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Understanding trust, mistrust, and health care experiences is crucial, especially in multiple myeloma (MM), which disproportionately burdens Black\/AA persons in incidence and survival.<\/jats:p><\/jats:sec><jats:sec><jats:title>Study Purpose<\/jats:title><jats:p>This study qualitatively examines the experiences of Black\/AA and White dyads (patient with MM and adult caregiver) to gain insights into these phenomena.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>From November 2021 to April 2022, we recruited 21 dyads from the UNC Lineberger Comprehensive Cancer Center. Participants completed a sociodemographic survey and a 60\u201390\u2009min semi\u2010structured interview. We used ATLAS.ti v9 for project management and to facilitate data analysis using the Sort and Sift, Think and Shift approach (ResearchTalk Inc).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We interviewed 21 racially concordant dyads (11 Black\/AA, 10 White) with mean patient ages of 70 (Black\/AA) and 72 (White) at enrollment. Both Black\/AA and White caregivers had a mean enrollment age of 68. The mean duration from MM diagnosis to enrollment for all patients was 5.5\u2009years. Four key themes emerged: (1) knowledge and trust, (2) heightened emotions and discomfort, (3) differing mental constructs of health care experiences, and (4) mitigating mistrust, which varied by self\u2010identified race. Black\/AA participants had greater knowledge of historical events like the U.S. Public Health Service Untreated Syphilis Study at Tuskegee and carried the emotional burden longer. They also emphasized self\u2010learning and self\u2010guided research about MM for informed medical decision\u2010making. Both Black\/AA and White dyads emphasized the pivotal role of patient\u2010provider relationships and effective communication in fostering trust and addressing concerns.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Our study offers contextual insights into the enduring challenges of medical mistrust, particularly within the Black\/AA community, and its implications for patients and caregivers accessing and receiving MM\u2010related care. Future studies should leverage these insights to guide the development of multilevel interventions addressing medical mistrust within the Black\/AA community.<\/jats:p><\/jats:sec>","DOI":"10.1002\/cam4.7297","type":"journal-article","created":{"date-parts":[[2024,5,21]],"date-time":"2024-05-21T08:39:51Z","timestamp":1716280791000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["\u201c<i>They don't care to study it<\/i>\u201d: Trust, race, and health care experiences among patient\u2010caregiver dyads with multiple myeloma"],"prefix":"10.1002","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8481-3046","authenticated-orcid":false,"given":"Shakira J.","family":"Grant","sequence":"first","affiliation":[{"name":"Division of Hematology The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"},{"name":"Lineberger Comprehensive Cancer Center The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jiona A.","family":"Mills","sequence":"additional","affiliation":[{"name":"Gillings School of Global Public Health The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Telfair","sequence":"additional","affiliation":[{"name":"Gillings School of Global Public Health The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"},{"name":"Jiann\u2010Ping Hsu College of Public Health, Georgia Southern University  Statesboro Georgia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gabriell","family":"Erisnor","sequence":"additional","affiliation":[{"name":"School of Medicine City University of New York  New York New York City USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1479-7626","authenticated-orcid":false,"given":"Tanya M.","family":"Wildes","sequence":"additional","affiliation":[{"name":"Division of Hematology\/Oncology University of Nebraska Medical Center\/Nebraska Medical Center  Omaha Nebraska USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren C.","family":"Bates\u2010Fraser","sequence":"additional","affiliation":[{"name":"Department of Allied Health Sciences The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew F.","family":"Olshan","sequence":"additional","affiliation":[{"name":"Gillings School of Global Public Health The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2503-2191","authenticated-orcid":false,"given":"Erin E.","family":"Kent","sequence":"additional","affiliation":[{"name":"Gillings School of Global Public Health The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2862-9970","authenticated-orcid":false,"given":"Hyman B.","family":"Muss","sequence":"additional","affiliation":[{"name":"Division of Medical Oncology The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"Mihas","sequence":"additional","affiliation":[{"name":"Odum Institute for Research in Social Sciences, The University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,5,21]]},"reference":[{"key":"e_1_2_15_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1059601106294215"},{"key":"e_1_2_15_3_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev.psych.50.1.569"},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.0.0323"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-010-1489-4"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21703"},{"key":"e_1_2_15_7_1","unstructured":"SEER*Explorer: An interactive website for SEER cancer statistics [Internet].Surveillance Research Program National Cancer Institute. 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