{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T05:25:48Z","timestamp":1790659548756,"version":"4.1.0"},"reference-count":50,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,10,1]],"date-time":"2021-10-01T00:00:00Z","timestamp":1633046400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["acsjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Cancer"],"published-print":{"date-parts":[[2022,1,15]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Gathering information directly from cancer survivors has advanced our understanding of the cancer survivorship experience. However, it is unknown whether surveys can distinguish important subgroups of cancer survivors. This study aimed to describe the current landscape of survey questions used to identify and describe cancer survivors in national cross\u2010sectional studies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Using publicly available databases, the authors identified national cross\u2010sectional surveys used in the United States within the past 15 years that included a question on self\u2010reported history of cancer. After abstracting questions and response items used to identify cancer survivors, they conducted a descriptive analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The authors identified 14 national cross\u2010sectional surveys, with half administered to the general population and the other half administered to cancer survivors. The most common question used to identify cancer survivors was \u201cHave you ever been told by a doctor or other health professional that you had cancer?\u201d Most surveys had questions asking participants to identify a single cancer type (n = 11), multiple prior cancer diagnoses or types (n = 11), and the time from diagnosis (n = 12). Treatment questions varied from active treatment status to specific treatments received. Questions addressing cancer stage (n = 2), subtypes (n = 1), metastatic status (n = 3), and recurrence (n = 4) were less frequently included.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>There is no standard method for assessing self\u2010reported cancer history, and this limits the ability to distinguish among potentially important subgroups of survivors. Future cross\u2010sectional surveys that capture nuanced data elements, such as cancer types, stages\/subtypes, metastatic\/recurrent status, and treatments received, can help to fill important gaps in cancer survivorship research and clinical care.<\/jats:p><\/jats:sec>","DOI":"10.1002\/cncr.33937","type":"journal-article","created":{"date-parts":[[2021,10,2]],"date-time":"2021-10-02T09:17:55Z","timestamp":1633166275000},"page":"383-390","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["Identifying and describing cancer survivors: Implications for cancer survivorship research and clinical care"],"prefix":"10.1002","volume":"128","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5300-8562","authenticated-orcid":false,"given":"Michelle","family":"Doose","sequence":"first","affiliation":[{"name":"Healthcare Delivery Research Program Division of Cancer Control and Population Sciences National Cancer Institute Rockville Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8092-3013","authenticated-orcid":false,"given":"Michelle A.","family":"Mollica","sequence":"additional","affiliation":[{"name":"Healthcare Delivery Research Program Division of Cancer Control and Population Sciences National Cancer Institute Rockville Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1893-1183","authenticated-orcid":false,"given":"Deanna J.","family":"Attai","sequence":"additional","affiliation":[{"name":"Department of Surgery David Geffen School of Medicine University of California Los Angeles Los Angeles California"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shelley Fuld","family":"Nasso","sequence":"additional","affiliation":[{"name":"National Coalition for Cancer Survivorship Silver Spring Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne W.","family":"Elena","sequence":"additional","affiliation":[{"name":"Epidemiology and Genomics Research Program Division of Cancer Control and Population Sciences National Cancer Institute Rockville Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4427-8800","authenticated-orcid":false,"given":"Paul B.","family":"Jacobsen","sequence":"additional","affiliation":[{"name":"Healthcare Delivery Research Program Division of Cancer Control and Population Sciences National Cancer Institute Rockville Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1185-5210","authenticated-orcid":false,"given":"Emily S.","family":"Tonorezos","sequence":"additional","affiliation":[{"name":"Office of Cancer Survivorship Division of Cancer Control and Population Sciences National Cancer Institute Rockville Maryland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6747-4209","authenticated-orcid":false,"given":"Larissa","family":"Nekhlyudov","sequence":"additional","affiliation":[{"name":"Department of Medicine Brigham and Women's Hospital Harvard Medical School Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,10]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1056\/nejm198507253130421"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1200\/jco.2016.68.3870"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.6004\/jnccn.2018.7071"},{"key":"e_1_2_8_5_1","volume-title":"Statistics, graphs and definitions"},{"key":"e_1_2_8_6_1","volume-title":"Cancer Treatment & Survivorship Facts & Figures 2019\u20102021","author":"American Cancer Society","year":"2019"},{"key":"e_1_2_8_7_1","volume-title":"Defining cancer survivorship: living with, through and beyond a cancer diagnosis"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2012.43.5891"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/annonc\/mdt229"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/07347332.2018.1522411"},{"key":"e_1_2_8_11_1","doi-asserted-by":"crossref","first-page":"7","DOI":"10.5209\/rev_PSIC.2015.v12.n1.48900","article-title":"Defining cancer survivor and cancer survivorship: the who, what, and when","volume":"12","author":"Wronski SL","year":"2015","journal-title":"Psicooncolog\u00eda"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-77432-9_2"},{"key":"e_1_2_8_13_1","unstructured":"Medical Expenditure Panel Survey (MEPS).Agency for Healthcare Research and Quality. 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