{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T12:59:26Z","timestamp":1790254766460,"version":"4.1.0"},"reference-count":36,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,8,24]],"date-time":"2026-08-24T00:00:00Z","timestamp":1787529600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,24]],"date-time":"2026-08-24T00:00:00Z","timestamp":1787529600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cochrane Evidence Synthesis and Methods"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Pediatric end\u2010of\u2010life care profoundly impacts families, yet existing reviews on bereaved parents' experiences lack methodological rigor and comprehensive synthesis. Identifying key quality indicators from parents' perspectives is essential for improving care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This scoping review synthesizes evidence on bereaved parents' views of high\u2010quality pediatric end\u2010of\u2010life care, identifying critical domains and developing a thematic framework.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a scoping review adhering to PRISMA\u2010ScR guidelines. Searches in MEDLINE, CINAHL, PsycINFO, PsycArticles, and AMED included studies without date restrictions. Two reviewers independently screened studies, extracted data, and conducted inductive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>From 4962 records, 20 studies (1997\u20132015) met inclusion criteria, comprising 16 qualitative and 4 quantitative studies. Three themes emerged: (1) Interpersonal Interaction (compassionate communication, shared decision\u2010making); (2) Interdisciplinary Care (symptom management, emotional, spiritual, and sibling support); and (3) Practical Support (care accessibility, skilled staff, financial\/logistical assistance).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Bereaved parents advocate for a holistic, family\u2010centred approach integrating empathetic communication, clinical expertise, and systemic support. These findings inform quality improvement initiatives and policy development in pediatric palliative care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/cesm.70103","type":"journal-article","created":{"date-parts":[[2026,8,24]],"date-time":"2026-08-24T07:08:33Z","timestamp":1787555313000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Bereaved Parents' Perspectives on Quality Pediatric End\u2010of\u2010Life Care: A Scoping Review"],"prefix":"10.1002","volume":"4","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1758-3156","authenticated-orcid":false,"given":"Rawnaq","family":"Almahadeen","sequence":"first","affiliation":[{"name":"Head of Child and Maternity Health Nursing Department Mu'tah University  Al\u2010Karak Jordan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9847-8381","authenticated-orcid":false,"given":"Seilin","family":"Uhm","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton  Southampton UK"},{"name":"Cochrane Priority Setting Methods Group  Plymouth UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4857-5084","authenticated-orcid":false,"given":"David","family":"Wright","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton  Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3127-5755","authenticated-orcid":false,"given":"Alison","family":"Richardson","sequence":"additional","affiliation":[{"name":"Clinical Professor of Cancer Nursing &amp; End of Life Care University of Southampton &amp; University Hospital Southampton  Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1825-7587","authenticated-orcid":false,"given":"Richard","family":"Wagland","sequence":"additional","affiliation":[{"name":"Midwifery and Health, School of Health Sciences University of Southampton  Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6173-7319","authenticated-orcid":false,"given":"Katherine","family":"Hunt","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton  Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4387-7278","authenticated-orcid":false,"given":"Anne\u2010Sophie","family":"Darlington","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton  Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,24]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2011.07.008"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2014.06.009"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2014.07.001"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.11124\/JBIES-21-00242"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/104345429701400207"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.156.1.14"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005110-200201000-00001"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/00003246-200201000-00032"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.158.6.515"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2005.03.005"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2005.11.12.20228"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2005-0144"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216307083032"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216307084608"},{"issue":"1","key":"e_1_2_12_18_1","first-page":"53","article-title":"Parents' Perceptions of the Quality of Pediatric and Perinatal End\u2010of\u2010Life Care","volume":"34","author":"Widger K.","year":"2008","journal-title":"Pediatric Nursing"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1754.2009.01590.x"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/07481180903070434"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216309104060"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-011-1398-5"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/082585971102700404"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2012.732023"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049909112444301"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2013.19.10.495"},{"issue":"5","key":"e_1_2_12_27_1","first-page":"295","article-title":"Parents' Perspectives on the Important Aspects of Care in Children Dying from Life Limiting Conditions: A Qualitative Study","volume":"70","author":"Lan K. 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