3.51.4"},"reference-count":70,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T00:00:00Z","timestamp":1772150400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T00:00:00Z","timestamp":1772150400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100001659","name":"Deutsche Forschungsgemeinschaft","doi-asserted-by":"publisher","award":["NE 2419\/1\u20101"],"award-info":[{"award-number":["NE 2419\/1\u20101"]}],"id":[{"id":"10.13039\/501100001659","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000267","name":"Arts and Humanities Research Council","doi-asserted-by":"publisher","award":["AH\/T013281\/1"],"award-info":[{"award-number":["AH\/T013281\/1"]}],"id":[{"id":"10.13039\/501100000267","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000781","name":"European Research Council","doi-asserted-by":"publisher","award":["BT 101115642"],"award-info":[{"award-number":["BT 101115642"]}],"id":[{"id":"10.13039\/501100000781","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Ber Wissenschaftsgesch"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:p>The West German drug Duogynon was internationally marketed as a \u201chormone pregnancy test\u201d (HPT) between the 1950s and 1980s. In the late 1960s it came under suspicion for inducing miscarriage, spina bifida, and a spectrum of birth defects similar to those caused by the sedative thalidomide. In contrast to thalidomide, medical consensus did not form around the teratogenicity of Duogynon and many people who identify as Duogynon\u2010affected continue to campaign for recognition. The informal use of Duogynon as an abortion pill adds a further layer of shame, secrecy, and silence. In this article, we reflect on the value of oral history and the ethics of inclusion within a larger research project that investigates the rise and fall of HPTs, globally. We ask what collaborating with patient campaigners in a more participatory mode than is typical of archival research can contribute to the historical understanding of the Duogynon affair and other drug scandals.<\/jats:p>","DOI":"10.1002\/bewi.70014","type":"journal-article","created":{"date-parts":[[2026,3,8]],"date-time":"2026-03-08T19:02:02Z","timestamp":1772996522000},"page":"50-65","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Learning with Patient Campaigners About a German Drug Scandal**"],"prefix":"10.1002","volume":"49","author":[{"given":"Jesse","family":"Olszynko\u2010Gryn","sequence":"first","affiliation":[{"name":"Max\u2010Planck\u2010Institut f\u00fcr Wissenschaftsgeschichte  Boltzmannstra\u00dfe 22 14195 Berlin Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anja","family":"Suter","sequence":"additional","affiliation":[{"name":"Institut f\u00fcr Geschichte der Medizin und Ethik in der Medizin Charit\u00e9 \u2010 Universit\u00e4tsmedizin Berlin  Thielallee 71 14195 Berlin Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edmund","family":"Bolger","sequence":"additional","affiliation":[{"name":"Independent Filmmaker,  Berlin Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2359-5556","authenticated-orcid":false,"given":"Birgit","family":"Nemec","sequence":"additional","affiliation":[{"name":"Fakult\u00e4tszentrum f\u00fcr transdisziplin\u00e4re historisch\u2010kulturwissenschaftliche Studien Universit\u00e4t Wien  Kolingasse 14\u201016 1090 Wien Austria"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,2,27]]},"reference":[{"key":"e_1_2_13_2_1","unstructured":"Blue Ruth \u201cVoices of Thalidomide \u201dWellcome Stories 22 April\u201327 May2021 https:\/\/wellcomecollection.org\/series\/voices\u2010of\u2010thalidomide."},{"key":"e_1_2_13_3_1","volume-title":"Oral History, Health and Welfare","author":"Bornat Joanna","year":"2000"},{"key":"e_1_2_13_4_1","volume-title":"Politiken der Normalisierung. Zur Geschichte der Behindertenpolitik in der Bundesrepublik Deutschland","author":"B\u00f6sl Elsbeth","year":"2009"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41598\u2010018\u201021318\u20109"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.24242\/jclis.v1i2.50"},{"key":"e_1_2_13_7_1","volume-title":"Listening on the Edge: Oral History in the Aftermath of Crisis","author":"Cave Mark","year":"2014"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/00940798.2024.2380507"},{"key":"e_1_2_13_9_1","volume-title":"Nothing about Us without Us: Disability Oppression and Empowerment","author":"Charlton James I.","year":"2000"},{"key":"e_1_2_13_10_1","unstructured":"Chisholm Christine Anne \u201cLife After the Scandal: Thalidomide Family and Rehabilitation in Modern Canada 1958\u20131990\u201d (Ph.D. Thesis Carleton University 2019)."},{"key":"e_1_2_13_11_1","volume-title":"Family Secrets: Shame and Privacy in Modern Britain","author":"Cohen Deborah","year":"2013"},{"key":"e_1_2_13_12_1","unstructured":"Commission on Human Medicines Report on the Commission on Human Medicines Expert Working Group on Hormone Pregnancy Tests(October2017) https:\/\/www.gov.uk\/government\/publications\/report\u2010of\u2010the\u2010commission\u2010on\u2010human\u2010medicines\u2010expert\u2010working\u2010group\u2010on\u2010hormone\u2010pregnancy\u2010tests."},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1353\/bhm.2013.0047"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1080\/00940798.2020.1793679"},{"key":"e_1_2_13_15_1","volume-title":"First Do No Harm: The Report of the Independent Medicines and Medical Devices Safety Review","author":"Cumberlege Julia","year":"2020"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdr2.2462"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.reprotox.2023.108488"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/00940798.2025.2468515"},{"key":"e_1_2_13_19_1","first-page":"598","volume-title":"The Oxford Handbook of the History of Medicine","author":"Fisher Kate","year":"2011"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1038\/216083a0"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.shpsc.2005.09.005"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1080\/00940798.2021.1927765"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjebm-2019-111307"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.12688\/f1000research.16758.2"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.1093\/ohr\/22.1.1"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.52412\/mf.2024.H4.3565"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.56021\/9781421445342"},{"key":"e_1_2_13_28_1","volume-title":"Archives Power: Memory, Accountability, and Social Justice","author":"Jimmerson Randall C.","year":"2009"},{"key":"e_1_2_13_29_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2022.307088"},{"key":"e_1_2_13_30_1","unstructured":"Jurkschat Roberto \u201cFehlbildungen nach Schwangerschaftstest seit Jahren ungekl\u00e4rt \u201dRBB24 4 April2025 https:\/\/www.rbb24.de\/panorama\/beitrag\/2025\/04\/berlin\u2010duogynon\u2010schwangerschaftstest\u2010gutachten\u2010schering\u2010ag\u2010bayer\u2010fehlbildungen.html."},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.15203\/ZDS_2025_1.04"},{"key":"e_1_2_13_32_1","doi-asserted-by":"publisher","DOI":"10.1093\/oxfordhb\/9780190234959.013.1"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1093\/ohr\/oht028"},{"key":"e_1_2_13_34_1","unstructured":"Lenhard\u2010Schramm Niklas \u201cDer Fall Duogynon: Ein Zweiter Contergan\u2010Skandal?\u201dDeutsche Apotheker Zeitung 4 October2018 https:\/\/www.deutsche\u2010apotheker\u2010zeitung.de\/daz\u2010az\/2018\/daz\u201040\u20102018\/der\u2010fall\u2010duogynon."},{"key":"e_1_2_13_35_1","volume-title":"Sachverhaltsaufkl\u00e4rung zum Handeln deutscher Aufsichtsbeh\u00f6rden bei Registrierung, Zulassung, Arzneimittelsicherheit und Marktr\u00fccknahme des hormonellen Schwangerschaftstests \u201cDuogynon\u201d","author":"Lenhard\u2010Schramm Niklas","year":"2022"},{"key":"e_1_2_13_36_1","volume-title":"Die Duogynon\u2010Aff\u00e4re: Staatliche Arzneimittelregulierung in der Bundesrepublik Zwischen \u00d6ffentlichkeit, Recht und Medizin 1949\u20131981","author":"Lenhard\u2010Schramm Niklas","year":"2024"},{"key":"e_1_2_13_37_1","unstructured":"Lewens Tim \u201cOn the Adequacy of Evidence for a Causal Association between Primodos and Birth Defects \u201d unpublished manuscript 11 December2024."},{"key":"e_1_2_13_38_1","doi-asserted-by":"publisher","DOI":"10.1353\/bhm.2013.0074"},{"key":"e_1_2_13_39_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.m2726"},{"key":"e_1_2_13_40_1","doi-asserted-by":"publisher","DOI":"10.1086\/730402"},{"key":"e_1_2_13_41_1","doi-asserted-by":"publisher","DOI":"10.1086\/730401"},{"key":"e_1_2_13_42_1","doi-asserted-by":"publisher","DOI":"10.1002\/bewi.70010"},{"key":"e_1_2_13_43_1","doi-asserted-by":"publisher","DOI":"10.18574\/nyu\/9781479815654.001.0001"},{"key":"e_1_2_13_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbms.2021.09.003"},{"key":"e_1_2_13_45_1","volume-title":"Die Reisekader. Auswahl und Disziplinierung einer privilegierten Minderheit in der DDR","author":"Niederhut Jens","year":"2005"},{"key":"e_1_2_13_46_1","doi-asserted-by":"publisher","DOI":"10.7551\/mitpress\/13917.001.0001"},{"key":"e_1_2_13_47_1","doi-asserted-by":"publisher","DOI":"10.1126\/science.adi5325"},{"key":"e_1_2_13_48_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbms.2018.09.003"},{"key":"e_1_2_13_49_1","first-page":"1","article-title":"Oral\u2010History.Digital: Eine Erschlie\u00dfungs\u2010 und Rechercheplattform f\u00fcr audiovisuelle narrative Forschungsdaten","volume":"11","author":"Pagenstecher Cord","year":"2024","journal-title":"O\u2010Bib. Das Offene Bibliotheksjournal"},{"key":"e_1_2_13_50_1","doi-asserted-by":"publisher","DOI":"10.1093\/shm\/hkz011"},{"key":"e_1_2_13_51_1","volume-title":"What We Have Done: An Oral History of the Disability Rights Movement","author":"Pelka Fred","year":"2012"},{"key":"e_1_2_13_52_1","volume-title":"Communities, Archives and New Collaborative Practices","author":"Popple Simon","year":"2020"},{"key":"e_1_2_13_53_1","volume-title":"Belastete Familien? Eine Alltagsgeschichte westdeutscher Haushalte mit behinderten Kindern (1945\u20131990)","author":"R\u00f6ssel Raphael","year":"2022"},{"key":"e_1_2_13_54_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF02435628"},{"key":"e_1_2_13_55_1","doi-asserted-by":"publisher","DOI":"10.1057\/9781137339652_1"},{"key":"e_1_2_13_56_1","doi-asserted-by":"publisher","DOI":"10.1093\/ohr\/ohw071"},{"key":"e_1_2_13_57_1","doi-asserted-by":"publisher","DOI":"10.1215\/9780822395041"},{"key":"e_1_2_13_58_1","first-page":"430","volume-title":"The Oxford Handbook of Oral History","author":"Smith Graham","year":"2010"},{"key":"e_1_2_13_59_1","doi-asserted-by":"publisher","DOI":"10.1080\/13619462.2022.2045199"},{"key":"e_1_2_13_60_1","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctt7rtrg"},{"key":"e_1_2_13_61_1","volume-title":"Behinderte Anerkennung? Interessenorganisationen von Menschen mit Behinderungen in Westdeutschland seit 1945","author":"Stoll Jan","year":"2017"},{"key":"e_1_2_13_62_1","doi-asserted-by":"publisher","DOI":"10.56021\/9781421452265"},{"key":"e_1_2_13_63_1","doi-asserted-by":"publisher","DOI":"10.1093\/shm\/4.2.371"},{"key":"e_1_2_13_64_1","doi-asserted-by":"publisher","DOI":"10.2307\/2079538"},{"key":"e_1_2_13_65_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.reprotox.2013.12.007"},{"key":"e_1_2_13_66_1","doi-asserted-by":"publisher","DOI":"10.1093\/shm\/hkad100"},{"key":"e_1_2_13_67_1","doi-asserted-by":"crossref","unstructured":"Vargesson Neil \u201cIs Primodos \u2018The Forgotten Thalidomide\u2019?\u201dThe Conversation 8 February2016 https:\/\/theconversation.com\/is\u2010primodos\u2010the\u2010forgotten\u2010thalidomide\u201050673.","DOI":"10.64628\/AB.xcjfrhgk5"},{"key":"e_1_2_13_68_1","doi-asserted-by":"crossref","unstructured":"Von Miquel Marc \u201cReview of Niklas Lenhard\u2010Schramm Die Duogynon\u2010Aff\u00e4re. Staatliche Arzneimittelregulierung in der Bundesrepublik zwischen \u00d6ffentlichkeit Recht und Medizin 1949\u20131981(G\u00f6ttingen: Wallstein 2025) \u201dH\u2010Soz\u2010Kult 11 June2025 https:\/\/www.hsozkult.de\/publicationreview\/id\/reb\u2010154173.","DOI":"10.5771\/9783835386068-33"},{"key":"e_1_2_13_69_1","doi-asserted-by":"publisher","DOI":"10.1080\/09687590220148496"},{"key":"e_1_2_13_70_1","unstructured":"Wildblood Florence \u201cPrimodos Paternalism and the Fight to be Heard \u201dWellcome Stories 14 February2024 https:\/\/wellcomecollection.org\/stories\/primodos\u2010\u2010paternalism\u2010and\u2010the\u2010fight\u2010to\u2010be\u2010heard."},{"key":"e_1_2_13_71_1","doi-asserted-by":"publisher","DOI":"10.1017\/mdh.2023.27"}],"container-title":["Berichte zur Wissenschaftsgeschichte"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bewi.70014","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/bewi.70014","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bewi.70014","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,3]],"date-time":"2026-05-03T06:16:23Z","timestamp":1777788983000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/bewi.70014"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,27]]},"references-count":70,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,3]]}},"alternative-id":["10.1002\/bewi.70014"],"URL":"https:\/\/doi.org\/10.1002\/bewi.70014","archive":["Portico"],"relation":{},"ISSN":["0170-6233","1522-2365"],"issn-type":[{"value":"0170-6233","type":"print"},{"value":"1522-2365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,27]]},"assertion":[{"value":"2025-02-02","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-02-27","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}