{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:26:07Z","timestamp":1791419167324,"version":"4.3.3"},"reference-count":57,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2020,7,7]],"date-time":"2020-07-07T00:00:00Z","timestamp":1594080000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Caroline Montgomery Foundation"},{"DOI":"10.13039\/501100004875","name":"Norrbacka-Eugenia Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100004875","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Foundation of Neuro Sweden"},{"name":"Foundation of Linn\u00e9a and Josef Carlsson"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Brain and Behavior"],"published-print":{"date-parts":[[2020,8]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To describe health issues and living conditions in a cohort of adults living with Spina bifida.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Material and methods<\/jats:title>\n                    <jats:p>A cross\u2010sectional study was conducted by a multidisciplinary team.<\/jats:p>\n                    <jats:p>\n                      Adults with spina bifida (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a0219) were invited to participate. One\u2010hundred\u2010and\u2010ninety\u2010six persons (104 women and 92 men; 18\u201373\u00a0years, median age 33\u00a0years) were included. Structured interviews, questionnaires, and clinical assessments for medical, social, physical, and cognitive functions were used.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      There was large variation among participants as regards the consequences of their spina bifida. Individuals &lt; 46\u00a0years seemed to have more secondary conditions such as hydrocephalus, Chiari II malformation, tethered cord symptoms, and latex allergy. A higher proportion of the individuals\n                      <jats:styled-content>&gt;<\/jats:styled-content>\n                      46\u00a0years and older was able to walk, and they had performed better in primary school and on tests of psychomotor speed and executive function.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study demonstrates that adults with spina bifida have a complex set of physical, cognitive, and social needs that need to be addressed in order to improve their health issues and living conditions. The high prevalence of urinary and fecal incontinence, pain, and overweight underline that these issues need much attention during follow\u2010up. The future generations of older adults may need more attention in many ways, since they at a younger age do have more complex medical conditions, lower physical and cognitive functions, and lower prerequisites for independent living and participation in society than those &gt;\u00a046\u00a0years today. This elucidates that adults with spina bifida need systematic follow\u2010up services and social support throughout life.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/brb3.1736","type":"journal-article","created":{"date-parts":[[2020,7,7]],"date-time":"2020-07-07T04:05:24Z","timestamp":1594094724000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":32,"title":["Adults with spina bifida: A cross\u2010sectional study of health issues and living conditions"],"prefix":"10.1002","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9406-4280","authenticated-orcid":false,"given":"Martina","family":"Bendt","sequence":"first","affiliation":[{"name":"Rehab Station Stockholm Spinalis Outpatient Clinic Solna Sweden"},{"name":"Department of Neurobiology, Care Science and Society Karolinska Institutet Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7813-3351","authenticated-orcid":false,"given":"Hanna","family":"Gabrielsson","sequence":"additional","affiliation":[{"name":"Rehab Station Stockholm Spinalis Outpatient Clinic Solna Sweden"},{"name":"Faculty of Medicine and Health School of Health Sciences \u00d6rebro University \u00d6rebro Sweden"},{"name":"Ersta Sk\u00f6ndal Br\u00e4cke University College Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorothee","family":"Riedel","sequence":"additional","affiliation":[{"name":"Spinalis Foundation Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G\u00f6ran","family":"Hagman","sequence":"additional","affiliation":[{"name":"Department of Neurobiology, Care Science and Society Karolinska Institutet Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claes","family":"Hultling","sequence":"additional","affiliation":[{"name":"Department of Neurobiology, Care Science and Society Karolinska Institutet Stockholm Sweden"},{"name":"Spinalis Foundation Stockholm Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erika","family":"Franz\u00e9n","sequence":"additional","affiliation":[{"name":"Department of Neurobiology, Care Science and Society Division of Physiotherapy Karolinska Institutet Stockholm Sweden"},{"name":"Function Area Occupational Therapy &amp; 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