{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T17:44:49Z","timestamp":1780595089032,"version":"3.54.1"},"reference-count":41,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2023,9,21]],"date-time":"2023-09-21T00:00:00Z","timestamp":1695254400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Intl J Eating Disorders"],"published-print":{"date-parts":[[2023,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Approximately 25% of individuals with anorexia nervosa (AN) experience a chronic form of the disorder, referred to as severe and enduring anorexia nervosa (SE\u2010AN). Although the classification of SE\u2010AN remains preliminary, there have been increasing calls for a harm reduction\u2010based, collaborative treatment model for these patients. To provide such care for patients with SE\u2010AN, it is critical to listen to and learn from their lived experiences.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Patients (<jats:italic>N<\/jats:italic>\u2009=\u200917) admitted to an inpatient eating disorders program who met initial criteria for SE\u2010AN completed semi\u2010structured interviews about the course of their illness and prior treatment episodes. Interviews were audio recorded and transcribed. Data were analyzed using an inductive, reflexive approach to thematic analysis that examined common themes within and across interviews.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three themes were identified focused on (1) the all\u2010encompassing nature of SE\u2010AN, (2) treatment experiences, and (3) living with chronic illness. Within these themes, there were subthemes. Overall, individuals noted clear insight about their condition, both negative and positive experiences with previous treatment, and hope for better quality of life despite their illness.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>Individuals with SE\u2010AN describe their illness as a chronic condition and hope for a harm reduction\u2010based treatment. Future work, including the lived experiences of individuals with SE\u2010AN, is important to build our understanding of the classification and clinical characteristics of SE\u2010AN and to develop treatment approaches that may best serve these individuals.<\/jats:p><\/jats:sec><jats:sec><jats:title>Public Significance<\/jats:title><jats:p>Many people with anorexia nervosa do not achieve a full recovery despite repeated treatment episodes throughout their lifespan. Understanding the lived experiences of individuals with SE\u2010AN may help to inform future treatment development efforts that could improve eating disorder and quality of life outcomes for these patients.<\/jats:p><\/jats:sec>","DOI":"10.1002\/eat.24058","type":"journal-article","created":{"date-parts":[[2023,9,21]],"date-time":"2023-09-21T12:36:01Z","timestamp":1695299761000},"page":"2273-2282","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["\u201cOrdinary days would be extraordinary\u201d: The lived experiences of severe and enduring anorexia nervosa"],"prefix":"10.1002","volume":"56","author":[{"given":"Melinda Parisi","family":"Cummings","sequence":"first","affiliation":[{"name":"Graduate Counseling Psychology Department Holy Family University  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robbi K.","family":"Alexander","sequence":"additional","affiliation":[{"name":"Princeton Center for Eating Disorders, Penn Medicine Princeton Medical Center  Plainsboro New Jersey USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3062-5648","authenticated-orcid":false,"given":"Rebecca G.","family":"Boswell","sequence":"additional","affiliation":[{"name":"Princeton Center for Eating Disorders, Penn Medicine Princeton Medical Center  Plainsboro New Jersey USA"},{"name":"Department of Psychology Princeton University  Princeton New Jersey USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,9,21]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22598"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890425787"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1614.2003.01234.x"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/9781119975182"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359104519827629"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1001\/archgenpsychiatry.2011.74"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_8_9_1","volume-title":"Successful qualitative research: A practical guide for beginners","author":"Braun V.","year":"2013"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2020.1769238"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22715"},{"key":"e_1_2_8_13_1","first-page":"1","volume-title":"Managing severe and enduring anorexia nervosa: A clinician's guide","author":"Ciao A. C.","year":"2016"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-016-0117-z"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/anzf.1229"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.2019.113"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.4088\/JCP.15m10393"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-022-00729-0"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0005-7967(02)00088-8"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/03630242.2013.821694"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-psych-010416-044014"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-022-00548-3"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1080\/17439760.2020.1858337"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.1085"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22670"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1002\/jaoc.12017"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-244X-13-293"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315617444"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23373"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1037\/ccp0000319"},{"key":"e_1_2_8_31_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2367"},{"key":"e_1_2_8_32_1","doi-asserted-by":"publisher","DOI":"10.1080\/09540261.2019.1601073"},{"key":"e_1_2_8_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11920-018-0931-x"},{"key":"e_1_2_8_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcbs.2020.08.008"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wsif.2018.03.003"},{"key":"e_1_2_8_36_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2326"},{"key":"e_1_2_8_37_1","doi-asserted-by":"publisher","DOI":"10.1111\/sltb.12235"},{"key":"e_1_2_8_38_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315772349"},{"key":"e_1_2_8_39_1","doi-asserted-by":"publisher","DOI":"10.1177\/0020764015623970"},{"key":"e_1_2_8_40_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23331"},{"key":"e_1_2_8_41_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732304270819"},{"key":"e_1_2_8_42_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23283"}],"container-title":["International Journal of Eating Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/eat.24058","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,12,30]],"date-time":"2023-12-30T06:20:10Z","timestamp":1703917210000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/eat.24058"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,9,21]]},"references-count":41,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2023,12]]}},"alternative-id":["10.1002\/eat.24058"],"URL":"https:\/\/doi.org\/10.1002\/eat.24058","archive":["Portico"],"relation":{},"ISSN":["0276-3478","1098-108X"],"issn-type":[{"value":"0276-3478","type":"print"},{"value":"1098-108X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,9,21]]},"assertion":[{"value":"2023-04-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-08-30","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-21","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}