{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,23]],"date-time":"2025-12-23T07:10:28Z","timestamp":1766473828134,"version":"3.48.0"},"reference-count":44,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,11,6]],"date-time":"2025-11-06T00:00:00Z","timestamp":1762387200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["P30AG066444"],"award-info":[{"award-number":["P30AG066444"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["P01AG003991"],"award-info":[{"award-number":["P01AG003991"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["P01AG026276"],"award-info":[{"award-number":["P01AG026276"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Alzheimer's &amp; Dementia: Behavior &amp; Socioeconomics of Aging"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Recruiting and retaining participants in Alzheimer's disease (AD) research poses a consistent challenge. Remuneration is one \u201creadily modifiable factor\u201d that could improve recruitment and retention in longitudinal observational AD research, and guidance suggests that all participants and their study partners receive remuneration for participating in AD longitudinal research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We surveyed study partners (\n                      <jats:italic>N\u00a0<\/jats:italic>\n                      =\u00a0517) at one Alzheimer's Disease Research Center in the United States regarding their views on remuneration.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Study partners felt largely neutral to positive regarding remuneration. Self\u2010identified Black study partners had more positive views on remuneration than White study partners. Study partners with the least favorable views on remuneration perceived a lower participation burden and were less motivated by the perceived personal benefits of participating. All study partners were motivated by altruism and committed to continued participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Most study partners perceive remuneration as acceptable. Remuneration may improve recruitment and retention of historically underrepresented groups.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/bsa3.70048","type":"journal-article","created":{"date-parts":[[2025,11,7]],"date-time":"2025-11-07T03:50:31Z","timestamp":1762487431000},"source":"Crossref","is-referenced-by-count":0,"title":["Study partners\u2019 views on remuneration in longitudinal Alzheimer's disease research"],"prefix":"10.1002","volume":"1","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3295-0698","authenticated-orcid":false,"given":"Erin D.","family":"Solomon","sequence":"first","affiliation":[{"name":"Bioethics Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew","family":"Gabel","sequence":"additional","affiliation":[{"name":"Department of Political Science Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Semere","family":"Bekena","sequence":"additional","affiliation":[{"name":"Bioethics Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Spondita","family":"Goswami","sequence":"additional","affiliation":[{"name":"Bioethics Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Krista L.","family":"Moulder","sequence":"additional","affiliation":[{"name":"Knight Alzheimer Disease Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John C.","family":"Morris","sequence":"additional","affiliation":[{"name":"Knight Alzheimer Disease Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4942-4571","authenticated-orcid":false,"given":"Jessica","family":"Mozersky","sequence":"additional","affiliation":[{"name":"Bioethics Research Center Washington University  St. Louis Missouri USA"},{"name":"Knight Alzheimer Disease Research Center Washington University  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,11,6]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"National Institute on Aging: Funded Alzheimer's Disease Reseach Centers.2024.https:\/\/www.nia.nih.gov\/research\/adc"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/acn3.50938"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13195-019-0539-3"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13195-018-0425-4"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0000000000000047"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0000000000000016"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/alzrt58"},{"volume-title":"Medicines in Development: Alzheimer's Disease","year":"2013","author":"Pharmaceutical Research and Manufacturers of America","key":"e_1_2_11_9_1"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMsr1203730"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-215710"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0000000000000514"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301216648796"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-230079"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.trci.2016.09.004"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1159\/000339361"},{"issue":"2","key":"e_1_2_11_17_1","article-title":"Representativeness of samples enrolled in Alzheimer's disease research centers","volume":"15","author":"Arce Renteria M","year":"2023","journal-title":"Alzheimers Dement"},{"key":"e_1_2_11_18_1","first-page":"71","volume-title":"Special Report: Race, Ethnicity and Alzheimer's in America","author":"Alzheimer's Association","year":"2021"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jalz.2018.09.009"},{"volume-title":"Guidance on Offers of Payment to Research Participants","year":"2023","author":"National Alzheimer's Coordinating Center","key":"e_1_2_11_20_1"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/medethics-2018-105140"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.14542"},{"volume-title":"Guidance on Offers of Payment to Research Participants","year":"2023","author":"National Alzheimer's Coordinating Center","key":"e_1_2_11_23_1"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMsb1710591"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1172\/JCI25694"},{"issue":"1","key":"e_1_2_11_26_1","first-page":"61","article-title":"Paying research participants: regulatory uncertainty, conceptual confusion, and a path forward","volume":"17","author":"Largent EA","year":"2017","journal-title":"Yale J Health Policy Law Ethics"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0000000000000556"},{"issue":"4","key":"e_1_2_11_28_1","first-page":"1","article-title":"Paying research participants: the outsized influence of \u201cundue influence\u201d","volume":"39","author":"Largent EA","year":"2017","journal-title":"IRB"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41586-022-05512-4"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.1002\/eahr.500147"},{"volume-title":"Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research","year":"2018","author":"National Institute on Aging","key":"e_1_2_11_31_1"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.1212\/wnl.43.11.2412-a"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.WNL.0000098933.34804.FC"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"key":"e_1_2_11_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2019.103208"},{"key":"e_1_2_11_36_1","doi-asserted-by":"publisher","DOI":"10.1177\/1556264614545037"},{"key":"e_1_2_11_37_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0000000000000532"},{"key":"e_1_2_11_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.2007.00161.x"},{"key":"e_1_2_11_39_1","doi-asserted-by":"publisher","DOI":"10.1037\/met0000200"},{"key":"e_1_2_11_40_1","doi-asserted-by":"publisher","DOI":"10.1177\/1740774520982315"},{"key":"e_1_2_11_41_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610214001203"},{"key":"e_1_2_11_42_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.trci.2019.09.018"},{"key":"e_1_2_11_43_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.70168"},{"issue":"3","key":"e_1_2_11_44_1","article-title":"Barriers and solutions to Alzheimer's disease clinical trial participation for Black Americans","volume":"9","author":"Savold J","year":"2023","journal-title":"Alzheimers Dement"},{"key":"e_1_2_11_45_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.70240"}],"container-title":["Alzheimer's &amp; Dementia: Behavior &amp; Socioeconomics of Aging"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/bsa3.70048","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,23]],"date-time":"2025-12-23T07:08:22Z","timestamp":1766473702000},"score":1,"resource":{"primary":{"URL":"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/bsa3.70048"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11,6]]},"references-count":44,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2025,12]]}},"alternative-id":["10.1002\/bsa3.70048"],"URL":"https:\/\/doi.org\/10.1002\/bsa3.70048","archive":["Portico"],"relation":{},"ISSN":["2997-3805","2997-3805"],"issn-type":[{"type":"print","value":"2997-3805"},{"type":"electronic","value":"2997-3805"}],"subject":[],"published":{"date-parts":[[2025,11,6]]},"article-number":"e70048"}}