{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,20]],"date-time":"2026-05-20T16:09:43Z","timestamp":1779293383969,"version":"3.51.4"},"reference-count":41,"publisher":"Wiley","issue":"16","license":[{"start":{"date-parts":[[2025,8,23]],"date-time":"2025-08-23T00:00:00Z","timestamp":1755907200000},"content-version":"vor","delay-in-days":22,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["T32\u2010DK\u2010007245"],"award-info":[{"award-number":["T32\u2010DK\u2010007245"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000054","name":"National Cancer Institute","doi-asserted-by":"publisher","award":["T32\u2010CA\u201023662"],"award-info":[{"award-number":["T32\u2010CA\u201023662"]}],"id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cancer Medicine"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Desmoid tumors are benign tumors without metastatic potential. While progression is rarely life\u2010threatening, it is often life\u2010affecting with significant morbidity. The rarity of desmoid tumors and the inability to accurately predict their natural history lead to challenges in developing treatment algorithms or formulaic discussions to address treatment options with patients.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aims<\/jats:title><jats:p>To better understand this process, we performed a qualitative study of clinician documentation for patients with desmoid tumors to identify themes and areas for improvement.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>An institutional database search was used to identify patients with desmoid tumors seen from 2018 to 2023. Documentation entries in the electronic health record (EHR) were reviewed, and passages pertaining to treatment were abstracted and explored using inductive thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Ninety\u2010five patients were identified. Generated themes included (1) balancing uncertainty and ambiguity with hope, (2) empowerment through patient\u2010initiated treatment discussions, (3) maintaining an active lifestyle and mitigating psychosocial distress, and (4) fostering longitudinal clinician\u2013patient relationships and building trust.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The current analysis of documentation pertaining to treatment for patients with desmoid tumors provides insight into clinician\u2013patient discussions and decisions in a real\u2010world clinical setting. The emergent themes provide novel guidance and support for optimizing treatment discussions and decisions. More robust community peer support groups specific to patients with desmoid tumors and clinician \u201csupport groups\u201d may provide a way for both patients and clinicians practicing in a disease state with uncertainty to share experiences and improve resilience. Developing treatment educational materials for patients and families and improving access to supportive psychosocial services may further enhance high\u2010quality decision\u2010making.<\/jats:p><\/jats:sec>","DOI":"10.1002\/cam4.71183","type":"journal-article","created":{"date-parts":[[2025,8,23]],"date-time":"2025-08-23T08:40:10Z","timestamp":1755938410000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Thematic Analysis of Clinician Documentation Surrounding Treatment Discussions and Decision\u2010Making in Patients With Desmoid Tumors"],"prefix":"10.1002","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3052-7455","authenticated-orcid":false,"given":"Victoria","family":"Wytiaz","sequence":"first","affiliation":[{"name":"Division of Oncology, Department of Internal Medicine University of Michigan  Ann Arbor Michigan USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tianyi","family":"Wang","sequence":"additional","affiliation":[{"name":"School of Medicine University of Michigan  Ann Arbor Michigan USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Scott","family":"Schuetze","sequence":"additional","affiliation":[{"name":"Division of Oncology, Department of Internal Medicine University of Michigan  Ann Arbor Michigan USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nina J.","family":"Francis\u2010Levin","sequence":"additional","affiliation":[{"name":"Division of Metabolism, Endocrinology and Diabetes, Department of Anthropology University of Michigan  Ann Arbor Michigan USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4633-6971","authenticated-orcid":false,"given":"Rashmi","family":"Chugh","sequence":"additional","affiliation":[{"name":"Division of Oncology, Department of Internal Medicine University of Michigan  Ann Arbor Michigan USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,8,23]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.mayocp.2017.02.012"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2017.75.8482"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.25089"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bulcan.2015.02.001"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5250"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2019.11.013"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-018-4386-8"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.33233"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2015.7412"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12882\u2010020\u201001951\u20101"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1080\/26895269.2022.2129597"},{"key":"e_1_2_11_15_1","volume-title":"Successful Qualitative Research: A Practical Guide for Beginners","author":"Braun V.","year":"2013"},{"key":"e_1_2_11_16_1","volume-title":"Transforming Qualitative Information: Thematic Analysis and Code Development","author":"Boyatzis R. 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