{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T18:00:37Z","timestamp":1792519237306,"version":"4.5.0"},"reference-count":48,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2023,2,8]],"date-time":"2023-02-08T00:00:00Z","timestamp":1675814400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["Investigator Grant 1173043"],"award-info":[{"award-number":["Investigator Grant 1173043"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Dyslexia"],"published-print":{"date-parts":[[2023,5]]},"abstract":"<jats:sec><jats:title>Introduction<\/jats:title><jats:p>Parents of children with dyslexia may be at elevated risk for parenting stress and mental health concerns. Our aim was to explore the emotional experience of growing up with dyslexia in Australia from parents' perspectives. In so doing, we also developed an understanding of parents' own mental health and support needs informed by their lived experience.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methodology<\/jats:title><jats:p>Seventeen interviews with mothers of children (9\u201314\u2009years; 16 with a diagnosis of dyslexia) were analysed using Braun and Clarke's reflexive thematic analysis approach.<\/jats:p><\/jats:sec><jats:sec><jats:title>Analysis<\/jats:title><jats:p>Five themes were developed to address our aim: Theme 1: Years in the wilderness: Life before diagnosis; 2: \u201cI struggle at times to see her struggle\u201d; 3. School struggles: Advocating for our children and managing distress; 4. \u201cIt's a full\u2010time job\u201d and a \u201clong slog\u201d; 5: Care for the carer: Social support and coping strategies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Our analysis suggests that mothers of children with dyslexia may be at elevated risk for mental health concerns. Specifically, chronic worry and stress, secondary distress, challenges to parenting self\u2010efficacy, and lack of support and understanding (feeling isolated) were highlighted as plausible risk factors. Mothers described coping strategies at the community level (e.g., school connectedness) and at the individual level (e.g., \u201cacceptance\u201d) as protective.<\/jats:p><\/jats:sec>","DOI":"10.1002\/dys.1733","type":"journal-article","created":{"date-parts":[[2023,2,9]],"date-time":"2023-02-09T06:04:20Z","timestamp":1675922660000},"page":"136-150","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["\u201cI struggle at times to see her struggle\u201d: Mothers' perspectives on dyslexia\u2010related school struggles and the inter\u2010connected nature of mother and child well\u2010being"],"prefix":"10.1002","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5502-0821","authenticated-orcid":false,"given":"Adrienne","family":"Wilmot","sequence":"first","affiliation":[{"name":"Faculty of Health Sciences Curtin School of Population Health  Bentley Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hannah","family":"Pizzey","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Curtin School of Population Health  Bentley Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Suze","family":"Leit\u00e3o","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Curtin enAble Institute &amp; Curtin School of Allied Health  Bentley Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Penelope","family":"Hasking","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Curtin enAble Institute &amp; Curtin School of Population Health  Bentley Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5420-8606","authenticated-orcid":false,"given":"Mark","family":"Boyes","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Curtin enAble Institute &amp; Curtin School of Population Health  Bentley Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,2,8]]},"reference":[{"key":"e_1_2_15_2_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890425596"},{"key":"e_1_2_15_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/00222194060390030101"},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jcpp.12703"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph16111878"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/dys.1469"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjep.12401"},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_15_9_1","volume-title":"Successful qualitative research: A practical guide for beginners","author":"Braun V.","year":"2013"},{"key":"e_1_2_15_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_2_15_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"e_1_2_15_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/dys.1681"},{"key":"e_1_2_15_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/dys.1722"},{"key":"e_1_2_15_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-017-3342-7"},{"key":"e_1_2_15_15_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2017.00295"},{"key":"e_1_2_15_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/wcs.16"},{"key":"e_1_2_15_17_1","doi-asserted-by":"publisher","DOI":"10.1080\/19404158.2020.1734952"},{"key":"e_1_2_15_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361319836257"},{"issue":"1","key":"e_1_2_15_19_1","first-page":"97","article-title":"The experience of parenting a child with dyslexia: An Australian perspective","volume":"7","author":"Delaney K.","year":"2017","journal-title":"Journal of Student Engagement: Education Matters"},{"key":"e_1_2_15_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361318820762"},{"key":"e_1_2_15_21_1","unstructured":"Dyslexia SPELD Foundation. 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