{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T12:15:54Z","timestamp":1791288954619,"version":"4.3.0"},"reference-count":35,"publisher":"Wiley","issue":"18","license":[{"start":{"date-parts":[[2023,8,18]],"date-time":"2023-08-18T00:00:00Z","timestamp":1692316800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100007316","name":"Division of Cancer Prevention, National Cancer Institute","doi-asserted-by":"publisher","award":["P30\u2010CA076292"],"award-info":[{"award-number":["P30\u2010CA076292"]}],"id":[{"id":"10.13039\/100007316","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cancer Medicine"],"published-print":{"date-parts":[[2023,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient\u2010reported data can improve quality of healthcare delivery and patient outcomes. Moffitt Cancer Center (\u201cMoffitt\u201d) administers the Electronic Patient Questionnaire (EPQ) to collect data on demographics, including sexual orientation and gender identity (SOGI), medical history, cancer risk factors, and quality of life. Here we investigated differences in EPQ completion by demographic and cancer characteristics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>An analysis including 146,142 new adult patients at Moffitt in 2009\u20132020 was conducted using scheduling, EPQ and cancer registry data. EPQ completion was described by calendar year and demographics. Logistic regression was used to estimate associations between demographic\/cancer characteristics and EPQ completion. More recently collected information on SOGI were described.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Patient portal usage (81%) and EPQ completion rates (79%) were consistently high since 2014. Among patients in the cancer registry, females were more likely to complete the EPQ than males (odds ratio [OR]\u2009=\u20091.17, 95% confidence interval [CI]\u2009=\u20091.14\u20131.20). Patients ages 18\u201364\u2009years were more likely to complete the EPQ than patients aged \u226565. Lower EPQ completion rates were observed among Black or African American patients (OR\u2009=\u20090.59, 95% CI\u2009=\u20090.56\u20130.63) as compared to Whites and among patients whose preferred language was Spanish (OR\u2009=\u20090.40, 95% CI\u2009=\u20090.36\u20130.44) or another language as compared to English. Furthermore, patients with localized (OR\u2009=\u20091.16, 95% CI\u2009=\u20091.12\u20131.19) or regional (OR\u2009=\u20091.16, 95% CI\u2009=\u20091.12\u20131.20) cancer were more likely to complete the EPQ compared to those with metastatic disease. Less than 3% of patients self\u2010identified as being lesbian, gay, or bisexual and &lt;0.1% self\u2010identified as transgender, genderqueer, or other.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>EPQ completion rates differed across demographics highlighting opportunities for targeted process improvement. Healthcare organizations should evaluate data acquisition methods to identify potential disparities in data completeness that can impact quality of clinical care and generalizability of self\u2010reported data.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/cam4.6459","type":"journal-article","created":{"date-parts":[[2023,8,21]],"date-time":"2023-08-21T17:49:09Z","timestamp":1692640149000},"page":"19033-19046","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Examining disparities in large\u2010scale patient\u2010reported data capture using digital tools among cancer patients at clinical intake"],"prefix":"10.1002","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3171-8045","authenticated-orcid":false,"given":"Dana E.","family":"Rollison","sequence":"first","affiliation":[{"name":"Department of Cancer Epidemiology Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5108-5735","authenticated-orcid":false,"given":"Brian D.","family":"Gonzalez","sequence":"additional","affiliation":[{"name":"Department of Health Outcomes and Behavior Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7885-0879","authenticated-orcid":false,"given":"Kea","family":"Turner","sequence":"additional","affiliation":[{"name":"Department of Health Outcomes and Behavior Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7353-3711","authenticated-orcid":false,"given":"Heather S. L.","family":"Jim","sequence":"additional","affiliation":[{"name":"Department of Health Outcomes and Behavior Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0806-823X","authenticated-orcid":false,"given":"Yayi","family":"Zhao","sequence":"additional","affiliation":[{"name":"Department of Cancer Epidemiology Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6851-0179","authenticated-orcid":false,"given":"Rossybelle P.","family":"Amorrortu","sequence":"additional","affiliation":[{"name":"Department of Cancer Epidemiology Moffitt Cancer Center  Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7934-5081","authenticated-orcid":false,"given":"Rachel","family":"Howard","sequence":"additional","affiliation":[{"name":"Department of Health Informatics 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