{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,25]],"date-time":"2026-07-25T22:16:21Z","timestamp":1785017781036,"version":"3.55.0"},"reference-count":41,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2022,2,22]],"date-time":"2022-02-22T00:00:00Z","timestamp":1645488000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","award":["PCS\u20101505\u201030497"],"award-info":[{"award-number":["PCS\u20101505\u201030497"]}],"id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000133","name":"Agency for Healthcare Research and Quality","doi-asserted-by":"publisher","award":["K01HS023680"],"award-info":[{"award-number":["K01HS023680"]}],"id":[{"id":"10.13039\/100000133","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100009634","name":"Susan G. 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To better understand the impact of a DCIS diagnosis, patients self\u2010identified as having had DCIS were engaged regarding their experience.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>In July 2014, a web\u2010based survey was administered through the Susan Love Army of Women breast cancer listserv. The survey included open\u2010ended questions designed to assess patients' perspectives about DCIS diagnosis and treatment. Deductive and inductive codes were applied to the responses; common themes were summarized.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Among the 1832 women included in the analytic sample, the median age at diagnosis was 60 years. Four primary themes were identified: 1) uncertainty surrounding a DCIS diagnosis, 2) uncertainty about DCIS treatment, 3) concern about treatment side effects, and 4) concern about recurrence and\/or developing invasive breast cancer. When diagnosed, participants were often uncertain about whether they had cancer or not and whether they should be considered a \u201csurvivor.\u201d Uncertainty about treatment manifested as questioning the appropriateness of the amount of treatment received. Participants expressed concern about the \u201ccancer spreading\u201d or becoming invasive and that they were not necessarily \u201cdoing enough\u201d to prevent recurrence.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>In a large, national sample, participants with a history of DCIS reported confusion and concern about the diagnosis and treatment, which caused worry and significant uncertainty. Developing strategies to improve patient and provider communications regarding the nature of DCIS and acknowledging gaps in the current knowledge of management options should be a priority.<\/jats:p><\/jats:sec>","DOI":"10.1002\/cncr.34126","type":"journal-article","created":{"date-parts":[[2022,2,22]],"date-time":"2022-02-22T03:02:30Z","timestamp":1645498950000},"page":"1676-1683","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["\u201cIs it cancer or not?\u201d A qualitative exploration of survivor concerns surrounding the diagnosis and treatment of ductal carcinoma in situ"],"prefix":"10.1002","volume":"128","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0074-6385","authenticated-orcid":false,"given":"Shoshana M.","family":"Rosenberg","sequence":"first","affiliation":[{"name":"Department of Medical Oncology Dana\u2010Farber Cancer Institute  Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer M.","family":"Gierisch","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences Duke University School of Medicine  Durham North Carolina"},{"name":"Department of Medicine Duke University School of Medicine  Durham North Carolina"},{"name":"Durham Center of Innovation to Accelerate Discovery and Practice Transformation Durham VA Health Care System  Durham North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna C.","family":"Revette","sequence":"additional","affiliation":[{"name":"Survey and Data Management Core Dana\u2010Farber Cancer Institute  Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carol L.","family":"Lowenstein","sequence":"additional","affiliation":[{"name":"Survey and Data Management Core Dana\u2010Farber Cancer Institute  Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth S.","family":"Frank","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology Dana\u2010Farber Cancer Institute  Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deborah E.","family":"Collyar","sequence":"additional","affiliation":[{"name":"Patient Advocates in Research  Danville California"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thomas","family":"Lynch","sequence":"additional","affiliation":[{"name":"Department of Surgery Duke University Medical Center  Durham North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alastair M.","family":"Thompson","sequence":"additional","affiliation":[{"name":"Dan L. 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