{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T19:14:23Z","timestamp":1784142863883,"version":"3.55.0"},"reference-count":38,"publisher":"Wiley","issue":"15","license":[{"start":{"date-parts":[[2025,8,5]],"date-time":"2025-08-05T00:00:00Z","timestamp":1754352000000},"content-version":"vor","delay-in-days":4,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,8,1]],"date-time":"2025-08-01T00:00:00Z","timestamp":1754006400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100001826","name":"ZonMw","doi-asserted-by":"publisher","award":["10330022010009"],"award-info":[{"award-number":["10330022010009"]}],"id":[{"id":"10.13039\/501100001826","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100002999","name":"Ministerie van Volksgezondheid, Welzijn en Sport","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100002999","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004622","name":"KWF Kankerbestrijding","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004622","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cancer Medicine"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Hodgkin lymphoma (HL) is a highly curable malignancy mainly affecting young adults, but survivors are at risk of serious late adverse effects, like cardiovascular disease and subsequent malignancies, which may impact health\u2010related quality of life (HRQoL). The Dutch BETER consortium introduced a nationwide survivorship care program offering tailored screening for late effects among HL survivors from 5\u2009years after diagnosis onward. This study evaluates the association between BETER survivorship care and HRQoL, knowledge of late effects, and distress levels.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The INSIGHT study is a nationwide retrospective cohort study comparing HL survivors who received BETER care since 2013\u20102016 to matched survivors who did not receive survivorship care until 2019\u20132024. HRQoL was cross\u2010sectionally assessed in 2021\u20132024 (median time since HL diagnosis ~25\u2009years) using the SF\u201036 and EQ\u20105D\u20105L questionnaires. Knowledge of late effects and distress levels were evaluated using a modified Cancer Worry Scale and a 15\u2010item knowledge questionnaire. Multivariable negative binomial regression analyses were performed to compare outcomes between groups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      HRQoL outcomes showed no significant differences between survivors screened since 2013\u20102016 (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009251) and the comparison group (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009119). Overall, HRQoL of HL survivors matched that of the general population in the Netherlands. Knowledge of late effects was suboptimal in both groups, and distress levels were similarly low. Eighty percent of survivors perceived BETER care as beneficial, with most individuals stating that increased knowledge outweighed potential worries.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>BETER survivorship care was not associated with better HRQoL among long\u2010term HL survivors, but the care was perceived as beneficial by survivors. Future (qualitative) research could focus on survivors' preferences for education about their risk of late effects.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/cam4.71113","type":"journal-article","created":{"date-parts":[[2025,8,5]],"date-time":"2025-08-05T11:55:43Z","timestamp":1754394943000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Influence of Survivorship Care on Health\u2010Related Quality of Life, Knowledge of Late Effects, and Distress Levels Among Long\u2010Term Hodgkin Lymphoma Survivors"],"prefix":"10.1002","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7345-3500","authenticated-orcid":false,"given":"Eline M. 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J.","family":"te Boome","sequence":"additional","affiliation":[{"name":"Department of Hematology Haaglanden Medical Center, Location Antoniushove  Leidschendam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie B.","family":"Tomasoa","sequence":"additional","affiliation":[{"name":"Department of Radiation Oncology Institute Verbeeten  Tilburg the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rinske S.","family":"Boersma","sequence":"additional","affiliation":[{"name":"Department of Hematology Amphia Hospital  Breda the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saskia E.","family":"Rademakers","sequence":"additional","affiliation":[{"name":"Department of Radiation Oncology Leiden University Medical Center  Leiden the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Floriske G.","family":"Stedema","sequence":"additional","affiliation":[{"name":"Department of Hematology University Medical Center Groningen  Groningen the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lara H.","family":"B\u00f6hmer","sequence":"additional","affiliation":[{"name":"Department of Hematology Haga Hospital  The Hague the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke","family":"van den Berg","sequence":"additional","affiliation":[{"name":"Department of Hematology Catharina Hospital  Eindhoven the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adriaantje C.","family":"Kroeze","sequence":"additional","affiliation":[{"name":"Department of Hematology Meander Medical Center  Amersfoort the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leonie S.","family":"Strobbe","sequence":"additional","affiliation":[{"name":"Department of Hematology Gelre Hospitals  Zutphen and Apeldoorn the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wendy","family":"Deenik","sequence":"additional","affiliation":[{"name":"Department of Hematology Rijnstate Hospital  Arnhem the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heleen S.","family":"de Lil","sequence":"additional","affiliation":[{"name":"Department of Hematology Maxima Medical Center  Eindhoven and Veldhoven the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Flora E.","family":"van Leeuwen","sequence":"additional","affiliation":[{"name":"Department of Psychosocial Research &amp; Epidemiology The Netherlands Cancer Institute  Amsterdam the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Berthe M. 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