{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T16:26:06Z","timestamp":1790353566953,"version":"4.1.0"},"reference-count":56,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2022,7,25]],"date-time":"2022-07-25T00:00:00Z","timestamp":1658707200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004622","name":"KWF Kankerbestrijding","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004622","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cancer Medicine"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Adolescents and young adults (AYAs) diagnosed with cancer fulfill their cancer\u2010related information needs often via the Internet. Healthcare professionals (HCPs) have a crucial role in guiding patients in finding appropriate online information and eHealth sources, a role that is often overlooked. Misperceptions of AYAs' needs by HCPs may lead to suboptimal guidance. We aimed to examine the extent to which AYAs' online information and eHealth needs corresponded with HCPs' perceptions of these needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Two cross\u2010sectional online surveys (AYAs, <jats:italic>n<\/jats:italic>\u00a0=\u2009299; HCP, <jats:italic>n<\/jats:italic>\u00a0=\u200980) on online information and eHealth needs were conducted. HCPs provided indications of their perceptions of AYA's needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>AYAs reported significantly more online information needs compared with HCPs' perceptions regarding: survival rates (AYA\u00a0=\u00a069%, HCP\u00a0=\u00a035%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.001), treatment guidelines (AYA\u00a0=\u00a065%, HCP\u00a0=\u00a041%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.001), return of cancer (AYA\u00a0=\u00a076%, HCP\u00a0=\u00a059%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.004), \u201cwhat can I do myself\u201d (AYA\u00a0=\u00a068%, HCP\u00a0=\u00a054%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.029), and metastases (AYA\u00a0=\u00a064%, HCP\u00a0=\u00a050%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.040). Significantly more unmet eHealth needs were reported by AYAs compared with HCPs relating to access to own test results (AYA\u00a0=\u00a025, HCP\u00a0=\u00a00%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.001), request tests (AYA\u00a0=\u00a030%, HCP\u00a0=\u00a07%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.001), medical information (AYA\u00a0=\u00a022%, HCP\u00a0=\u00a00%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.001), e\u2010consult with nurses (AYA\u00a0=\u00a030%, HCP\u00a0=\u00a010%, <jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.001), e\u2010consult with physicians (AYA\u00a0=\u00a038%, HCP\u00a0=\u00a013%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.001), and request prescriptions (AYA\u00a0=\u00a033%, HCP\u00a0=\u00a021%, <jats:italic>p<\/jats:italic>\u00a0=\u20090.009).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>AYAs' online information and eHealth needs are partially discrepant with the impression HCPs have, which could result in insufficient guidance related to AYAs' needs. AYAs and HCPs should get guidance regarding where to find optimal information in a language they understand. This may contribute to AYAs' access, understanding, and satisfaction regarding online information and eHealth.<\/jats:p><\/jats:sec>","DOI":"10.1002\/cam4.5048","type":"journal-article","created":{"date-parts":[[2022,7,26]],"date-time":"2022-07-26T04:06:13Z","timestamp":1658808373000},"page":"2016-2026","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["<scp>AYAs<\/scp>' online information and <scp>eHealth<\/scp> needs: A comparison with healthcare professionals' perceptions"],"prefix":"10.1002","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6862-0172","authenticated-orcid":false,"given":"Dani\u00eblle L.","family":"van de Graaf","sequence":"first","affiliation":[{"name":"CoRPS \u2010 Center of Research on Psychological disorders and Somatic diseases, Department of Medical and Clinical Psychology Tilburg University  Tilburg The Netherlands"},{"name":"Department of Research and Development Netherlands Comprehensive Cancer Organisation (IKNL)  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8885-6302","authenticated-orcid":false,"given":"Carla","family":"Vlooswijk","sequence":"additional","affiliation":[{"name":"Department of Research and Development Netherlands Comprehensive Cancer Organisation (IKNL)  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nadine","family":"Bol","sequence":"additional","affiliation":[{"name":"Tilburg Center for Cognition and Communication (TiCC) Tilburg University  Tilburg The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emiel J.","family":"Krahmer","sequence":"additional","affiliation":[{"name":"Tilburg Center for Cognition and Communication (TiCC) Tilburg University  Tilburg The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhod\u00e9","family":"Bijlsma","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology University Medical Center  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8063-0074","authenticated-orcid":false,"given":"Suzanne","family":"Kaal","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology Radboud University Medical Center  Nijmegen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sophia H. E.","family":"Sleeman","sequence":"additional","affiliation":[{"name":"Dutch AYA \u201cYoung and Cancer\u201d Care Network  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7549-3338","authenticated-orcid":false,"given":"Winette T. A.","family":"van der Graaf","sequence":"additional","affiliation":[{"name":"Department of Surgical Oncology Netherlands Cancer Institute  Amsterdam The Netherlands"},{"name":"Department of Medical Oncology Erasmus MC Cancer Institute, Erasmus MC  Rotterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olga","family":"Husson","sequence":"additional","affiliation":[{"name":"Division of Psychosocial Research and Epidemiology Netherlands Cancer Institute  Amsterdam The Netherlands"},{"name":"Department of Surgical Oncology Erasmus MC Cancer Institute, Erasmus MC  Rotterdam The Netherlands"},{"name":"Division of Clinical Studies Institute of Cancer Research  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6731-3296","authenticated-orcid":false,"given":"Mies C.","family":"van Eenbergen","sequence":"additional","affiliation":[{"name":"Department of Research and Development Netherlands Comprehensive Cancer Organisation (IKNL)  Utrecht The Netherlands"},{"name":"Tilburg Center for Cognition and Communication (TiCC) Tilburg University  Tilburg The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,7,25]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers12113421"},{"key":"e_1_2_11_3_1","unstructured":"KaalS.Adolescents and Young Adults (AYA) with Cancer: Towards Optimising Age\u2010Specific Care;2018.https:\/\/aya4net.nl\/wp\u2010content\/uploads\/2018\/10\/Proefschrift\u2010Suzanne\u2010Kaal_2018.pdf. Accessed June 9 2020."},{"key":"e_1_2_11_4_1","unstructured":"AYA Zorgnetwerk.https:\/\/ayazorgnetwerk.nl\/. Accessed March 11 2022."},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/ecc.12558"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-013-2053-7"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1089\/JAYAO.2016.0012"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1108\/10748120110424816"},{"key":"e_1_2_11_9_1","unstructured":"PoushterJ StewartR.Smartphone Ownership and Internet Usage Continues to Climb in Emerging Economies. Vol22.;2016."},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11764-017-0618-z"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1200\/cci.17.00138"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0000000000000619"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/annonc\/mdq413"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-017-3984-1"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-008-0469-2"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13187-015-0887-z"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2005.01233.x"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2354.2008.00936.x"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1097\/CMR.0000000000000464"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1752"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.3322\/canjclin.53.6.356"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.32524"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/imj.13086"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2017.11.032"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2354.2006.00742.x"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2006.08.015"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13187-015-0945-6"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.2056"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1002\/PBC.27931"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.breast.2015.10.001"},{"key":"e_1_2_11_31_1","doi-asserted-by":"publisher","DOI":"10.1002\/jso.24046"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.7717\/peerj.7634"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.3706"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2019.02.004"},{"key":"e_1_2_11_35_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730903032945"},{"key":"e_1_2_11_36_1","doi-asserted-by":"publisher","DOI":"10.1258\/shorts.2010.010032"},{"key":"e_1_2_11_37_1","doi-asserted-by":"publisher","DOI":"10.1054\/bjoc.2000.1573"},{"key":"e_1_2_11_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2011.04.034"},{"key":"e_1_2_11_39_1","unstructured":"Centraal Bureau voor de Statistiek.Access to Internet and Internet Activities.https:\/\/www.cbs.nl\/nl\u2010nl\/cijfers\/detail\/84888ned. Accessed March 4 2022."},{"key":"e_1_2_11_40_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13187-012-0416-2"},{"key":"e_1_2_11_41_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2354.2009.01169.x"},{"key":"e_1_2_11_42_1","unstructured":"LeiCP HarYC AbdullahKL.Informational Needs of Breast Cancer Patients on Chemotherapy: Differences between Patients' and Nurses' Perceptions. Vol12.;2011.http:\/\/journal.waocp.org\/article_25611_d917f4d1c0139f45224007c83839c1c7.pdf. Accessed January 25 2021."},{"key":"e_1_2_11_43_1","doi-asserted-by":"publisher","DOI":"10.5772\/35825"},{"key":"e_1_2_11_44_1","doi-asserted-by":"publisher","DOI":"10.1089\/JAYAO.2018.0111"},{"key":"e_1_2_11_45_1","doi-asserted-by":"publisher","DOI":"10.1089\/jayao.2017.0056"},{"key":"e_1_2_11_46_1","doi-asserted-by":"publisher","DOI":"10.1310\/tsr1702-69"},{"key":"e_1_2_11_47_1","unstructured":"HussonO LigtenbergM L.V.van dePoll\u2010Franse J.B.Prins M.J.van denBent M.C.vanEenbergen E.Manten\u2010Horst R.M.Bijlsma S.J.E.Kaal J.M.Tromp A.Verschoor M.E.M.M.Bos J.Nuver Y.Jauw R.I.Lalisang S.Sleeman C.Vlooswijk J.A.Gietema W.T.van derGraaf.COMPRAYA: Dutch nationwide infrastructure for COMPRehensive health outcome and intervention research among patients with adolescent and young adult. Elsevierhttps:\/\/www.sciencedirect.com\/science\/article\/pii\/S0923753419598696. Accessed March 14 2022."},{"key":"e_1_2_11_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/107327480801500107"},{"key":"e_1_2_11_49_1","doi-asserted-by":"publisher","DOI":"10.1007\/S11764-020-00913-8"},{"key":"e_1_2_11_50_1","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S171892"},{"key":"e_1_2_11_51_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11764-015-0451-1"},{"key":"e_1_2_11_52_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11764-008-0055-0"},{"key":"e_1_2_11_53_1","doi-asserted-by":"publisher","DOI":"10.1080\/08858190902876601"},{"key":"e_1_2_11_54_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3999(99)00109-9"},{"key":"e_1_2_11_55_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730500263620"},{"key":"e_1_2_11_56_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730590934217"},{"key":"e_1_2_11_57_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730.2010.522688"}],"container-title":["Cancer Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/cam4.5048","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/cam4.5048","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/cam4.5048","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,19]],"date-time":"2023-08-19T13:47:26Z","timestamp":1692452846000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/cam4.5048"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,7,25]]},"references-count":56,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2023,1]]}},"alternative-id":["10.1002\/cam4.5048"],"URL":"https:\/\/doi.org\/10.1002\/cam4.5048","archive":["Portico"],"relation":{},"ISSN":["2045-7634","2045-7634"],"issn-type":[{"value":"2045-7634","type":"print"},{"value":"2045-7634","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,7,25]]},"assertion":[{"value":"2021-12-10","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-07-07","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-07-25","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}